So we have just come back from my daughter's GI check up. She is on Azathioprine and her blood results at the end of March showed no inflammation but I have just found out that the last stool sample...
Hi All - I was just wondering if anybody just gets severe abdominal pain every now and again and whether it means anything? For context my daughter has UC and has been in a fairly solid remission but...
Thanks all I will definitely speak to her, I imagine she would find it impossible to not go for 8 days anyway but will stress the importance of not holding it in in terms of UC. Thanks!...
Thank you for taking the time to reply Andrina, I just wonder whether it’s fair on her at 12 to limit what she does “just in case” as I said she is currently symptom free and I have no reason to...
Thank you both, we are UK based and its a trip to mainland Europe so I am not overly concerned but I hadn't even considered the usefulness of Pentasa. Its completely a mental issue so I will keep...
Hi All, I was wondering if I could pick your brains on this topic. My daughter is doing really well at the moment and the doctors believe she is in remission (though haven't mentioned any scopes...
sorry I meant I won't be able to organize calcium through the doctor until next Monday and assuming it takes a while before I get the prescription and get it filled I am thinking probably Tuesday or...
can I ask you all a super quick question? My daughter has been put on pred again, I had lots of messing around with her GP today who receives an email from her IBD specialist asking him to write a...
Thanks, yes I probably should but it felt like we were having bloods every other week for a few months! but seem to have settled now, she has confirmed they have gone back up but didn't mention...
Thanks Both, Like I said I am stopping the iron anyway, I was never that keen on giving it to her as I have struggled with it in the past and I don't have UC!! It may be different if her iron was...
Good Morning all, one day I hope to provide some people with advice on this forum, but in the meantime I will just keep asking for yours if that is OK! My daughter had a flare in January which was...
Hi All I was wondering if I could ask for some help translating my daughter’s biopsy results from January (only just received), I just wondered if she definitely has been diagnosed with Ulcerative...
Yes! My 12 year old is using them nightly at the moment and they definitely helped clearing up the last little bit of inflammation, they don’t sting her but I think she was mainly healed anyway so...
Oh so do you think pred may have affected her hormones? She is two weeks off pred and although she has always suffered more than me with her monthly it does feel like the past few months have seen an...
Thanks, am going to look into supplements instead. Its weighing up whether she's suffering enough to risk upsetting her UC or it to be honest and I would rather we didn't!!...
Thanks for the replies, I will speak to the GP and see what he thinks, I would like to try it for her sake but not if there is any risk at all to her UC! 😊...
Hi All, I just wondered if any mother’s had any experience dealing with teenage hormones ☹️ My daughter has been off prednisone and symptom free for about 2weeks now on Pentasa and SolaFalk enemas -...
Thanks, her scope was at the end of January so I guess the biopsies were U , we were at the clini. Last week which was the first time since hospital discharge and nothing was mentioned so as much as...
Sorry again, but just to check in your guys opinions is there any chance splitting the Pentasa to 1g oral and 1g of rectal may be beneficial in stopping any residual bleeding while we taper or not?...
Thank you both for your replies, everything is so complicated with this disease! We had a stool sample taken last week but it will take two weeks for the results, but what would you expect that to...
Thank you that makes sense. Would you try enema and oral straight away then and not wait and see if blood appears? I don’t think she is at maximum dose but the doctor said she is (she’s 5’4” and...
Hello again! Thank you so much for your replies so far, i was wondering if I could have the benefit of your knowledge once more! So after 2 failed attempts at tapering past 10mg of pred the doctors...
Thanks, that's exactly my thinking from what I have read on this site. She is taking the prednisolone and 4x 500mg Pentasa slow release tablets a day (2 in the morning and 2 in the night). When she...
Thank you for responding and I completely understand and will obviously be led by the doctor on this ultimately, but I wondered if you would expect 2g of oral Pentasa per day alone to be enough to...
Hi All I am new to this site but have been lurking for a while and was after some advice on treatment for UC for my 12 year old daughter if anybody can help? To cut a long story short she started...