Thanks for your encouragement!...
I’d have great improvement since my 3 loading doses of Entyvio!! In fact, things have been more normal than in years! Even during this week with the flu, my colon stayed strong! I treated myself to a...
Thanks!!...
Thanks!...
Thanks! Congrats on your progress!...
Thanks for the encouragement! This is definitely a better week!...
After last week’s flare of several days, I’ve had a great week! Finished final loading infusion of Entyvio yesterday. Next, will be in 8 weeks! I am so happy to have information about Imodium (yes)...
Thanks! I’m definitely going to try the smaller meals....
Happy for your remission....
Thanks! Happy for your remission!...
Not sure re: total bms are daily. I have to take something after two or three. But, then there could be two or three more hours later and I take med again....
Yes. Still taking Budesonide. Thanks to all replies....
Nurse called back this afternoon. She said stop Pepto, and use Imodium instead, up to 8 a day. Dr. also prescribed Levbid, an anti-spasmodal, twice a day as needed. Insurance won’t cover, but in my...
Thanks to you all for the suggestions! Thankfully, I do not have diabetes. I’ll look in to all of these ideas....
No way I am. I’ve met with nutritionist twice who keeps pushing oatmeal. I need protein. Seeing nurse for next infusion Wednesday. Hope to address....
I enjoy cottage cheese. It’s just not a travel protein. Had a fairlife core protein this am. ( other half) and so far so good....
Thank you! My nutritionist hasn’t offered me near the information that you just provided....
Thanks. It’s quite the puzzle and everyone’s seems very different....
I need to find some portable protein options to have with me when I’m out and about. Can’t do Premier. Tried a Fairlife core power (1/2 of the carton) tonight. Here’s hoping it’s kind to my colon....
Ok, here’s something new to me. Traveling today so took pepto as precaution. Had a piece of toast, water, diluted tea and a bunless hot dog. It was the only meat ?! at a child’s bday party. An hour...
Thanks! I’ve gone decaf, at least for a few days....
Who knows what happened to improve the situation? I’m so thankful, regardless. Maybe the multi doses of Pepto finally kicked in. Whew! I agree re; sleep....
Last night and today have been wonderful and symptom-free! I needed this day! No word from Nurse re: my questions, but I will Monday, I’m sure....
Thanks! I just messaged the nurse. I am on Budesonide orally. The Mesalamine was discontinued a few months ago because I was losing a lot of hair. Still am, though not quite as much. Just have no...
This week has been a downer. Each night after supper, I start with diarrhea. Usually, it is controlled after two or three doses of Pepto Bismol. Nope. Not this week. Five or six does and I could...
I hope so. Thanks for the encouragement. Thankfully, it was thick to begin with. Otherwise, it’d be pretty spotty....
Thanks! I’d read applesauce was a good food. Now I’m wondering....
Thanks to you both. I’m currently on oral Budesonide. My first symptoms were uncontrollable diarrhea, no blood. Was dealing with elderly Mom’s cancer and delayed seeking help for almost a year. Went...
Thanks! I haven’t tried Imodium, but will!!...
Thanks! I was on mesalamine last year but my hair loss was frightening. The dr. said it can be a side effect for some. We discontinued it. Thanks for your replies....
My doctor is ok with me using Pepto when diarrhea is present. Usually, a dose or two will stop the problem. I’m still kinda new at this and often wait way too long before taking Pepto, thinking...
Amazing! I’m totally at the point where I thank God I’m retired and can set my schedule. With fun things on the calendar upcoming, I’ve packed a bag with supplies and Pepto and pray I won’t have an...
You have no idea how welcome your post is today! I’ve let doubt enter my mind, searching for any positive news regarding Entyvio and its effects. I’m so happy for your success and hope to “be like...
Thanks! I’ve not had much help from the nutritionist. I plan to address it with my gastro. I’m not getting anywhere near 60 g of protein a day. Glad to hear you’re doing well. Gives me hope!...
Thanks! Do you have experience with Entyvio? I’ve done two infusions so far. Honestly, I'm a little concerned about it compromising my immune system....
Thanks for your response!...
Hello, I’ve just begun Entyvio infusions and am on Budesimide orally. I’ve lost 40+ pounds since January, which is a good thing health-wise, but it’s all due to my restricted diet. Vegetables and...