Hello all, I have been experiencing some upper back pain following a workout. A general doc I saw suggested Robaxin to treat the muscle and the discomfort. I have some sensitivity to NSAIDS, which is...
Thank you for your update. I have been told that it can take upwards to a few months before substantive results are found with LDN. Glad that it seems to be moving things in the right direction for...
Hello all, I have been having increasing symptoms since my last sigmoid in January 2021, which found no active disease. Since roughly March, I have been having more bleeding, mucus in stool, and...
Between your last post and this one, it sounds like you need to get a better doctor. You shouldn’t have so many doubts about your provider and his clinical decisions, even though I know none of them...
Do you have hemorrhoids, possibly? What symptoms are you having? Could making changes in diet also help? I am having some intermittent bleeding and I am only on mesalamine oral and rectal meds. Would...
What brand of Qing Dai are you using, how much do you use daily and do you make your own capsules or just sprinkle the powder?...
Thanks! Is the only surgical option banding?...
Thanks all for the replies. I was given some promaxine. I think my doc was somewhat convinced it would help. He indicated that it is not always effective which is why it isn’t covered by insurance. I...
Hello everyone, Looks like the oral and rectal mesalamine may not be keeping things stable anymore. I have hemorrhoids, both internal and external, and my doc thinks that may be the culprit. But I...
What brand of Qing Dai are you using?...
Thanks, VanJordan. Did you stop LDN at some point, which may have contributed to your current flare? You indicated that it normally keeps you in remission. What dose worked for you and how long do...
I know there have been posts about LDN over the years. Wanted to get updates on how people are doing with it, for those who have started or continuing to use it. Thanks....
I received my first dose in December and second in January. I was given Pfizer. Sore arm after the first dose and some chills and mild fever after the second that lasted a few hours after taking...
Thanks all! I just took my first 40mg dose. Hoping that it does me well....
I should add that I have been prescribed the pred for gout and not my UC although I know I may see some benefits there too....
Script is for 40mg first three days and then taper to 20mg for another three days. I am on mesalamine oral and rectal....
Hello again, I have been prescribed prednisone to address another inflammatory condition. I know it can help but I am really afraid to take it given all that I have read about the side effects. Am...
I have been prescribed prednisone for a week to address gout (an awfully painful condition). Have never taken it and never had gout before this week. I am currently on oral and rectal mesalamine....
Hello Vinny, You may want to check out the Entyvio Warriors FB group. I am not on Entyvio but believe I may be on my way there sooner or later. I joined the group to learn more about people’s...
I have a scope coming up this week and have been given SuTab, a new FDA approved scope prep. It is the pill version of the nasty SuPrep. Was wondering if anyone has experience using this new med. Was...
Definitely don’t rule out PPD and the emotional toll 2020 has had on most of us. But the anxiety and sadness you may be feeling as part of your diagnosis is real too and is something that probably...
I have left-sided colitis am on meds and received the vaccine last Wednesday (Pfizer). I had some minor soreness at the injection site and felt like I was fighting something for a couple days...
I am now on a oral/enema mesalamine combo, having started in early August and it has been a game changer. I started with proctitis and my condition evolved to left-sided colitis based on my recent...
I have had the same exact experience. I could never explain how and why I would experience a complete absence of symptoms when out of the country, especially. I always assumed it was because I was...
Thanks, iPoop....
Thanks Old Hat. My GI said somewhere between mild and moderate, based on my symptoms, although I was in a flare at the time of my scope. I had expected to be placed on something else like a biologic...
Hello all, I recently had a scope and was diagnosed with left-sided colitis in early August. I was previously diagnosed with proctitis which I had for about 10 years. Had been on enemas but no oral...
Thank you Old Hat. I may mention that to my GI, depending on what happens over the next couple weeks. I have to say that I don’t have a really good GI. I feel like she doesn’t know much more than me...
My last scope was in 2018 and showed no change in the disease, it had not expanded beyond the lower end of my rectum. It was more inflamed, as I was in a bad flare at the time. My doc did ask for a...
Thank you for that. You are right. I probably need to give this more time. One enema per day had been working really well until this year. So, the fact that I haven’t experienced quick improvement...
Hello, I was diagnosed with proctitis in 2009 and have had relatively mild symptoms with some periods of remission over the past decade. I have been in a mild flare over the past several months that...
Thank you for the reply. I had been on Lialda but it did nothing after being on it for a few months. I also started getting headaches so was taken off....
I have been on Rowasa enemas for about two years to treat my mild/moderate proctitis. It worked like a dream until recently when I started noticing more mucus and some blood in my stool. It has...
Thank you for this update!! That is encouraging. Any others on LDN? Is it still working, not working?...
Thanks TroubledTurds and IAmCurious. I was thinking that was the case. I am starting Rowasa tonight and hope that will bring me some relief soon. I have some pseed that I have not tried yet. Will...
Yes, the doctor spoke with me afterwards. She didn’t prescribe anything because she wants to wait until the results of the biopsy and other tests come back to rule out anything else. She is a new...
I had a colonoscopy this past Tuesday (2/20) and for the last few days have noticed an increase in mucous, blood and urgency. I had problems with mucus and blood previously but it is far more now. I...
How much citrate if using the powdered form?...
How much the magnesium citrate do you mix with water? Thanks!...
Thanks all!...
Hello, I am a 46 year old who was diagnosed with ulcerative proctitis in January 2009. After about one year, I found remission and have been off and on in remission for the past several years, until...
The unflavored sachets do not include maltose. The only other ingredient in the unflavored sachets is cornstarch....
The reason why I posted my previous question is because a previous poster, I think Insofla, mentioned that some folks may have difficulty absorbing the pill....
For those who didn't experience any improvements with LDN, did you use the pill or the transdermal form?...
Thanks for the information. There are a lot of positive reviews of this probiotic. Seems to be one of the better probiotics for people with IBS and IBD...
Indycat23, I know you can purchase Mutaflor through Amazon. A store in Canada will ship it (through Amazon, not sure how this is the case), but can't guarantee its potency because it takes about 3-5...
Thanks lookforcure. I will get some Pascalite today. My only problem with Dr. Ohhira is that it contains carageenan. My understanding is that it is not good for inflammation. Otherwise, I would have...
Thanks lookforcure. I don't have problems with excessive BMs. My average is around 2-3 per day. It has always been that way since I was diagnosed with UC about three years ago. Like you, I have been...
Did you experience the same improvements with Prescript Assist as you did with Mutaflor?...
Lookforcure, I have started Terramin because of your posts and have noticed some immediate improvements. Thanks for sharing. Are you using any probiotics at this point? Would you recommend while...