Hi yeah for UC. Im 7 weeks post op and still not passed anything at all out of rectum. Yet most days i still feel a big urge to pass something! Its really annoying!...
Wow thats very interesting! Yes its really annoying. I wish I could just fart but theres nothing there....!!!!...
Hi guys Just a question fir those with end ileostomy. Got mine 3 weeks ago and a subtotal colectomy leaving rectal stump. My surgeon said theres about 5 inches of rectum there. So my question, is it...
Wow thats a great routine youve got there sherrine! I am def making sure the skin is bone dry all over first with dry wipe then I let it air for a few min. I dont think the adhesive remover spray is...
Thanks Sherrine I will def try barrier wipes. I did leave my 1 piece two days the other day but when i took it off the backing was really melty and gloopy and there was some bowel contents leaked...
Hi Sunnipops thanks for the suggestions. Going bag free feels nice. Its so unnatural for your skin to be permanemtly occluded!...
The steroid cream has gotten rid of the itch from sensura mio adhesive. Just a but pink still. But wouldnt it be bad to use steroid all the time? Loads of samples arrived today and have 3 of each...
Some samples arrived already! I have 4 eakin rings to try. The slimline ones. They look good. My prob just now is that the skin is now pink and itchy and bumpy everywhere it touches the ashesive in a...
Thanks Keith I will ask my stoma nurse on Monday and see if she has any 2 piece samples....
Good luck! I just had quite a dramatic severe flare and became very unwell very quickly. After a blood transfusion I had colectomy and end ileostomy on 29th Sept. I dont know if I'll go for j pouch...
Keith that looks really good! Im changing the whole thing as its a 1 piece. Stoma nurses never mentioned separate bags and wafers and all my bag samples were 1 piece. Wow nssg that is some list thank...
Hi Keith I am changing my bag daily because all 3 of the stoma nurses I saw when I was post op in hospital told me to change the bag every day! I dont think its a yeast infection. The worst red bits...
Thanks for your replies. Nssg - Im following you around! Yeah its an end ileostomy. Not sure if I'll get a pouch or permanent ileo and im nowhere near deciding yet. My gp has prescribed the brava...
Hi I am new to this forum having had ileostomy for a severe flare of UC 2 weeks ago. My stoma nurse in hospital told me to change 1 piece appliancw daily. I use sensura mio bags. I am defo removing...
I wondered the same. I felt very unwell and dizzy and my heart rate had been really fast for 4 weeks. Along with severe uc symptoms. A user on here told me that it was anxiety! It wasnt. I had very...
I am a week following surgery and having terrible bother with gas. Im not eating any foods on the gassy list and drinking only water. Just now im so bloated up it feels terribly tight and my belly...
Hi nssg. I am doing ok i think. I am actually finding the midline incision more difficult than the stoma in terms of pain and moving about. No idea about j pouch yet. I will see how i find living...
Hi I think everyone is different. I was Dx i think in 2007. Hsd some mild mod flares but didnt have a severe one til 2015 so those first 8 years weren't too bad. Just had a really bad flare and...
As the title says! I am trying to be philosophical and positive. The first 2 days were really hard I struggled to move partially as was soooo sedated. Morphine plus max dose quetiapine meant i looked...
Ps my surgeon just said he does them open. Im ok with that. Its the nhs!...
Thanks guys. Nervous now. Going to try and get a good sleep ahead of the big day tomo....
That is great to hear runjerrun. So glad you feel so much better! Ive just seen anaesthetist and im all booked in for tomorrow. Im having open surgery. Having a subtotal colectomy and end ileostomy....
Thanks v much gardener Nssg thanks for the info v useful to hear. Still dont know when my op is but prob tomo. I will ask the surgeon lots of Qs today....
Wow fabulous. So glad ur doing so well and living life to the full. Congrats on your anniversary of relative normality! Im going for colectomy and ileostomy in the next couple days so its good to...
Thanks quincy. Yeah i guess I'll just have to see how i feel about it once im used to it and take it from there!...
No theyve not mentioned upper endo. Im just bleeding so fast st the mo theyre trying to get my hb up with transfusions to make me stronger for surgery. I havent yet spoken to the surgeon who will...
I am going to have a Bounty before my op lol!!!!...
Nssg youve been through a lot! Im glad surgery has improved ur quality of life so much. Well I love my food and im so bored of the low residue just now! I nirmally eat a ton of veggies. The stoma...
Im glad you had a generally good experience Woogy. Its encouraging to hear of success stories. Good luck with ur last op!...
Thank you. Im trying to be philosophical about it. It is what it is. Theres no point thinking what if x y z had been done. I cant change anything now so onwards and upwards. Would be good to hear how...
Posted here a wee while ago saying i thought i was really ill and didn't know why i wasnt in hospital. Anyway im in now. Got very severe pancolitis. My gp pushed for me to come in. My heart rate is v...
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Oh no really ipoop? I spoke to ibd nurse today and she said it should work in 6 weeks....
Sorry I should have given more info ks1905. I am not new to UC ive had it 10 years but i meant this current episode has only been going on a couple weeks. I have been on infliximab before on my last...
I currently have moderate pancolitis for only a couple weeks but things are getting rapidly worse and I'm now feeling really exhausted. Losing a lot of blood and constant diarrhoea also through the...
^^think you mean scarring lol...
Thanks ipoop. I dont have antibodies....
Thanks guys. Notsosickly I have a feeling its a med side effect. Its appearance coincided with the humira going up to weekly. Im not doing well. Ive got mod pancolitis getting worse despite humira....
Meant ibd nurse not ibs!...
Ps I shall contact the ibs nurses to see what they think - I dont like bothering them but do you think its reasonable to as not had this before?...
Hi quincy thanks for reply. I dont think its oa im a bit young for that. Also dont think its ra as my joints arent swollen just painful. Sorry which blood tests do you mean? I had some bloods done at...
Hi I currently have moderate pancolitis. My humira went up to weekly on Thursday. Ive never had joint pain before and had UC over ten years. I have a sudden onset of joint pain in my left hand middle...
Hi limey Glad you're doing well on the entyvio. Its my first week aapart dose humira today so hoping i respond to it soon...
Ps we have entyvio here but not xeljanz...
Hi Thanks for your reply. I cant take azathioprine because it gave me hepatitis. The scope showed pancolitis but it was mostly from the splenic flexure to the caecum and not in the rectum. My GI...
Ah right I see. Well he took 36 biopsies so they should show whats going on? Im on weekly humira and asacol mr tabs 6 a day. Thanks for your replies....
Also, could an infection cause moderate pancolitis visually on colonoscopy?...
Hi ipoop thanks for your reply. Not sure if you saw my ps - Ive had levels and Ab test and they were fine. I absolutely cannot take pred (for reasons I won't disclose but just trust me its completely...
Ps my drug levels are fine and I have not made Abs against the humira....
Hi guys I am new to this site but been reading for a while. I've had UC 11 years. Been on oral and topical mesalazine, steroids, azathioprine and a few years ago given remicade during hospital stay...