That's interesting you get tested for antibodies. Everybody's case is different. I get routine blood work done every 3 months. I take Tylenol and have taken benedryl, but I didn't notice a difference...
I also want to add that I have tried Remicade..it stopped working and I've been on Humira since....
Hello! Looking for feedback from anyone with similar symptoms and how you deal/dealt with it.I've been on Humira for over 7 years...the past 4 years I've been on a weekly shot. I always had flu like...
Thanks and I agree with you about the sleep aid......I heard you can go through withdrawals going off of them....which I'm not sure what that would be other than going through some bad nights trying...
Hi! It's been a while since I posted. I'm a 10 year UC veteran! I am curious as to how many people have been on similar drugs for long term....I have been on them for about a year and a half...I went...
Lodi, I've been on imuran for about 8years and started humira 4 years ago....was doing the shots biweekly until a flare in 2011 where I went to weekly. Imuran never bothered me. I can't speak for...
Since sept '12 I've had a gi staph infection along with a flare that has seemed to be clearing up in the past two weeks. But now I woke up this morning with a stomach flu (I hope!) just vomiting no d...
I did ok...stayed away from food I have intolerances to, however...ate too much anyway! I had a few alcoholic drinks on Xmas eve. I think I have a junk food hang over! I have no appetite which is...
Spoke with drs office...they said to take the tramadol and bentyl first when I wake up before my bms then take thru the day as needed but keep in my system to avoid the pain when I have my bms. I'm...
So there is hope! I've been going thru so many different phases the past three months and I just hope to enjoy the holidays!...
I had my scope done last Monday and results were inflammation in the rectum. the left side that usually is also effected looks good. Dr put me on canasa suppositories which help,but what I experience...
My flex sigmoidoscopy is on Monday.... I'll find out more there...or not lol... My favorite. Response to lab work is everything came back ok. The more I here your comments and know my body is that I...
This is what I have going on....cramps that linger with a BMW, no d,just soft not formed bums 3-4x day. 2weeks prior had bleeding, mucous and urgency with bms up to 8x day. Took colocort enemas which...
A talk with my pcp is in order. I don't want to gain weight or have a hard time like I did before getting off them. Maybe just the clonopin will work for now....
I am currently going thru a stressful time and flaring. I'm on pred and take clonopin for anxiety, but I've been a nervous wreck dealing with this at this point I'm thinking of asking my doc for an...
Thanks for the kind words...since I posted, I talked to my doctors office and have an appt. tomorrow. Spoke to my mom which helps and took a nap because I was totally exhausted! Maybe now ill have a...
Ok profile change once again: Dx with uc in 2004. Mainly left sided, at times has skipped through the whole colon. Also have IBS. Humira one shot every week, 100 mg imuran , bentyl, colonopin,...
My profile has changed a bit!...
I am currently going thru a flare where it isn't bad as some but, I'm sick! There is no way to sugar coat a flare how mild or severe. Every day I make a choice to be positive about what is going...
Nightside of eden, are you still on humira? Wehn I started I was in remission for about a year and 3 months. Hopefully it didn't stop working like Remicade did when I was on it. Then where do ya go??...
Since I've had this disease, I don't think I've had normal stools, even in remission. In remission, they are somewhat formed and that's as good as they get....
Funny as we know it, this disease can make you lose weight when flaring and gain weight when on steroids. My problem is I gained 40lbs from my last flare being on pred. I went into remission and was...
Hi, it's been a while since I've been on this site. I've been on Humira for over a year and a half. It seemed to work well and put me into remission, however, I'm going through a flare since Dec 28,...
I just applied for dis retirement from work..........waiting to hear , my rep says I should get it and apply for ssdi (which takes a while I know). Don't want to count my eggs before they are...
If you are on disablity, what can you posssibly do? I thought of volunteeer work or finding or making a support group for IBD. I am not one to sit at home and am wondering if there is anyone out...
I went through my last infusion and it didn't work. A bad flare to say the worst. They put me on pred ( I held off as long as I could). Had another infusion last week-- doubled the dose. I haven't...
unfortunately my last remicade didnt work and i had to do the pred................... I'm still on for my next dose of remi on mar 6. not sure if it will take........... I really held off from taking...
Just wondering how many of you have had the same kind of side effects I do when on Pred. My dr says it's rare, but it's known to happen. I go through withdrawals like alot probably do when you...
Yeah, I thought it could've been the combonation of every thing. I guess I'll have to wait until my next appt. Although the dr told me the reducing a vial of Remi due to my weight shouldn't have been...
I've been on REmi since May 07. It seemed to be working very well. I had my life back and felt like I dindn't have the disease. It was Great!! Right before my last infusion (Jan 10). I flared up 9...
That's great you haven't had any flares and been in remission. I feel like I'm getting to that point because each flare I've had is "better" than the last. It's still there though. Don't want to get...
Hi all! Just wanted to know what kind of or any side effects you may have after your infusions and seeing if anyone is similar. I get: 1) sleepy the day of 2) if flaring seems to get better the day...
Yes, I get zyrtec and tylenol before my infusion. I'm sure that doesn't help for staying awake!! I'll take your advice!! Thanks so much!...
One of my questions to my practioner was how this approach works for people she treats with UC or Chrones. She said it depends on the individual. She has people that have gone eventually gotten off...
Thanks for your input. I've tried hydrocortizone cream for the rash--it doesn't help.The rash on my neck actually doesn't itch. It just looks bad. It's my shoulders and arms that itches. Eucerin does...
I go to a holistic practioner. She requested a copy of my blood work and looked it over to see if anything is "off". For example my liver enzymes were a little out of whack and she gave me a...
Hi there! I was wondering what side effects if any you have with Remicade....I've noticed my neck and shoulders have a rash and just this past week my face got extremely dry and scaley. My shoulders...
Hello all! Just wanted to share this and get any feedback on having flare ups while on Remi?? I just had my 6th infusion on Monday and wouldn't you know it, 3 days before, I flared up something...
Oh so once again..........I'm not alone!!! Thanks for your response. I haven't tried benedryl because it does make me tired too. Trying to find other means. I'll have to try the creme. The...
I'll have my 6th infusion on 11/19. Ever since I started Remi, I have had a rash on my chest and my shoulders. It's sensitive to the sun, but now that fall and winter is here, it is still there, but...
Hi! I've had trouble controlling my UC with oral meds & pred, so now I'm on Remicade. It seems to be working! For the past 10 days, I have been on an elimantion diet. I decide to take the...
I was afraid it wasn't working any longer. About a week before my last infusion, I started to cramp and get D, but no bleeding. Since I started the cort enemas, the bleeding has gone away. I just...
I just had my 4th infusion on Aug 6. I have had a heck of time getting this under control for the past year and a half. Finally, I saw a break with the remicade and my symptoms had been non existent...
My husband has had gout for 7 years with a few flare ups where he couldn't walk. He has it in his big toe. Whenever he'd felt a twinge of it coming on or had a big attack of it, he'd take indocin and...