Been on Rinvoq for over a year. 30mg. Still going well! Also on rosuvastatin for high cholesterol - which was high before starting Rinvoq. Last lipid panel was a month ago and normal. Hope it works...
Thanks all! The histology came back - Negative for acute inflammation and dysplasia (Nancy Grade 0). So I am thankful for the trifecta (clinical, endoscopic and histologic remission). But as we all...
Had colonoscopy today, 7 months after starting Rinvoq… Impression: - The examined portion of the ileum was normal. - Ulcerative colitis, in remission. Inflammation was not found on today's exam...
So far so good. I feel like I am in clinical remission now, with the help of the rectal Tacrolimus (1.5mg at night). Going to stIll try and come off of that eventually, but more slowly this time (ie...
I did pose the question. My G.I. said unfortunately there is no data on whether 45mg taken longer is better than 30mg. It is clear however, that 30 is better than 15. Anyway, I’m gonna stay the...
GTK barnsburry. Sorry to hear about the HPV. Regarding Rinvoq, I am near the 8 week mark and things are still 80-90% better. 1-2 formed BMs with no urgency. Frustratingly, still a bit of blood. I...
I would not say lazy. Sometimes there is things we see and we can’t be quite sure so we give differential diagnosis (multiple things it could be) or a suggestion and expect the ordering doctor to use...
I happen to a radiologist, and therefore quite familiar enough with CT scans. For what its worth, IV contrast can get a great look at the bowel mucosa, and iodinated oral contrast is actually not...
3-5 days but I used them initially together with Uceris. Uceris stopped after about two weeks....
Saw it. Congrats! Hope to be following in your footsteps. Here’s to a long remission…...
So 14 days in and things are much improved. I noticed improvement with in first 5-7 days actually. I am at the point where I can retain rectal meds again. At my GIs recommendation I restarted PR...
I have used Tacrolimus suppositories which have been really helpful. Dose is 2mg. In my case it is actually an ointment which the local compounding pharmacy formulates and I administer it using a...
It’s a lot I am sure. I am “very lucky” in that I was diagnosed when I was active duty US military. Therefore, I can get care through the VA, so it is essentially zero cost to me (I may have a co pay...
Well after 20 or so months of glorious endoscopic remission on Lialda and rectal tacrolimus ointment from Sept 2020 till about mid July 2022 we are back in a flare. Scope showed Mayo grade 2 from...
There are a couple of papers on it in the literature. Also there is a clinical trial on going using oral tacrolimus in treatment resistant UC The medication comes with an applicator which is easy to...
I have recently been prescribed rectal tacrolimus ointment. So I started to flare in Nov 2019 and my C-Scope showed just 3 cm of rectal inflammation. So my GI prescribed rectal tacrolimus ointment...
Just thought I would share my experience with the drug. So I started to flare in Nov 2019 and my C-Scope showed just 3 cm of rectal inflammation. So my GI prescribed rectal tacrolimus ointment after...
Currently dealing with same issue. Giving rectal tacrolimus ointment a try. It comes from compounding pharmacy. Currently on day 5 so too soon to tell if it is working (in studies they measured...
Thank you all. Yeah I think max dose Lialda and nightly canasa may be the regimen for me. But I would rather go on AZA or 6-MP now while I am stable than to wait until another terrible flare. Stay...
Ok so hear is the deal. I have been off systemic prednisone since June of last year. Mostly, but never 100% i.e. back to the way I was pooping before I was diagnosed, in clinical remission (i.e. 1-3...
I take between 10-20mg at bedtime. It is extremely safe. There is research showing melatonin is a powerful anti-oxidant and may help IBD/IBS....
Wellbutrin 100mg immediate release twice a day 12 or so hours apart (morning and night)....
I have experienced zero side effects from Wellbutrin....
I take Wellbutrin (bupropion) 100mg twice a day (normal release NOT SR or XR) because it helps the GI symptoms and there is some evidence it is a weak TNF-a blocker and has some anti-inflammatory...
Very well done. congrats on the accomplishment. I just completed a race I had been training for since I made it into remission in July. At the finish line I just broke down. Tears of joy really but...
Hi all. Thanks so much for weighing in and for the honesty. I swear I didn't mean to start any controversy. I plan to up the Canasa to at least daily and see what happens. It also seems like slippery...
Looking for some input. So I was diagnosed with pan-colitis one year ago. Took two rounds of prednisone to obtain remission but finally got there in the middle of March 2014. I have been off all oral...
What was most interesting to me is they used only 2 donors (donor A and donor B). Donor B was associated with the best chance of remission (7/9). Hopefully soon they can identify they people with the...
Published in the July 2015 of the Journal of Gastroenterology. Thought I would share. Authors Results: "Seventy patients completed the trial (3 dropped out from the placebo group and 2 from the FMT...
The following website is a great resource for learning about traditional and alternative treatments for UC. http://umm.edu/health/medical/altmed/condition/ulcerative-colitis...
30 year old male just diagnosed in Sept 2014. Pancolitis. Used the website below for recommendations on alternative treatments. From the Univeristy of Maryland Center for Alternative and...