I had a long skinny deep wound which closed up pretty quickly. The pain I felt during changing the gauze went away after about 2 or 3 wks...
There may be times that you eat something that doesn't agree with you and you may feel like its UC all over again. I promise that its not like that every day and by far overall it's an amazing life...
Being a Yankee fan since July has actually probably hindered my recovery mind and guts are related haha...since you're a baseball fan I suggest you check out Jake Diekman. Hes a pitcher for the...
I'm about 4 months post OP and around 3.5 months things just started to get alot better. The first three months were still 10 times better than UC but there was adjusting. I've been able to coach...
Ok I'm about 4 months out of J Pouch surgery and doing great. Metamucil and immodium have been my best friends...I have eaten so much that I was unable to eat with UC excluding some. I was very...
Its been 3 months and 3 days since J Pouch connection and things are great. I'm living life. I go to multiple yankee games, coach legion baseball, play softball, go hiking, gym, etc. Last summer I...
J Pouch was definitley worth it for me. Im 6 weeks out from my takedown. I go about 3-5 times a day and have little to no urgency and no accidents. Gas can be uncomfortable sometimes...3-5 may seem...
Everything's going great and I can finally drink coffee again. I'm looking to try some new foods eventually and I'm wondering what everyone's experience is. I'm DYING for an Italian hoagie with...
I am tempted to say I'm cured bc I don't believe removing an entire intestine is a "cure" but I can say I was on my death bed (not an exaggeration I was literally dying from malnutrition) to being...
It's amazing how even with a bag I was weary of alot of foods that UC didn't like I was convinced it would be bad. For this I'm saying screw it I need to try again especially since I have to put...
I just wanna give a quick update on foods/drinks I've experimented with... I've recently introduced red bull/soda and coffee and have had no problems. The BIG ONE was a amazing pulled pork sandwich...
I had mine on May 14th so I'm not even two weeks out from surgery and I'm completely content. I had one leak but only bc I ate a bagel with cream cheese at midnight for some odd reason and I was...
Yea that was the only night I slept through 8 hrs. But to wake up once or twice beats not being able to sleep at all. I'm completely content with this set up...
I was left with no choice but to get surgery. I didn't even have a quality of life to weigh my options I was dying. I went with the surgeries. Amazing choice for me even dealing with the bags I felt...
Mine so far has been about 5 hours after I eat and I'm very content with that. I haven't had a problem with butt burn yet since I do use zinc oxide but sometimes it does burn coming out. I'm...
First night home was a success. I ate lunch at the hospital and took the 2 hour car ride home from Philadelphia to Scranton PA with no issues whatsoever. I felt I had to go about 30mins from home and...
Ok so I had my first solid meal. Half a Hamburger and horrible mashed potatoes but it was the first thing I at in 4 days so I'll take it. Most likely being sent home once they see how i handle...
Haha I'm usually out of it for the first 2 days haha. No I'm still on the hospital haven't been allowed to eat yet. Surgery was on Monday they wanted me to pass gas or go before they Fed me. I did...
I did mine in 3 steps. 1st was in June of 2017 waited till Feb 12th of 2018 for step 2 just bc I wanted to enjoy my holidays, build my body back up etc, and then may 14th was my final. My surgeon...
Monday May 14th at 1130 am i emptied my bag for the last time haha. I woke up 5 hours later in some pain but without a stoma and a bag attached to me...my first thing to come out my butt has Wed at...
I'm a 26 year old male who played baseball/softball his entire life and worked out on a regular basis. At first it's tough I can't lie but the quality of life was 10x better than with UC. I couldn't...
Runjerrun speaking of the "loop" haha if you have any troubles with the bag fitting on after the second surgery get in contact with me. If course everyone will be different but I found a combo of...
I had a HUGE issue for awhile i finally found something that works although I'm getting the final surgery next week haha. It's been 3 weeks with this set up and no problems Convatec convex pouch ref...
