Hi Everyone, I realize that it has been a while since this post was last active, but I've found myself in a similar situation now (with HealthNet). After 5 years of good health on brand name Remicade...
I tried that product for a while; I’m of course only 1 data point but I can’t say that I noticed any magic. On the other hand, it didn’t seem to harm me either!...
It sounds like you are a very good responder to Remicade, even though it may not have gotten you to a perfect remission. I do recommend you check fcp (it’s possible, as others have said, that your...
Uceris is definitely less effective than prednisone for most people. Like a squirt gun as opposed to a fire hose. But for a simmering and small flare it may be enough. I've always felt that any...
No problem, thanks for the quick reply. Symptoms can sometimes be less correlated with disease activity than you'd think. Many symptoms are caused by inflammation in the lower part of the...
Hi Crazydad, As a pediatric UC veteran (diagnosed around age 7, now age 30), I don't have much to add. It sounds like you are doing everything you can and should! While I'm keeping my fingers crossed...
That’s a great idea — will check and thank you!...
Thank you for that, UCinGV! The Apotex ones I believe didn't agree with me when I tried them earlier, but I've yet to find/try the Westward brand. It seems like every pharmacy I've called thus far...
Hi Everyone, I hope that this message finds you all well! I've been very happy on brand name Colozal or "Oceanside" generic (which I think is the same exact formulation), but the Apotex version...
No problem John, and thanks for the reply. Your worries about being on Remicade as a sole treatment definitely are well based, so far as I am concerned at least. At the end of the day the decision is...
Hi John, I’m happy for you that inflammation was very mild! Way to go! My two cents though, I don’t understand why they would want you reducing Lialda of all things. Even if the scope were 100%...
Are you on sulfasalazine by chance? I know that drug is linked to some less-common side effects including RBC abnormalities. I actually re-tried sulfa myself a while back, as I think that (for me at...
Judson, thanks for sharing this! Very interesting hypothesis and I appreciate your candid account of your own success with the clove oil -- I really hope that continues! After reading this I bought...
You guys are inspiring -- thanks for sharing those personal stories and fears. I'm trying to do my part to stay positive here. Sounds like there are some good strategies to accomplish that which I...
Thanks iPoop and TotesMagotes for sharing your input -- it definitely is helpful to discuss this together (for me at least, hopefully others too)! iPoop, I think I would definitely do better, at...
Hi John, I really like your reference to "Mr. Colon," that made me laugh! Certainly seems that dude gets whatever he wants these days around here; he certainly knows how to play my emotions! If you...
Thanks John, that makes sense. If I remember correctly I think I saw that you dealt with a flare up recently as well while on Remicade. Is that back under control? I sure hope so! UC is so...
Thanks DB and Kilinarykidz for your input. DB, my impression is that one can loose response to biologics either via antibodies/low levels or spontaneously, as the inflammation pathway may shift and...
We all hate this disease! I know how worried one can get about it, too. I'm a fellow worrier at times! It sounds like you're definitely in a bad flare, but please don't think that it's the "end" for...
Thanks for the input DB, I appreciate that. I realize that calpro isn't always accurate, but (in my case at least) I think it's indicative of something that's not quite right, as confirmed by recent...
Hi Everyone, Just wanted to quickly check in with those of you who've had experience with Remicade. I believe that I am a great responder to the drug, as it pulled me out of a severe flare up last...
Any updates, CMac and VerM? Sorry to bug you -- hope all is well and this worked for you; I'm interested in the study and intrigued by the interim results that were posted (see above)!...
Hi Everyone, Just wanted to check in here as I saw very promising interim results posted by Qu about this treatment (in Chron's setting). You can check out the public data here:...
I'm very interested in this topic, as I've been noticing a clear pattern to my UC flare ups as well. I was diagnosed as a young child (7 years) with a severe case. I'm now 27 and thankfully over the...
Elevated WBC count is often a side effect of the prednisone itself and should never be used an indication of inflammation while one is on a high dose or taper. It's important to watch for physical...
I know that many people are able to do so but unfortunately I've required bigger guns in the past to keep things normal long-term. Imuran has worked very well for me (5 or so years with only a few...
I was scoped last Tuesday as well and have been feeling the same exact way. Moderate left-sided UC was observed and biopsied (should not have been a surprise given my mild symptoms of late) but since...
I went through a similar experience this past fall semester, after having been in pretty great health for over four years (with the help of imuran and lialda). I was diagnosed at ~7 years of age and...