Thank you for your insight...
In wondering the same thing....
Thank you:-)...
Thank you for your insight and the information. I shared it with my husband it’s very encouraging. I think your right about not needing to get my intestine removed just because of the breast cancer....
I was on Remicade 13 years and am now on inflectra....
Breast cancer...
Hi everyone just curious how many of you are on Remicade or inflector and have also dealt with cancer? My oncologist is suggesting that maybe my cancer is from my Remicade. I am now on inflector. I’m...
Thank you...
Is there anyone who has experience with chemo and having UC? I recently started chemo and have had diarrhea ever since. I was told that It is a possible side effect with this chemo med (taxol). But...
Hi everyone, I have had Ulcerative colitis for the past 20 years. For the past 13 years it’s been wonderfully managed by Remicade and now inflector. I was just diagnosed with breast cancer a couple...
That is interesting, thank you for sharing....
Just wondering if any of you have both and how you manage?...
So they were about two months apart I was just saying this because since that time my insurance switched my med. I did eat things other than roast beef but it was what I ate the most of....
I have had two situations a couple months apart with diarrhea and loss of bowl control. This hasn’t happened in 12 years. I was on remicade the first time and have been switched to inflectra the...
I have to make the switch as well from Remicade w/ United Healthcare. Please let us know how it goes....
I’ve been getting remicade infusions for 11 years now. I’m incomplete remission. I’ve lost a lot of weight and my cheeks are saggy. I don’t look like myself anymore and am wanting to do something...
Hi, I've been on Remicade for 5 years I have left sided colitis. I have had it for 11 years. Remicade has helped keep my UC in remission. I am thankful for this but I get scared due to the cost and...
I drank some chicken stock and I did not feel any worse. My stomach still just aches going from a low level ache to some shooting pains that go away a lot sooner that earlier today....
Hi UCyousee, Thanks for replying what does "CRP was very high and xray was bad" mean????...
Hi, I've had UC for 13 years. I am currently on Remicade and no other prescriptions. Last year I expereinced symptoms that I thought were UC related but am wondering now if I have IBS too. Anyway I...
Gaps/SCD diet. How can you tell the difference between the two? Maybe doc has a point....
No I took no other meds for my UC....
I agree with you. I have never had any signs of IBS before. I plan on seeing how my current eating plan continually heals over the months. So far its gone very well, then regardless of what the doc...
I spoke with my doc about diet and how it has helped me. He said that my blood work showed not signs of inflammation so it may not be that the Remicade is failing but that I have IBS too. Wow I am...
I agree...
That's my hope I'm going to present this idea to my doctor. It would be a great out come....
I started the diet when the remicade lost its effectiveness. I did not feel comfortable taking any more meds when I was Already on such a potent one. I'm going to talk to the doc about oral and...
Because the remicade was working for four years with no diet needed. If I don't follow the diet the symptoms come back. However, I have not had any issues with bleeding and or worse so far, even...
Hi remicade is losing its effect for me. I was just wondering about other people's experienced with this? So far I have been able to manage my flare issues with diet and am wanting to keep it like...
Hi, I am a First Grade Teacher, As Picassa stated "What works for me, during a flare, is not eating until dinner time. It's tricky, but it's important that I don't leave the room unattended. Usually...
Hi Lisa, Thank you for the information. I have taken Asocal but I have found that it actually hurts me, but I wonder about the Lialda because I think it is time released (If I am thinking of the...
Hi joanna23, Thank you for the reply. So now are you in remmisson through Diet alone? I saw I. Your signature it said previous meds. If Yes that is encouraging. Is your UC considered mild, moderate...
Anyone here ever transisition off a biologic & remained in remission with diet and less severe meds?...
Hi, I'm looking for anyone who has information about being on Remicade and it not working any longer. I am getting the blood test done next week to see if it is effective at all.My hope is that it is...
Tornado6, Thanks for the link. I printed it and will take it in with me to see the doctor tomorrow. I am so happy. My hope is that I will hear something tomorrow to give me hope. Melissa...
InSoFla, I tried LDN a few years ago and it did not work. However, I do think that diet can make a difference and my hope is to try to continue using this....
soystud, Why are you considering surgery? You seem like you are doing good managing via diet and alternative meds....
Hi garylouisville, Well the last time I went to see my doctor he just gave me more meds and said the surgery would be worse than what I am going through now. From what I have read it sounds like I...
ks1905, Is Simponi, similar to Remicade? I checked out there website and it seems like it is except you inject yourself. Please post on how you are doing with it....
Thank you for all of your replies. Yes, ByeByeUC I guess it can't hurt to get a consult. I wonder how much time I'd have to take off work ect. Also with regard to the blood testing for the remicade....
Hello, I am just looking for your thoughts and ideas about Remicade. I had an infusion in January and then in February I started flaring for the first time in 4 years. I lost bowel control and...
Hello, I am doing okay on the Gaps diet. However, I stopped the broth and transitioned into the next stage, but have seen my stool become softer, so I am cooking more broth, and eating more fermented...
Hi, I have had uc since I was 28. I'm 40 now and have been on remicaid for 4 years. My infusions are every 8 weeks. My last two infusions have not been as successful with helping me with my symptoms....
Thanks Bye Bye UC, I am also wondering if my liver is having issues from the Remicade. I read that a symptom of liver issues can be itching. I see my GI on Monday. By the way I'm happy to hear about...
I saw a thread that discussed itching and remicade. I am trying to figure out if my itching is from Remicade. I have been on it for 2 years now. I recently pushed my luck (I will never do this again)...
I have a hard time losing weight. I eat due to stress plus all of the ups and downs with the foods that my tummy can handle makes me crazy and I'm sure my body too. I blame it on emotions, meds, and...
Thank you for your replies. I am going to cancel my infusion until next Monday and I am going to stay away from the antibiotics unless I am so sick that I can do nothing else. I don't know what I...
Has anyone had the top of their foot/feet hurt during a flare? I sometimes have other joint pain but this is new so I am not sure if it is just sore for another reason....
Background: *I have been on Remicade for 2 years with no issues. *Before my most recent infusion I had a mild flare. Just mucus then after the infusion I was fine a couple days later.However, I was...
Thanks for posting GLove. I will try to eat a little bit of fruit today and see what happens....