Remicade didn't work for me i was too far gone but I did have the same issue after every infusion. One of my good friends suffers from Crohns and he is basically down for the count the days of his...
In one week I'll be having my step 3 takedown j pouch surgery and I am so excited. I've had a very interesting year and I'm ready to put it all behind me. My question is what to I need to be prepared...
Honestly I have no issue going 5-7 times a day and waking up to go since I did that most of my life. Plus I like my bag empty so I empty it pretty regular prob more than I have to so 7 trips would...
Thanks for the response you're always so quick to be helpful...
Looking to get perspective on others experiences. How was the urgency after surgery? How long till you were comfortable leaving your home and being confident in no accidents, were you able to relax...
Thanks! This has been a wild year considering I was only diagnosed last March. I'm a little nervous about possibly having urgency. I coach legion baseball and the season begins 2 and a half weeks...
I guess "normal " is different for everyone. My normals was 15-25 times a day. I only flared once in my life and had my colon removed 4 months after being diagnosed. I know of people who don't live...
Well it's finally going to happen! My 3rd and final surgery is scheduled for may 14th. I am very excited to get rid of my ostomy and get my life started with the j pouch....my question is does anyone...
For me I was diagnosed on March 7th last year and had to have my colon removed in June so I never experienced anything but an extreme flare. I slept on avg maybe an hour a night for those months....
My loop started off as a nightmare no supplies worked and the more the swelling went down the more frequent the leaks. I finally found a bag (definitely suggest looking into convatec convex type of...
Honestly I did not have major pain from the 2nd surgery. The first one my body was so weak I was in pain going into it already so it was rough. I was able to get off the pain killers 3 days out of...
Hey guys I'm going to set up my final surgery and takedown this annoying loop ileostomy. My apt is april 24th so I'm assuming I'll go in for surgery in mid May. My question is im coaching American...
My loop ileostomy was having no leaks and now I have constant leaks. Probably bc it's not swollen anymore but I'm losing my mind I've changed 4 times today. Not using convex bag orwafer hoping...
I've struggled with anxiety my entire life. I've also had a 4 year bout of a painkiller addiction. I got sober in June of 2015 and it has a bad affect on your bowels. You're either constipated or...
I'm having a 3 step procedure so I honestly miss the end it was so nice. Odd to say this when I was disgusted by it at first haha. I'm not having any leakage problems I was just worried by the...
I got a loop ileostomy on Feb 12. I've noticed that the stool is coming out higher on my stoma. To the point of it coming out where it connects to my stomach. Anyone have any experience with this?...
I tried remicade for a little and it was no help so I had no choice but to have surgery. It saved my life as i was very very ill due to UC. I always suggest trying everything you can before surgery...
I just had my second surgery on the 12th. I had my colon removed on June 18th of 2016. I too decided to take awhile before I went in again due to the previous months of anxiety, pain, and long stays...
Btw thanks for the quick replies with good info...
I don't mind emptying often it's good practice honestly do thanks for that. Water gets boring after awhile and I'm wondering what drinks are good for hydration that have taste haha. I have some...
Actually that's my next question, coffee other than the faster output is it ok to go with...
Ipoop, you're always so positive I love it. I am very positive about this as well tho creeping thoughts of "ugh" enter but nothing crazy. I'm eating pretty well open, burgers, eggs, and I have a huge...
So update... I am finally home after my 3 week stay in the hospital. I had my 1st step surgery on June 19th and was released earlier today. I experienced a decent amount of pain in the first few days...
Congratulations it's great to hear positive posts on here. Most people are pretty negative when it comes to their situations but let's get real if things were going well why stick around looking for...
hey cowboy I came in so sick and all my nutrients were gone I had to be fed all my stuff thru a PICC line thru my main artery for over a week before they would touch me. The healthier you are the...
Ramesses, like I said I really had no other choice. According to my surgeon and his team my colon was literally falling apart as they took it out so I was VERY VERY sick. I had one of the worst my gi...