Hi Ellen, I am so sorry to hear that your have flared again. I urge you to get this under control since enough time with inflammation can lead to dysplasia and then we know what comes next. When I...
Van, Thank you for sharing. I think we would all be well served if everyone hit reset and dialed it back a notch. This has been an amazing thread with several side discussions. The fear of a bag is...
Back when I had a colon and rectum and I was having a proctitus flare I used uceris rectal foam on three occasions. It induces remission, but it was not quick. It usually took 42 days/6 weeks for...
Interestingly, my mother in law had the jpouch 16 years ago as a one step, at age 69. She eats and drinks everything and has no issues whatsoever even at age 86! It’s turns out I had a significant...
Song, I think your response is the most important response in the thread. First let me say I am happy to hear you are doing well and cancer free. We have to recognize to that once dysplasia is...
I forgot to add: During my final flare before colectomy the insurance would not pay for uceris any longer Dr switched me to mesalamine enemas which worked just as effectively and I was able to retain...
when I had my colon and rectum I used canasa suppositories 2x day for maintenance of pto Titus When I flared I used uceris foam. But it took 6 weeks to end the flare. I would get very discouraged...
Sorry to hear this causing angst for you. I am having my takedown surgery on May 7th. What I can tell you is that I was getting a colonoscopy two times per year and then yearly and I just assumed...
I hope that never happens. I believe based on some google searches that the big three, hollister, convatech and coloplast might provide assistance should such an event occur and you cannot afford to...
I agree with everyone. I was a lifetime IBS sufferer, then 20 years ago the blood and mucous started. Colonoscopies prior to 20 years ago showed no IBD, but after, the the biopsies from the scopes...
My takedown surgery and jpouch use will happen on May 7th. Don’t get me wrong, I am excited to be reconnected and get back to some level of normalcy. What god gave us cannot be replicated. The jpouch...
I had the two Pfizer shots after colectomy but before takedown. Both shots kicked my butt. Although while I am not an anti-vaxer person, I am leery of all vaccines, but every single professional on...
I totally get it. When I was referred out by my GI to the experts at the university teaching hospital I was 15 years in. They talked about colectomy and I said no way. I was mostly controlled with...
Hello, I had a total procto colectomy 10 weeks ago with a temp osteomy which will be reversed in 3 weeks so my jpouch can take over. I needed the surgery in order to eliminate my very high chance of...
Hello, I am very familiar with the doctors and facilities you have gone to. I elected 8 weeks ago to have the total procto colectomy and jpouch placed due to my very advanced UC and very high cancer...