I couldn't do it without my hubby. Tonight after seeing all the blood I just couldn't emotionally function very well so I went upstairs and hid in my room while Hubby did dinner and bedtime. The one...
Thank you for your reply!! It makes me feel less scared to know that you have the same fears as me too. I talk my ear off my hubby about this but I think only another UC'er (or another chronic...
Hello! Thank you for reading: I'm an emotional wreck and this forum always helps me so much! I started flaring in June and in August I started Humira every ten days, and Rowasa every couple nights as...
DBwithUC - Ah, thank you for these important clarifications! May I ask: how "quick" is "fairly quick" mucusa replacement? Like days/weeks/months? Anything less than a year at this point I consider...
And chocotofu, to answer your question: I'm eating the same diet that I had this time last year when I felt 100% well with no symptoms whatsoever. Basically a moderate diet, no fast food, but I eat...
I'm intrigued by the advice to avoid fiber foods. I don't know a whole lot about fiber, admittedly, since whenever I avoided/added fiber in the past, it never seemed to make a difference, so I just...
Hello! I have had five rounds of Humira (as an injection), and my inflammation markers have decreased from 11 to less than 1 (eight-tenths). So I would expect for my symptoms to be much better than...
Thank you both!!...
Hello! OK so, when y'all recover from a flare, about how long does it take? I saw a few people post here once that typically the blood goes away first, then frequency, then urgency, then you'll...
Thank you for your response! I won't give up on it yet then. It helps a lot just to have another person (besides my doc and my hubby) to assure me that things might still change for the better. To...
I'm so happy for you and it's so great to read a success story! This gives me hope as well since I need some optimism while my first biologic (Humira) isn't, so far, putting me in to remission ......
Talk to your nurse/doc now while the flare is mild and early. Don't wait until it gets worse. As others have said, aza is fairly serious with the side-effects so definitely don't mess with it by...
FlowersGal, can I ask what CBT book you would suggest? Mark, I hear you that medication just numbs you. I don't mean to argue with your statement, but: it's HARD to find the right anxiety/depression...
I wish I had a magic answer for you (sadly I don't) ... but I'm wondering about the emotional effects of smoking. I have never smoked so I don't know personally, but as I understand it, smoking can...
Hello all, thank you for reading! Five weeks ago I started Humira. (After a couple pretty good years, a rough flare started in June, and in July a colonoscopy confirmed that my previously left-sided...
Thank you for asking about 5-asa. I do have some 5-asa enemas in the cupboard. I was on 5-asa for years when I was first diagnosed (so from 2002 to about 2012) and it never seemed to help prevent a...
I’m writing just because I’m so confused and frustrated, and wondering if anyone else has experienced this and can guess whether it’s an improvement or a digression? I was having bm’s 8-10x/day,...
Thank you forum friend! 😊😊😊 ...
Jocelyn thank you so much again, your post is giving me hope. My doc is indeed doing additional tests to try to verify cdiff, including the soonest colonoscopy he could schedule me for (in two...
Oh, "D" refers to diarrhea, not vitamin D. I have diarrhea about 4-5x/day. My doc thinks it is c.diff or another pathogen (even though the tests came back negative for c.diff, he says the tests don't...
So I have D a few times a day and slowly improving (I have another thread on the topic) but in the meantime I have to watch my kids and actually be functional.... I can deal with the actual act of...
Ah OK that is good to know about how the vanco works. That makes sense. I have 5 more days of vanco and right now, the blood has gone away but I'm still having D 4x/day that is just exhausting ... my...
Thank you in advance for any insight y'all can give me! I'm wondering your experience with vanco. Not many people seem to report fatigue while on it, but I'm totally wiped out and it's making me...
I get that, thank you for that - however I think that if a physical phenomenon is listed as a "side effect," it's got to be different than what we would usually experience. Back pain (and leg pain...
Hello! I started Rowasa for a mild flare a few days ago, and it is helping alleviate my flare really quickly. So I'm happy about that ... BUT I'm trying to figure out whether it's a coincidence that...
Hello. I'm in my third trimester of pregnancy, and I'm having bizarre IBS symptoms for weeks that make me weak and make it really difficult for me to take care of my toddler, and I can't even...
18 weeks. I don't know until week 20 what the gender is. I've always imagined a lil girl but I think this first one will be a boy....
Mmmmmriley, I just looked up Lialda. I've been generally satisfied with Asacol so I hadn't looked up other drugs to consider in a while - but I still get flares once a year or so and you sound pretty...
Hello there mmmmmriley, congratulations on your new baby!! I do hope that your current issues will go away once all those extra drugs flush out of your system! I'm always glad to read the stories of...
Oh yes, I def agree that the Rowasa seems safer than the pred. I'm just trying to stay positive throughout this whole thing and wanted to present the reasons why I thought pred was acceptable...
Bettylou, thank you for your insight! My doctor wasn't unwilling to give me rectal mesalamine; it's just that he didn't prescribe it, and I know he doesn't like it when I recommend things that he...
Pluot, just Asacol. Also I take enzymes and probiotics. Sherbear46 and Hekela, if this keeps up for another couple days I'll make an appt with my GI to ask for some rectals meds, thank you. I like my...
I've never taken rectal mesalamine. My doc didn't recommend changing my medications and didn't seem worried ... but he doesn't have to live with it so of course I worry! I'm basically just wondering...
Hello, I've had UC for ten years now. I'm now thirty and pregnant for the first time (yay!). So far it's been going well, but now I am experiencing excess mucus in my stool which has, in the past,...