My inflammation is just in the rectum, can’t remember how many centimeters. Everything looked good over the summer on my scope but I was on high dose prednisone and felt great. Off prednisone not so...
Just the same old flare since the spring. Not resolving as well as I’d hoped so wanted to mix things up...
Is it possible to do more harm than good? I’m doing cort enema/colo cort at night and Canasa once a day or after the cort enema. Is rowasa in the afternoon too much?...
I would definitely do another scope if possible. I do feel I’m getting better month to month, just very slowly. In the past it didn’t take this long. I’m much much better off than I was back in may....
I think my oral mesalamine is maxed out. I’m wishing I had chosen remicade, seems like people have a better response. I’ll do the cal protectin. I think I’ll also move up my appointment for my follow...
Total BMs a day- average 3-4, but anywhere from 2-6. Urgency- sometimes I can wait 2-10 min depending on the day. Rarely do I have a normal stool. Not usually straight diarrhea but pretty close to...
This place has always been a great sounding board for me and I’ve always gotten great advice. I felt best on prednisone as expected. I’ve been on humira a little under 3 months and am on my fourth...
I’m going to call and ask about uceris tomorrow- I have a bunch of it left over....
Thanks, it helps to list my options clearly. I will message my doctor and ask if I can go ahead and start oral uceris. It didn’t help in the past, but I wasn’t on humira then and was really sick. I...
I have my bridal shower in 2 weeks, I hope things turn around. Life is pretty tough right now....
Spoke with my dr, she will check my humira levels prior to my next injection in 10 days. Hopefully things will turn around, I can’t work much longer in this flare. I’ll ask about imuran....
Apriso 3.375 g twice a day, rowasa every night now, finishing uceris foam treatment (2days left), canasa if I can retain it during the day, humira 40 mg every other week, lexapro 10 mg, Wellbutrin...
I feel like I’m teetering on a see saw and could go in either direction- remission or flare. If they want me to have a scope I will. It takes so long to get in since for a scope, I go to an IBD...
This is helpful- sometimes I just need a sounding board and support from someone else with UC. I think I might stop the turmeric. I started it a few weeks ago so maybe that shook things up. My doctor...
Hi All, I started humira July 13. I was off prednisone around August 17, and life has been good until the past week- sept 2. I started having cramping, urgency, mucous. Things have not worsened since...
Are people on both oral steroids and rectal steroids ever? I’m doing rowasa nightly and canasa during the day when I can manage it. I’ll stop the turmeric, doesn’t seem to help anyways....
Yes, I am in the Us. I don’t think there’s any work for me to do at home, I’m a nurse. But If they can accommodate I am willing to work at home! I got TB and hepatitis testing last week, so I’m...
I started flaring in April. Topical didn’t work, moved onto uceris. Started prednisone 4 weeks ago and had to go back up 40 mg a day since my symptoms returned at 25 mg. I’m getting retested for c...
Thanks for all the support you all! Started on prednisone last week- I felt so much better less than a day later. It’s like a switch was flipped and the inflammation shut off. I tried to call again...
Thanks you all for the advice and kind words. I called my GI this morning and heard nothing back. I’m hoping I’ll hear back tomorrow. It was so disappointing, I waited all day. I cried all the way...
Unfortantely I guess that’s what I need. I’ll call the doctor tomorrow! Just gotta make it through this week......
Week 5 of my current flare. Started off with rowasa and uceris foam, did not help. 6 days ago I started the uceris pills, and I’m still not doing any better. Also spent a fortune buying VSL 3 It’s so...
Of note, my GI doc (at an IBD only clinic) said myself or anyone with IVF should not take estrogen containing birth control as it can cause flares...
For flare ups, how often do you use Rowasa? Daily for a few weeks? For future reference for me. Is it absorbed better than canasa since it's liquid? I have been doing pretty well lately. However I...
Since using uceris rectal foam, urgency has decreased and I have more formed stool. Now I am starting to become constripated. Could this be because my flare is resolving? And the proctitis is...
Since my doctor added uceris rectal foam twice a day for 2 weeks and then once a day for xyz, etc I don't know how to fit the canasa in. Should I do it in the middle of the day, or should I do it...
Plan is to stick to apriso and Canasa as maintanence. Uceris ended up being $55...
Scope went OK. Mild proctitis to 5 cm. This proctitis is so stubborn. My doc added uceris rectal foam on to clear it up. Why is proctitis so hard to get rid of? Can it take months?...
Just wanted to thank you all for your support- I am feeling much better. The rowasa is amazing, I am glad I was able to retain them. I wasn't able to before. Just took deep breaths if I felt cramping...
Hi Heather, My scope is actually for next Friday, I wasn't very clear! I know I need it, but it's more money and time. I have good insurance but I have to pay some out of pocket- that facility fee...
I take apriso 1.5 grams twice a day. It's ideally supposed to be used just 1.5 once a day. My doc was hoping to get me to that dose. Have an appointment for a flex sig now. Unfortunately last time I...
No changes to my life or diet. Well, I did stop taking an antidepressant and was doing well without it- maybe I'll restart that. Thanks for all the tips. My UC is proctitis- will keep with the rowasa....
Hello, Not sure why this flare up is happening. I've been doing well since march. I don't want to do prednisone again and my doctor really hates prescribing it. I am having frequency and some mucous....
Thanks you all. I started trying gluten free last Wednesday and for the most part I eat dairy free. I have worked for the past year since I have been sick on and off. I have run out of steam. For...
How do you all function during a flare? I finished my prednisone taper about 2 weeks ago, and my symptoms are coming back. Dr. said no prednisone until I get a flex sig and video endo capsule study...
Thanks Myrne. Total I will be on prednisone for about 8 weeks once I am done with the taper. And I guess you are right, it's just a name change if they do change the diagnosis. No more D anyone, and...
@missnuts- I had the same reaction to the fluid I had to drink. The drive home was pretty tense and I had multiple runs to the bathroom before leaving the hospital. I too was told people don't...
Hello, I usually post in the ulcerative colitis forum as I was told I have UC. I have been in a flare since the beginning of March and am currently on a prednisone taper. I had a colonoscopy last...
Thanks for the tips, I'm going to give it another shot tonight!...
I have been prescribed rowasa in addition to my other mess to get me through a flare. I have only been able to retain it once so far. About 30 seconds after I administer it, I get the worst abdominal...
For the past few weeks I've had anal itching every day, on and off all day. I doubt it's pinworms but who knows. I have an anal fissure that is almost healed, could that be it? Other theories are UC...
Thank you Quincy, ipoop, red, dikid and everyone else....
Thanks for all the support here. It's really helpful to get info from others with my condition and I appreciate all the responses. Of course as soon as I posted my UC was OK today kind of went down...
I need to create a signature with my meds but I take apriso, canasa, Wellbutrin, lexapro, probiotic and vitamin D. I think I will see a rheumatologist and see if they have any suggestions. I see my...
Thanks. No steroids recently......
From what I have heard, Sometimes joint pain comes along with the UC? Around the time I got sick I started getting all this pain in my neck and shoulders. Some days Its manageable, other days, like...
Cipro is known to cause tendinitis and possible tendon rupture...
Aimz, Any issues with incontinence after the surgery? I've read that can be a side effect....
I haven't tried the hydrocortisone supp but I will ask for those. Thanks!...
Anyone else here have issues with ongoing fissures? I think mine is always on the same spot. It will almost heal and then reopen. I use calmoseptine, nitro ointment and then canasa. It's so...