Finallyfree~ I know I was treated with Flagyl for the C Diff. But to be honest, when I had it, I was so sick in the hospital that I barely remember what all was done treatment wise. I do remember I...
Summer~ Try dabbing on Milk of Magnesia and letting it dry and get crusty....
On the Thursday the 21st of May I went to the er with severe pain and nausea. A scan showed a blockage. The dr.s gave me a NG tube and tried to get the blockage to clear on it's own, but on Monday I...
When I say "leak" I refer to any poo that escapes. Usually for me, it leaks out from under the wafer, and then goes all over. For skin breakdown, I use the "crusting" technique. Stoma power then skin...
Summer~ You sleep on your stomach?.....I was always a stomach sleeper before and miss it soooo much. But I just assumed it would cause leaks and messes. It works for you? Do you lay right on it all...
Yes my kitty turned out to be fine. Somehow she cut that dangly pad that's up high on her leg. The vet put liquid bandage on it and gave me some medicine. I left in such a hurry I forgot to pay the...
So last friday afternoon my kids and I were playing outside with the cat. She's mainly an indoor cat and has her front paws declawed, so we let her play outside only when we are out there with her. I...
I'll second that!! I also feel this way when I hear "Your too young to have a permenent ostomy, surely something can be done."...
I think I am going to call and talk to my insurance co. If I remember right my doctor had to right a prescript ion for my supplies, maybe I can get a new one from my dr specifing more bags per month....
So this seems weird to me.......I am out of both bags and wafers (I use 2 pc convex system) so I called Byram to place an order (I'm totally out, put my last set on Monday.....living on the edge,...
Summerstorm~ We are potty training our little boy who will be 3 on Friday. It's been a rough go, but he will now tell me when he has to pee and will sit on the little potty (he wants absolutely...
Pepperann ~ Thanks for the reply, I feel better knowing there is someone out there willing to share with me. I'm assuming then that you do not have an end ileo, but a loop, has that ever been a...
I actually printed this off the TSA website and took it with me last time I flew, just incase there was any question going through security....
My j-pouch surgery has failed and I will be keeping my loop double barrel stoma rather than getting an end ileostomy. My surgeon says that since I've had multiple stoma sites and with all the scar...
This is from the TSA website. Scissors are okay too. Here is what they say: U. S. DEPARTMENT OF HOMELAND SECURITY Transportation Security Administration FOR IMMEDIATE RELEASE - August 30, 2005 TSA...
badbaggirl- Thanks for the input I will stock up on drinks:) Lipgloss- A garbage can with a lid I never would have thought of, thank you. My mom is taking me shopping for a new robe tomorrow:)...
Hi Everybody, Only 5 more days until my 1st step surgery, the waiting is absolutely killing me:) Anyways my question is, Is there anything you can think of that you wish you would have had on hand...
Just got back from my pre-op appt with the ostomy nurse. I think I finally fully understand everything that I will be having done and am feeling much more confident. I'm having j-pouch surgery with a...
I homeschool our oldest and I do the bookkeeping for a automotive company from my home. I have been married for 8 years. I like to read, do crosswords, Sudoku and organize things:) I love rainy days...
Thank you everyone for your advice. I'm going to call my insurance co on Monday to see what they do and do not cover. My doc has never mentioned having a nurse visit at home so I'll be sure to ask at...
Little E, I wanted to thank you again for sending this link. It is by far the best video I have seen information wise. I'm sending in onto the family and friends that have questions about my surgery...
I think I've been over optimistic on how well I'll feel after surgery. When I got out of the hospital last summer after a really bad UC flare I could barely walk or even get out of a chair without...
So I'm on Tuesday I am having my pre-op meeting with a nurse, my ileostomy surgery is scheduled for Aug 1st. My question is about supplies. I'm sure the hospital will send me home with some stuff,...
Little E, Thank you for the info. We are planning to watch it tonight....
