Starting Imuran is very scary. I did everything I could to avoid going on the medicine. That being said, it did work for me and did give me my life back. It has been working for me for a while and I...
Thanks everyone for the great advice. My doctor has agreed to write an excuse letter for me. I just hope everything is processed correctly. I will try to keep everyone updated....
I have a very difficult time getting a response from GI doctor and it would probably be very difficult to get a letter from him. Do you think they would accept a letter from my regular doctor (GP)?...
I live in Michigan and just got a jury summons. It is not until the week of 6/22/2020, but I am sure the virus will still be very active by then. What is the best way to exempt myself from jury duty?...
I have been on imuran since mid-January. I have noticed recently that my stool is a little bit clay colored, plus soft and crumbly. This has been going on for a little over two weeks. Is this...
I get this too. A lot of gurgling sounds at night and in the morning. I don't know if this is common, but for me the gurgling definitely seems to get worse when I am reclining on my back or side. I...
They have been doing blood work to make sure everything is okay with the Imuran. I think so far everything has checked back okay, but I wasn't sure exactly what they were testing. I am currently on...
I came off prednisone a couple weeks ago. I experienced numerous side effects while on the prednisone, but it did seem to put me in remission. I have been on Imuran since mid to late January. I was...
Upping my current meds hasn't helped. I don't believe it has ever helped and I have had a few flares now. I see the GI doctor around every 6 months. So the March 21st time would be the time I would...
Yes, I did the CRP blood test…it didn't show anything, but it never does. I have been in bad flares before and have had scopes to prove it, but still didn't show inflammation in the CRP blood test…so...
I am in a flare again. I called my doctor to schedule an appointment. I explained my symptoms, but the earliest I can see my GI doctor is March 21st. This is too long to wait when I am having flare...
Thank you so much everyone for your advice. I have been working hard on my anxiety. I do believe the stress of the chronic illness really took its toll and effected my perspective on things. I have...
I feel like someone standing on thin ice just waiting for it to break. The thing I crave most is safety and security but I've never had that my entire adult life. The last year has also been...
I am worried about taking the iron supplements. Especially since things are a little sketchy right now. I thought I read somewhere that iron supplements might possibly aggravate colitis symptoms....
I am not sure if am still flaring or not?? I have about one to two stools a day but a lot of times they are semi-loose. I haven't had blood or mucous for a while but I still feel very tired. My ears...
Thank you everyone for the feedback. I do think some of my symptoms could be related to the mesalamine so maybe switching to another one would help. Maybe I have developed an intolerance to Lialda....
I am currently on Lialda but not sure really how well it is working anymore. I guess my next step would be to go on Imuran or one of the biologics. Although I was wondering if it ever helps to switch...
UCinNC seven years is a long time. I am glad to hear your were successful for that long on the medicine. Now that you are off the medicine, are you still currently having symptoms are is that...
Thanks everyone for the input. I am glad people have done well with the immunomodulators and biologics. Does anyone know someone that has been on these medications and have had success after the 5...
I take lialda as a maintenance drug. So hopefully that will continue to work for me after the prednisone is complete. My symptoms have improved but not completely gone away. Right now, I am at 1 to 2...
I've been on prednisone for two weeks. Started on 20 mg now down to 17.5 mg. Bleeding has gone away but still getting semi-loose to loose stool 1 to 3 times a day. Does that mean it is not working...
Glad you are doing well after the surgery. Do you get urgency with those seven trips? Would there be a problem holding it for an extended period?...
Thanks everyone for the kind words and support. Reading the responses really helped me. There is a lot of insight and wisdom to be had here. Myself 09, very good advice in your post, I will try...
I have been dealing with a lot of stress the last 10 years but lately, I just feeling like giving up. At one time it seemed like my life had purpose. I graduated from a good college with a high GPA...
I'm not currently on Remicade. I was told that my GI doctor does not believe in prednisone at all and doesn't like to prescribe it period. He was reluctant to give it to me at all and just wanted to...
Primarily what scared me is that they can cause pancreatitis. I have had that twice before for unknown reasons and don't want it ever again. Although, maybe my risk is the same as everyone else's and...
Hello everyone, I'm a 5 foot 5 (1/2) male and currently weigh 112 pounds. I've been flaring for around 3 months. Lost a lot of weight while trying the hydrocortisone enemas and because of restricted...
Okay, so the blood test that I did showed a "5" which I guess is in the normal inflammation range. However, I still go 3 to 5 times a day and have some bleeding and mucus in the stool. I must be in a...
vicyre when were you able to add the yams, sweet potatoes, and artichoke into your diet? Did you start out eating those while still flaring or did you have to wait until into remission for a while....
I think for some people food doesn't trigger flares and for some people it does. My last two flares seemed to be directly linked to poor food choices. The first flare I ate some White Chicken Chili...
bananagirl what did you eat to maintain weight? Right now, it seems I have an issue with eggs so I don't think I can have those. You're not supposed to have raw fruit and vegetable when you first...
I was thinking about starting on a Paleo diet or SCD diet to help my UC. However, because of latest flare, I have already lost too much weight. Is it possible to start these diets without losing a...
I don't think my symptoms got immediately worse with increasing the Lialda from 2 to 4 pills. I do think my symptoms are worse now but that could be just because my flare is getting worse. I did...
Everyone thanks for your replies. It is very helpful. I did increase my lialda pills from 2 to 4 a day. That could be the issue but I have done that in the past while flaring and it didn't seem to be...
I am currently on Lialda. Never had an issue with it before. I had more bleeding today. John when you mentioned that the steroids took two weeks to work was that the pill form. I heard those take...
Just started Hydrocortisone Rectal Suspension Enema for mild flare. That was 4 days ago. I have not noticed any improvement yet. My doctor said it could take 8 days to two weeks to see any...
Yes, I think it should be 4 pills a day of Lialda. 2 pills are for maintenance, 4 pills are for getting into remission. You might be able to call Lialda directly and see what their recommendation is....
Some good responses on here. I've heard about the SCD diet, might want to try that some time but was a little worried about weight loss since I tend to lose a lot of weight during a flare. Also....
Jonny Murray, glad that you are doing better now. What helped you get back to health? Suebear, how is having the j-pouch surgery? I have to admit this something I am afraid of. How much of a normal...
Hello, I'm new to the forum. Was diagnosed with UC last year and find it to be a bit confusing researching all the conflicting information out there. I wanted to hear from people who have achieved...