I've also failed Remicade and Entyvio. I've been on Xeljanz for 11 months and I'm now a normal person again. Last summer I was using the bathroom 30-35x per day, lots of blood, mucus, etc. Not...
I was on MTX for a while (didn't work for me). Weekly injections of 25mg. The worst side effects for me was the nausea and the tiredness, but scheduling can help with that. I would feel nauseas...
Depends. My job is a salaried desk job with a lot of flexibility (software developer). I can work from home if I don't feel well. I even worked from the hospital last summer since all I need is my...
Xifaxin is what my doctor gave me for when I went to Costa Rica last year. Didn't need to use it, but it's shelf life is long enough so I can bring it on future trips. The only downside is that it...
I haven't noticed anything bad since I started taking it. None of the side-effects I got with Remicade/Entyvio/AZA/6MP/etc. Just a slow and steady decrease of symptoms. My diet changed last summer,...
Congrats on getting it approved! That was the hardest part, actually getting the medicine in my hands. I knew within a week or so that it was working. I take 10mg 2x per day and felt a decrease in...
My experience is similar to yours: failed remicade, failed entyvio, failed 6MP, failed AZA, etc. Then I started Xeljanx (double dose) over Labor Day (US) weekend and things have been great. I've only...
I started noticing improvement after a couple of weeks on Xeljanz. I'm on a double-dose: 2x 5mg twice per day, which seems to be the dosing guidelines for UC. I'm also tapering off of steroids, down...
I started Xeljanz over labor day weekend this year. I had tried Remicade and Entyvio, both with and without immunomodulators (6mp/AZA/MTX) and nothing worked except steroids. Since I started Xeljanz...
I'm going through the insurance hoops to get on Tacrolimus for my UC. I've had bad reactions to AZA and 6MP, tried methotrexate, but that didn't work either. They want to use it as a bridge until I'm...
I too am allergic to AZA/6MP so they had me on MTX for a while (just got told today to stop). MTX gave me nausea about 12 hours after injection, then quite bad fatigue. They gave me a script for 2mg...
From what I've read and from talking to a friend of mine who worked on the trial data for Remicade, the cancer risk is extremely low. Adding AZA or 6-MP to Remicade almost doubles this risk, but 2x...
I've been on Entyvio since January 2015 and saw slow improvement after my loading doses and for the next 9 months or so. Since then, however, the slow progression has stopped and my labs are...
Thanks all for the replies. I have an appointment in a few weeks with my GI doctor, so we'll see what she says is available. Entyvio has allowed me to get off of prednisone without reverting to fully...
I'm not sure of my exact dose for Entyvio, but I'm going once every 8 weeks for treatment. I am on a very small dose of 6-MP with it. I've tried immunomodulators and they didn't work either. Imuran...
I've been on Entyvio for over a year now. I did my loading doses in January of 205, and while things got slowly better for the first few treatments, I've since had no progression. I still have...
I transitioned from Remicade to Entyvio recently and it's been great. I didn't develop antibodies to Remicade, it just didn't work for me. Like others have said, Entyvio isn't perfect and I'm not in...
I got pancreatitis on AZA, but was able to tolerate high doses (150mg/day) of 6-MP....
My current flare started in March 2013, still in it. Remicade, AZA, 6-MP all didn't work, my new doctor has me on Entyvio and I just got my second loading dose a week ago. Fingers crossed......
I was on 6MP for roughly 8 months before tests revealed it wasn't working for me. I started at 50mg/day and that didn't make me nauseous, just changed the way food tasted in very subtle ways. Once I...
I've tried the Paleo diet and when things get really rough I either don't eat or eat very little, which helps but isn't a viable solution. I've been laying off fruit and veggies for the past week,...
I did have a completely new workup done when my GI passed me to another GI in the practice back in November. That included a stool sample. Would that have caught C.Diff? For my weight, 170lbs, the...
My most recent scope was in November 2013. According to the results, the ulcers are only in the last 20cm or so....
I was diagnosed with UC back in 2011 when I had a flare. That flare was treated and I went into remission until March of 2013 when my current flare started. I've been flaring for close to 18 months...
I also take 6MP at night before bed. Didn't have any nausea at 50mg, but got it after I started taking 100mg. Had fairly bad nausea for a while but 3 months later it's mostly gone....