News from last year scope: No visible signs of current or previous inflammation, no ulcer, no nothing. Just a plain normal colon. Biopsies (which I asked them to describe just exactly what they were...
I had the same effect after stopping Dexilant 60 mg. I felt like there was acid flushing up my stomach. After the meal was out to bowels, I felt the stomach full again, as if it had a lot of water in...
Hello! I had a nissen done in 2015. But it's migrated, partial and there's a new 3 cm hiatal hernia. Been feeling like shit. I wasn't tested for ph in 2019. But I did last year. Demeester was 4....
I saw you raynaud's. Do your fingertips really get blue/darker or completely pale? They can get almost black at times. Just touching something cold causes pain. I've had Raynaulds since 1978 so a...
I saw you raynaud's. Do your fingertips really get blue/darker or completely pale?...
Hey all! I have more news. I was thought to have eosinophilic colitis. After a period of diet I went to France. Ate cheese and bread and chocolate... after 5 days, during my son's baptism, for the...
What was the eosinophils count?...
Yeah I do have it. Here doctors can't hold it. So I have everything. It says I have active moderate colitis with eosinophily in most of the colon. It's just the rectum that has only 1 eosinophil,...
Back with some news. I went to my immunologist and he did what the GI's didn't: give me a diagnosis. Based on the eosinophily in the colon, he told me I have a rare condition, which is eosinophilic...
Man I wrote a detailed text and the connection dropped. The forum tool didn't save the content :( Well, basically I was saying that I researched and found that 1:80, with the speckled pattern...
I got a positive 1:80. Gotta go back to the doctor and see what it is....
Yes. Mine is reagent 1:80....
Has anyone been tested for antinuclear antibodies?...
I didn't know about it. Never heard....
Sorry TLDR and I missed the threads, I was out living my life. I see that I was mentioned above about having CD instead of UC after my colon was removed. I feel so much better now even with CD and...
Actually, your UC seems pretty straight forward. Have you not taken any meds at all since your first scope? q[/quote] After 1st scope (with the scarring) they took a biopsy of the rectum only. I...
Yeah that and allergy and celiac disease... Everything since benign to a terminal cancer, according to the internet hahahaha...
One of the doctors prescribed deflazacort 30 mg once a day and imusupress 80 mg 3 times a day. Another doctor doesn't agree with that because I don't have all those symptons and prescribed mesalazine...
Rational aspects of a disease that's not defined? That doesn't seem logic or obvious, since many people have different reactions. Yeah the support is good, but fear cannot be always avoided. I'm not...
Yeah. Active moderate chronic colitis, in the biopsies. The scope itself was ok....
My situation got better after I managed to control stress. I had to change my shift to achieve that. It's working so far. Diet helped a bit more. Sometimes I thing my stool is weird and ragged, that...
Thank you for all the info. Really. My scope showed no visible inflamation nor the really small ulcers. Although it showed "exulceration" last year, now it doesn't. Also last year the scarring was...
My diag is not saying Chron's. It's writen Moderate Chronic Colitis. But I don't if it's just something that's general, for bowel inflammation or if they'd specify it's Chron's....
I read that Chron's and UC diagnosis can be very misleading. How are Chron's findings usually?...
Have you all seen anyone with pancolitis and no extreme symptoms? Because my symptoms now are mild. No blood. No urgency. No mucous. Last year was bad. I had a very strong pain in the rectum while I...
I am freaking out. Mainly because of steroids, that could lead to worse conditions....
Do any of you know if scientists considered the possibility that the immune system is not messed up? Have they considered that a virus (known or unknown) might have infected us then had their DNA/RNA...
I am not on the SCD, and have not been for quite some time aside from a random month or so last fall (my full run of it was 4 months in the summer of 2016). I see your point, which is why I'm back...
Sorry but when I read this I had to revive the thread. Here in Brazil I saw a 16 years old girl with Chron's try this option. She had most of her intestines taken off. What resets the immune system...
Amazing to read this....
So does it really smell and farts without control?...
Yeah. For me dealing with the colon was never an easy mission. I was constipated (I still am). When you're constipated you have a bad mood and a weird feeling in the gut. After colitis started I...
I don't think that intolerances can be resolved by removing a colon. Most likely because they're not due to UC itself but to something else....
One doctor told me that this is also a strong sympton of IBS, which I had....
I see. Sometimes I feel that, but I was always constipated. When diarrheas started I felt ok, because it was always hard for me to have my bowel working regularly. And when it happens you feel bad,...
What's tenesmus? What do you feel?...
That was extreme, I see. Yeah what will happen is not guaranteed. We can either get better or worse for no explainable reason. But still, it's so frightening....
I don't know. Been reading that people with colitis usually have bone loss problems, along with vitamins deficiency. That's great to know it!...
Yeah one of my doctors told me to take 800 mg a day. She told I have nothing if comparing to people with a real bad disease. That's why she was giving 800 mg. But I read some papers and there is no...
Thank you for all the info and patience! This thing is really scaring me. Though this diet Im trying is working miracles. Despite the fact that I'm not having any urgencies anymore, bloodworks are...
I will keep you posted. Will take a while for me to get a scope again (around 2 months or a little bit more). I'll do the blood work before and see if I have any symptons. When both are positive and...
Don't you guys have any problems with vitamins and bone loss?...
OMG. I never felt anything like that. That's too extreme. Did it start mild for you and then became this monster? How many times do you go to the toilet each day, after surgery? It started off mild,...
No. I'm not feeling anything bad. I have some pain because of gases though. When I fart it goes away. Ever since I cut flours, dairy and refined sugar, bowel been acting normally (I forgot how it...
No problem....
In the rectum thy use "active chronic moderate rectitis". That the same as the colitis? Or rectum sparring?...
OMG. I never felt anything like that. That's too extreme. Did it start mild for you and then became this monster? How many times do you go to the toilet each day, after surgery?...
So is it backwash ileitis?...