Sorry for the graphic question but has anyone had any stools that smell like acetone (nail polish remover)? I think it has to do with ketones but not sure what that means for me. I experience that...
I too have been on the Nuvaring for the past 2 years. I love it! But... I hae been having issues with what feels like urine leakage. I didn't want to connet it to the ring (because I love it so much)...
Katmom, I agree with the hormonal component to IBD but I had been on the pill since I was 15. I didn't know I had UC at the time (but had symptoms for sure). I know people have said it but I think...
I've been on Humira for about 8 weeks. I was previously on Remicade and that eventually failed. I'm not sure I'm the perrson to talk to regarding Humira. It is less expensive but it's always a gamble...
This sounds kind of weird but when I'm flaring (currently) I notice that if I'm really craving something, usually it won't make me sick. I've been in a flare and been on a mostly liquid diet (to...
I get rashes sometimes just from flaring or shortly before a flare... I've only connected the 2 things recently but I too had been to a million MD's wondering what the heck it was. Maybe that's what...
I hear you Mia! I had a bad UTI/ kidney infection last Christmas and was flaring at the same time. My regualar MD tested my urine because I was seeing blood in it (I had kidney stones so I wasn't...
Keylime, Is he taking any meds like Canasa or anything? Those can cause headaches and usually MD's/pharmacists don't tell you that until you say "you know I've been having headaches..." Anyways, this...
I was approved by my insurance. I have been denied a whole bunch of times. I just got a new job and new insurance and was so shocked because they approved it on the first try! I'm a little worried...
I'm supposed to start Humira in the next week or so. I too failed Remicade. I (and I'm sure others on this site) would like to know what your experience has been. Do the shots hurt? Is it working on...
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I'm on the 5mg dose of Prednisone trying to get off completely. I've been on pred for almost 1 1/2 years consistently. It seems like I can't go lower than 5 without having issues. Going higher may...
Hi all, I have a quick update.... I graduated from nursing school and passed my boards! Working as a nurse has kept me busy! I was taking Imuran and prednisone after failing Remicade. I stopped the...
Pred is weird too in that I have the hardest time tapering lower than 10mg. I have to go extremely slow and even down by halves. (7.5, 7, etc) Sometimes it takes me weeks on one dose in order to go...
The weird part is that I'm not originally from Chicago. I grew up in Long Beach, CA. I've only been here 8 years but I swear I have had the WORST symptoms here and when I go on vacation back to CA,...
FINALLY SOMEONE ELSE HAS THIS!! :) I too have had right side pain for like 9 years! I have had all the tests, CT's, MRI's etc. and they have found NOTHING! But sometimes it hurts so bad I can't stand...
Yeah I take the Imuran before bed too. It makes me SO tired! I have to really make an effort sometimes just to get out of bed! I just increased this week from 100mg to 125mg and I'm thinking that had...
I know that alcohol is generally not something we should be drinking while having UC or being on meds for it either. But, I've been having some unusual experiences with alcohol lately... I can have a...
I'm sorry I missed it Erica! I've been busy finishing up nursing school and really didn't even remember! Good news is I'm done for now and I'm just waiting on graduation. Maybe we can have some...
I'm 29 (for a few more months!) and single. I agree it's tough for UC'ers to find someone understanding. This has put a huge strain on my relationship with my boyfriend and sometimes I'm not sure...
I have to agree with sodbuster19, I like dark beers a lot better... and they get along better with me. I think it's because they don't seem to be as carbonated. Dark beers and even red beers like...
Hey all, I realize this is kind of a delayed topic and I hope no one else has posted on it... my computer crashed and I just got it back today! I attended the CCFA symposium in Chicago and was really...
I just wanted to reply to the question about is it the UC meds causing the anxiety or are we just anxious? I think that I have always been a little more affected by stress. However, I have always...
I too seem to have the same type of anxiety you do. I just can't calm down I guess, my mind is always going. The prednisone didn't help me either. I have that vicious cycle of not sleeping well from...
