I have been on Stelara since April 2020. I started feeling better by the end of June 2020. Entyvio and Remicade also failed for me. My GI put me on cortico steroid enemas which really helped while...
This was my second time using it. Last time was in 2014! I never had problems then. Oh well, now I know for next time!...
Ugh I didn’t dilute. Now I feel dumb. My prep instructions were to drink 3 cups of water 3 hours before and then 3 cups of water after drinking the prep. Thanks for the response....
Looking for some advice....I drank a 300 ml bottle of magnesium citrate because I have a sigmoidoscopy tomorrow morning. After 2 hours of drinking it, I threw up (only once so far). I’m worried I...
I started Stelara April 2nd of this year. I have been doing great ever since! I go for a scope on Tuesday to see if I’m healing. I failed Entyvio and Remicade so Stelara has been my life saver!...
I’m sorry you’re having a difficult time. Feeling sad and scared are completely normal. I have felt that way many times during my long 2 year battle into remission. Try to have hope and keep...
Not sure if I’ll be much help but I’m in BC. I’m currently seeing a GI in Kelowna......
The first dose is an infusion and the maintenance doses are subcutaneous injections every 8 weeks....
I’m going for my second maintenance injection of Stelara today. I received my first infusion dose at the beginning of April and have been doing well ever since. I’m super hopeful that it will put me...
It took a good 2 weeks for it to work for me. Before that I was pred. dependent and in between biologics. I’m now on Stelara and doing good so far :)...
I’m on Stelara. I started it April 2nd so I’ve only had the IV dose and 1 injection. I go for my next injection on July 22nd. It’s been good so far but I was also put on Betnesmol enemas for 2 weeks...
Thank you for your encouragement. I’ve never had to drink PEG before and my last scope was 5 years ago. Just eager to get this done so I can eat and rest!...
I have a colonoscopy in 6 hours. I’m currently doing the split day PEG regimen. I’ve had 6 cups this morning but I’m getting super nauseous and can’t choke down the last 2 cups. By 9 cups of PEG I...
Getting super nervous for my scope on Thursday. My last colonoscopy was 5 years ago when I was diagnosed. When I did my first prep I was only given 500 ml of this fizzy drink to ingest prior to my...
I was on Entyvio for almost a year and it didn’t help me at all. I even increased my infusion frequency. After that I went on Remicade. I had fast results but by the first 8 week maintenance dose, my...
I tried Entyvio and Remicade. I didn’t respond to Entyvio and I had an anaphylactic reaction on my first maintenance dose with Remicade. I’m doing Stelara at the end of the month and would suggest...
How long have you been on Stelara? Do you get injections every 8 weeks?...
Oh ok, that’s good to hear. I’m just super scared of having another reaction!...
Did he build up antibodies to Remicade and Humira? I’m worried that will happen to me with Stelara. It seems that my body is quite literally invincible haha....
Thanks for the positive encouragement :) Hoping tonight will be a little longer....
I did notice that I had less cramping last night. I didn’t have the urge to go for 7 hours, which is an improvement from every 2 hours!...
Ugh I’m so annoyed! I was only able to hold the enema in for an hour. Not sure how I’m supposed to get better if I can’t hold it in! :(...
Last time I was on 40mg of prednisone and my body wasn’t responding to it. I’m hoping that the Cortiment/Entocort will work better since I haven’t been on it....
I’ve been on Prednisone 3 times since the end of 2018 so I’m assuming he wanted something safer. Thank you for your input!...
I forgot to mention that the Entocort is in enema form. Makes sense that he would prescribe me oral and rectal to tackle both ends, but it doesn’t make sense that he prescribed me something weaker...
I had a sigmoidoscopy today. The GI told me I have active colitis and my inflammation is mainly in the lower part of my colon and rectum. He prescribed me Cortiment 9mg tablets for 8 weeks and...
Ya I think Stelara is the best choice. Plus the less frequent injections are more appealing. At this point I’m not in denial about having to have surgery but I want to exhaust my options before going...
Currently faced with a decision of what drug to try next. Tried Entyvio first and that didn’t work for me. Tried Remicade after Entyvio and became allergic to it. I’m leaning towards Stelara because...
I went through a phase where I was losing my hair after a huge flare. It’s the body’s response to being ill. I started getting iron infusions every 2 weeks and that helped a lot. It’s been growing...
I did get tested but I don’t know the results. I haven’t seen my GI since the second reaction. He went to India for a month and a bit for volunteer work, which is super irritating when there’s a...
**Update on Remicade reaction** I went to the infusion clinic 9 days after my anaphylactic reaction to the Remicade infusion. I was given an IV steroid followed by IV Benadryl and Claritin before...
I just finished a 14 day course of Vanco for a c. diff infection yesterday. It's my first time having this infection. Today was my first day off antibiotics and I felt ok up until this evening. I...
On January 31st I found out that I have C. Diff. This is my first time having it so I don’t have much knowledge about it. I’m on day 5 of Vancomycin and I feel like I’m not feeling any better. Does...
My infusion on January 20th wasn’t completed because I had a reaction 15 minutes into the 2 hour infusion. My medication wasn’t resumed after my reaction....
I responded well to the Remicade but I started having flare symptoms 2 weeks before my 8 week infusion which makes me assume that my Remicade levels were low. My GI also increased my infusions to...
I was completely fine with the loading doses. The nurse who did my infusion recommended that I have premeds and get infused over 3-4 hours instead of 2 so that’s what my GI ordered. He didn’t say...
I was afraid that was what was happening. I got my blood drawn but my results won’t come back until January 30th at the earliest. Making it too late to get my next infusion in time. I’m becoming so...
On January 20th I went in for my 4th Remicade infusion, my first dose after my loading doses. 15 minutes in I started having trouble breathing, started getting flushed on my chest/arms and then a few...
It’s been rough! I’m hoping the hair loss is a delayed response from being in a flare this August. I have bits of hair that are growing in different places on my scalp so I’m assuming I’m not going...
Good question about the prednisone. I’m not sure what to do about it. I just noticed that the last 2 times I’ve been on it, it hasn’t really worked. I’ve been on it 4 separate times in the span of a...
Has anyone else experienced major hair loss on Remicade? After my first infusion I noticed larger amounts of hair falling out, especially during shampooing and styling. I now have bald patches on...
I’ve finally decided to give Remicade a try after having 2 flares while on Entyvio. I started Entyvio in October 2018 and got 4 months out of it. I’m worried because my GI told me that the success...
I started Entyvio October 22, 2018 and have currently had 4 infusions. I’ve been experiencing a significant amount of hair loss and I’m worried that the Entyvio is causing it but I’m unsure. On...