Gosh, I surely hope that people do not think I am “bashing” a suggestion just because I am saying that it did not work for me. It is not my intention to dismiss any comments here. I am obsessed with...
beenthere, I am glad that this is working for you. However, your success still does not answer the question of how I could have developed UC if I was eating this way already. You are proposing a diet...
"red and green would appear brown...maybe that's how some perceive no bleeding? q" Exactly. I know that if I ate that much spinach, there could be no sign of anything red in there. But I am skeptical...
Thanks again everyone for sharing information and suggestions. I did reach the on-call doctor, and it just happened to be my doctor this morning. He said that it is “absolutely false” that Keflex...
Thank you all for your responses. I will continue to take the antibiotic for now. I will also call my GI today to speak to the on call doctor to see if they think I should switch. I will also pursue...
I was prescribed Cephalexin (Keflex) for a sinus infection and just took my first pill. I did some additional research and found several mentions of this being particularly irritating for UC...
Somebody is making you suffer unnecessarily. I have had my blood tested for pancreatitis several times and the results were always back within an hour. The good news is that the results are usually...
It seems that the congestion I have from spring pollen is developing into a sinus infection. Since Remicade patients are strongly encouraged to take action at the first sign of infection, I called my...
Thanks for the responses. That's the clarity I was seeking. It makes sense that Remicade is targeting a different part of the immune system. I had just assumed that they were all immune responses and...
Thanks for the response Quincy. I have always had moderate allergies all year (dust and mold, I assume) and they worsened in the spring with pollens. I took several different perscript ion and over...
Immunosuppressants are intended to prevent the immune system from attacking. Are springtime allergies not an immune response? Why would immunosuppressants not prevent all immune responses, including...
I agree with Eva Lou. This study is pretty straightforward, which is the reason I find it so alarming. Relatively few people use Remicade, so its appearance on this list highlights the extreme danger...
If I am reading this correctly, the deadliest drugs are opiates that result in death due to abuse. And then Remicade. Since Remicade is not a drug of abuse and is not self administered, that means...
Sara14- I began getting migraines when I was about 24 years old. Migraines are very different from regular headaches. You might want to speak to a doctor about the nature of your headaches. Migraines...
I have had about 5 or 6 infusions and one of them caused a severe headache that lasted for several weeks. Another infusion caused a headache that was much less severe, but it still lasted for a few...
I am on Remicade and I flew recently. As my previous posts have suggested, I am very nervous about being exposed to things while taking Remicade. However, I did not wear a mask while on the plane. I...
I have not had any issues with nausea, but I have had some extended severe headaches after infusions. You should probably discuss this with her doctor, but I have found that most doctors who...
When I had pancreatitis, the pain was not persistent. I recall that it was worse after meals. I believe this is due to the inflamed pancreas struggling to produce fluids for digestion. The only real...
barbl, please share more about your knowledge of claims. Does anyone question the significant difference in cost? You have seen costs range from $7000 to $13,000. Why would you accept a bill of...
Yes, I'm in the US. I am receiving the standard dose. I think the grey area here is the "costs charged for the infusion" line item. They are nice to me at the hospital, but they do not provide a...
Do any of you know the specific cost of your Remicade infusions? I had never seen billing info for any of my previous infusions, but for some reason the insurance is not covering it fully this time....
"The biggest negative I can think of to a Canadian-style universal system would be potentially less dollars going to research new cures. If there are price controls on drugs, I would think less...
I also had my infusion today. No headache yet.....hoping it won't happen this time!...
I dislike Remicade for several reasons. In general, I think it is poison. I think it is very unsafe for short term and long term health. I think that it produces many side effects that the doctors...
I am probably developing quite a reputation as being anti-Remicade, so I might not have much credibility on the subject, but anyway…… I was very reluctant to start Remicade. It was at my doctor’s...
Delarge , I do not recall which antibiotics I took. There were two different ones, and I only took them for one week. I do remember that one of them dissolved quickly in my mouth and it tasted...
Princess, I definitely understand the importance of taking meds even while feeling better. However, I just don't know if any of the meds actually induced my relative remission. In fact, every single...
Although I have improved dramatically since I was first diagnosed, I have seen very little evidence that any of the medications actually contributed to my relative state of remission. Is it possible...
I am also thinking that surgery might be a better option than Remicade. I just keep reading so many negative things about it, and I'm fairly certain that it has caused the persistent headache I have...
Other than feeling tired for a few days after the infusion, my only noticable side effect has been the horrible headaches. I had a headache for about 3 days after the first infusion, and for most of...
I developed pancreatitis from Colazal, according to my doctor. He saw my blood numbers (which I do not recall, unfortunately) and made me stop taking Colazal immediately. He seemed very concerned...
What meds are you taking? The 5-ASA meds cause pancreatitis for about 3% of users. High Lipase levels indicate pancreatitis. I needed to stop taking Colazol for this reason....
Actually, I do not believe the Remicade has helped me in any measurable way. My symptoms have not changed much at all since I began the infusions. I’ve been doing pretty well even before the...
After lurking here for the past several months, your post finally compelled me to register. I have also had some recent challenges that I believe are due to the Remicade. After my last infusion a few...