"That experience was the first time in 10 years having this disease where I felt down and distraught".------------ Looking on the bright side... This is a good thing! A pretty good 10 year run! You...
Thank you all. I know that prednisone is a bad plan. Just the lack of sleep makes it a bad choice.--- I found a plan that would cost me about $4,800.00 a year for Xeljanz. And I could also apply for...
I'm turning 65 in december and losing my employer based health insurance. --- I'm automatically enrolled in medicare A&B but no supplement plans cover drugs adequately. --- I'm contemplating doing my...
Ms2011--- Look up the most common side effects of Pentasa (Mesalamine). I've had many of these side effects until I finally stopped taking it and won't ever take it again.--- Try Imodium (loperamide...
@Dolewp--- Your GI wants you to get it... so get it. --- My "feelings" are you should get it. --- You're already "following the crowd"...The wrong crowd....
I treated my ulcerative proctitis with hydrocortisone retention enemas and continued Xeljanz. It took me a bit longer than 10 days just to be able to retain my first enema. When I was finally able to...
For my teammate Joe D. --- No vaccine = Dead in 5 weeks (covid pneumonia)....
No more accidents. No more adult diapers. It gave me my life back. As a bonus it cleared my 40 year long skin problem.--- I had one short term ibd- like episode that was cleared up by adding...
What is steroid refractive? I would have stuck with the xeljanz and added nightly Hydrocortisone retention enemas for a few weeks. It worked for me back in december....
Youtube has a video "Mechanism of Action of JAK Inhibitors" posted on june 6th 2017.--- I'm in my 4th month of Xeljanz treatment and the results have been miraculous for me! --- (I failed remicade,...
@Hugo --- I had a fast response to xeljanz, My symptoms improved quickly. I started on 8/29 and I'm still on the 10mg twice a day. --- Now I just need for my blood work to come back normal....
@Hugo18--- I can relate to your story. I failed remicade, humira and entyvio.(12 years).--- But now it's like I've never been sick. I sure hope this successful treatment continues. --- For now I'll...
5 weeks on Xeljanz and I have my life back! No more adult diapers. No more accidents. --- I'm lifting weights again. I'm getting out of the house again with no worries. ------- I just hope I didn't...
I'm looking for the best treatment for my illness. A "cause" or "source" that can not be undone is of little value to me....
I was just so angry today. Bills, bills, bills. Co-payments for charges that are just coming to me now for services from over a year ago. The astronomical amounts of money paid by my insurance...
Sorry Jay99. I hope all is well with you....
@Jay99 --- Read the article in the NCBI "IBS-like symptoms in patients with ulcerative colitis". Even with UC in clinical remission, these IBS-D&C symptoms can occur. I've had IBS D& C at the same...
I had an unnecessary prostate biopsy when all I needed was 3 weeks of an antibiotic (ciprofloxacin I believe). My psa went down to 2.8. I wish the doctor would have suggested the meds first, before...
Only 29. Very, very sad.--- His suffering is over....
ER with an abscess....
Got the results of my cat scan yesterday....