Does anybody know of a good website that shows someone actually cleaning and caring for a stoma? I found a couple people who have posted stuff youtube, but they are a little strange. I was wondering...
Thank you for the prayers. I'm not worried about my fate, I know if the unspeakable were to happen I know where I would be spending eternity. I just worry about what would happen to my husband and...
Hey everybody, I just wanted to introduce myself. I in the past have posted on the UC forum and everybody was so helpfull. The support was great especially last summer when I was hospitalized twice...
This forum had helped me tremendously. Even my husband feels comforted knowing you guys are out there and I can go to you with questions. Thank you for that....
It is a awful feeling. I now have lost most my hair on the top of my head and left side. There is no way for me to hide it or style it to cover. A few people have asked if I'm having chemo. I bought...
Well the hair loss has gotton progressively worse fast, it's practically all gone on the left side. So I bought a wig. It takes some gettting use to, everytime I see myself in a mirror I do a...
I know when I was at my sickest the docs at the hospital said I was so sick my bone marrow stopped making red blood cells and I ended up needing multiple transfusions....
I will be having my third one the 11 of Dec. My first one was in 05 and I sucked on those red and white peppermint candies inbetween drinks of the prep. That really helped me. My second prep I was in...
Does anybody else do this. I often call ahead to make sure where I'm going has adequate bathroom ei: more than one stall, do you have to ask for a key to get in, etc. My daughter has an outing with...
Thats great news!! I starting my 2 week with no Pred and so far so good. So you don't know if the AZA or the Remi is what helping you? That's the same boat I'm in right now. Is your GI going to keep...
When I first started Imuran in Aug I was at 50 mg. I had blood work done weekly, then they bumped me up to 100.mg and the blood draws were every 2 weeks. Yesterday I did the Prometheus (sp) test to...
I haven't been hyper on the imuran 100 mg or the Pred 60 mg was my highest. But sometimes I take Vicodin for pain and 1 of those makes me feel hyper. How wierd is that, I thought those were supposed...
I have started taking a multi that has folic acid and iron but no biotin so I'll look into that. Candi75~ Was your hair loss really noticable, did you ever consider wearing a wig? I'm thinking about...
I haven't had a period since July when I was hospitalized with a very bad flare. Just chalked it up to being so sick. Not that I'm complaining, it's been nice not having to deal with that too....
Welcome to the board, I too am a newbie here. I have found this place so helpful and a source of comfort. I was wondering, you mentioned you had a tear. Did that happen during your colonoscopy?...
My GI told me to definately to get a flu shot, for my whole family to get them. Since the virus is not live it would be okay. But I thought I heard that the ones they give via nasel spray is a live...
Thanks FosterDad, I will definately look into it!...
When I got out of bed this morning I noticed something dark by my pillow. Turns out it was a big clump of my hair. I've been having a lot of hair loss lately but not in clumps. I already have really...
For a while after I started pred I couldn't taste anything really. Like my tastebuds quit working. I'm not 100% positive it was caused by the Pred, but eventually I got my taste back....
Great news Beth! I hope you continue to feel better! I'll be sending healing thoughts your way!...
It means a lot. Everyone is so nice here. I am so thankful that I found this board. It feels good to talk to people who are actually are experiencing some of the same things I am. I visited...
Had an appt with my GI on Friday (3 month follow-up from my hospital stay) He says that on paper everything is showing improvement. My ct scan from last Tuesday showed that the wall thickening I had...
I've been overly tired since I got out of the hospital in Aug, but the last month or so I'm so tired I want to go to bed sooo badly I cry. It's so hard to take naps with the little ones around. Our...
Yes I experience itching that I'm sure is due to the remicade. I itch all over but do not have dry skin. I sweet talk my daughter to itch my back with an old hair brush at night. Ooh it feels so...
Hi everybody, this is my first post but I've been "stalking" the board for awhile:) I have a question about battling fatigue. Have any of you gotten B12 shots for this reason and did it help? I have...