I am considering j-pouch surgery...roughly how long from start to finish until y’all felt physically 💯, if ever? I am a career firefighter. The surgeons have all said that they believe I can get...
Anybody having problems with their weight while eating all that bread, pasta, potatoes, rice (basically a lot of carbs and starches)?...
Update - So I am actually already dosed at 10 mg/kg... my doc is skipping the every 6 wk regimen and going straight to every 4 wks...he states that this is uncharted territory. The frequency makes me...
I plan to talk to my doc regarding dosage and frequency...I wanted to make sure that this wasn’t just something to be expected at this point in the game. I have an appt with a hematologist this...
I recently began remicade...kind of against my own free will...My last flare took a quick and deadly turn, and I found myself hospitalized and 40 lbs underweight. Within a matter of weeks I went from...
Superpoop- I will look in to that. I have lived in several different locations over the 20 years of my disease, so I don’t think it’s related to a runoff issue. I don’t eat much dairy. I do eat...
I haven’t noticed any change in my symptoms while tapering off prednisone. That said I’ve never noticed any improvement on prednisone either. If anything my symptoms seem worse while on prednisone....
Thanks Spring. I’m tapering the prednisone, I’m at 10 mg (started at 40) I’m not sure how much I was on in hospital), tomorrow I go down to 5mg. I used to take florastor (probiotic), I was told it is...
I’ve only had 2 infusions...started in late Dec. I’m trying to be patient and I have had big improvements...this is just not like anything I’ve experienced in my 20 years of dealing with UC....
Wondering if any of you have dealt with liquid diarrhea as you heal from a bad flare. I am healing from the worst flare of my life- hospitalized, lost 40 lbs, wound up on remicade. Good news is the...
Max Power- thanks for sharing your experience. I seem to read a lot of stories that are similar to yours, I guess that’s why I’m so skeptical about the drugs. I hope that something works for you soon....
Ipoop- any thoughts on why my mucous thins out every three to 4.5 years? Until that last remission (4.5 years) I flared like clockwork- 3 years late August or early September...it’s insane...
Ipoop thanks for your response. I have tried patches in the past, unfortunately it did not work . I’ve had a dr tell me that only smoking would work, however I’ve seen great things from dipping as...
Yes I’ve always been required to do stool tests every flare, and they have always been negative. I feel like for me there is an absolute direct link to my UC and tobacco ... this summer I thought my...
Thanks for the responses and the genuine concern. Just to clarify my rationale a bit... Butthurt (btw I almost tried to choose that handle) I understand the dangers associated with tobacco , believe...
So a brief background to start - I’m a 38 yom, husband, father of 3, professional firefighter and paramedic. I have suffered with UC (which only effects my sigmoid/rectum) for 19 years. I am a former...