I've had surgery 2 times and I currently have about 8 stones kicking around (but not big enough to cause pain supposedly). I think it's related to the UC for sure. I guess we metabolize calcium...
I don't know exactly what to tell you because I know how you feel about wanting to get off of the meds. BUT, if it's true that the Asacol is holding you where you are, I say stay on it. I know there...
I have trouble sleeping from the prednisone (and the flare in general) and I take 1/2 a 0.25 mg Xanax at night to sleep. I also have recently been put on Lexapro 10mg per day for anxiety. I used to...
I was on Remicade for 1 year. I never had any side effects. I really experience more from the prednisone (ie. bruising, etc) and I really think Remicade is an excellent choice for someone who is...
For sure file with the Office of Disabilities!! Even if you feel like you're being "over the top". No one told me about this until after I already had a bachelor's degree (that I suffered through...
I'll be there and my boyfriend too! Can't wait to meet all of you!...
Hi everyone, My name is Becky and I'm 29. I grew up for 21 years in Long Beach, CA but have lived in the Chicago suburbs since then. I am a Certified Athletic Trainer and I'm currently in my last...
You may have already thought of it but put in a few ziploc bags so she has a place to put the old clothes/unders. I like the freezer ones (they are like blue tinted) because they seem a lot thicker...
Kelly, I had Remicade at NW Gastro too so I know exactly what you'll get! I always felt cold in the room. We think it was because that room always felt cold and I think they have fixed that as of...
I know I should probably know, but could you explain a little about what Ally's Law is about ? Thanks!...
I think it's the Imuran. I am taking it and sound just like you... it's finally clearing up my UC and I'm feeling good in that aspect but I'm just so tired. And it's not really an "I'm tired I could...
I took it for chronic right sided abdominal pain (which we still don't know the exact cause). The dr's thought that maybe I had an irritated nerve from kidney stones or UC or all of it combined....
That would be awesome to meet up. I'll be looking for a post! :) Becky...
I was unsure if I could fit this in my schedule, etc. but I'm so excited to possibly meet other people with UC and to network with you guys, I'm trying my hardest to sign up! Becky...
Erica, I'm in the suburbs....I'm not sure if I'll be at the conference. I was just looking at the brochure. I'd love to meet up with you there. My email is in my profile on here... you can email me....
I'm totally losing my hair. I have a least a combful every morning and then I'm constantly picking hair off of myself during the day and always vacumning! I heard it could be the Imuran but that it's...
I too am super tired! I go to bed at 9 and sleep until 9. I take the dogs out and could lay around all day. I have to make myself go to the grocery store and stuff and really have to psych myself up...
I hope this isn't overkill but I saw Dr. Kane at Mayo in MN and was so happy! I felt like she understood exactly what I was saying and I feel so lucky to have gotten to see her. I didn't know anyone...
Kelsie, I started Remicade in 8/06 and immediately saw results. I felt so good after just the first couple infusions! I normally started to develop things like bleeding/urgency during the 7th week or...
Hey guys, I started Imuran about 8 weeks ago. I'm still building up my dose but I'm currently at 1 1/2 pills (whatever that dose is) and I'm just feeling yucky. I'm not really flaring (just mucuous...
UCLIFE, I'm about your age and feel a huge challenge as far as relationships go too. If you ever want to compare thoughts, my email is in my profile and I would love to hear from someone in my same...
I've been diagnosed for 11 years and have truly had this forever. I still feel like a "newbie". I feel like just when I start to think I have a handle on it, it turns in the other direction. I've...
I have noticed that everytime I start up again on Predisone, it's like my body has memory. It doesn't take long at all (within a few days) before I'm feeling crazy and the rest (bloating, wt. gain,...
Naked Juice has a protein smoothie. It's really good and has 40 g of protein in one bottle! I drink it when I'm too sick to eat but have to carry on with life and keep my brain working! :) They also...
Hi all, I just wanted to send everyone an update on my situation. I had posted a few things recently about my struggle with my flare and meds, anxiety, sleeping, nursing school, etc. I wanted to tell...