Some of those improvements waned after 10 days - my stool consistency returned to watery, and urgency increased some (although the frequency continued to be around 2-3 per day). I may restart it...
I started Rinvoq in mid-June and I'd been on it for 6 weeks without seeing any changes (no back-sliding or negative, just no improvements either). I ceased taking Rinvoq when I came down with some...
That helps - thanks for all the reassurance! I'm on Day 7 and I've already seen major improvement in frequency (now just 2-3 times a day) and some improvement in stool consistency (still have some...
Thanks for all the replies - you have all helped relieve my anxiety. Did any of you notice major weight gain while on Rinvoq? That's something I'd like to avoid as well (if possible)....
That's very encouraging that it's more targeted and seems to have less dangerous side effects compared to other TNF inhibitors. Thanks beatUC! ...
Hello Joanna - I'd say my symptoms are moderate right now. I never have any blood, but I do have rectal inflammation and without being on meds, I alternate between semi normal (3-4 BMs a day, mostly...
I was finally approved for Rinvoq and I picked it up from the pharmacy, but now my anxiety is rising and I'm having doubts. Rinvoq is the most powerful medication I will have yet tried for UC. I have...
After trying Entyvio and now Humira with no success, my insurance has finally approved me for Rinvoq! Unfortunately, I will have to wait to start. I'm on Day 10 of battling some viral/bacterial...
I know Xeljanz and Rinvoq are both JAK inhibitors (with the difference that Rinvoq is newer for UC) so the mechanism of action is the same, but is there a difference as far as: * Effectiveness * Side...
My GI ordered a Calprotectin result for me in late December, right before Christmas, to establish a baseline for my inflammation. I do not recall having one done in the 12 years since my UC diagnosis...
Anyone on here have success with Humira? I haven't noticed any success with Entyvio really, so I've been approved to try Humira (which is a necessary step for me to get approved for Rinvoq, which is...
I'm 3.5 months on Entyvio now, and just had my 4th dose a week ago, and since that time, I've had a mild headache nearly ever other day with intermittent periods of "heaviness" sensation in my head....
I've had 3 infusions so far. I have my fourth infusion on January 4th. ...
Thank you! How long/how many infusions of Entyvio before you noticed improvement? ...
Hello fellow UCers - I've been on Entyvio since 9/21. I haven't really seen improvement at the 90-day mark now, I'll need to make a decision on next medication to try when I see my GI again on 1/14...
Hi Geezer - do you mean the side effects from Zeposia are really scary? My GI's office has led me to believe it's a much safer drug than many of the biologics, which is why they are recommending it...
Hi fellow UCers - I posted a few weeks back, but thought I'd provide an update. I was diagnosed with UC in 2009, had ileorectal anastomosis surgery, where most of my colon was removed, but my rectum...
Congrats! Glad to hear it. How long was it before you noticed improvement after starting Rinvoq? ________________________ CollegeGrad85 UC dx in 2009 Ileorectal anastomosis in 2010 Now - Proctitis ...
Thanks for all the feedback, everyone - I really appreciate it. Based on everyone's feedback, I'm going to give Entyvio four months to see if there's improvement. I'm reluctant to go longer - I think...
No j-pouch: I had most of my colon removed except for a small stump/piece (4-5 inches) along with my rectum. That stump of colon was then connected to my small intestine....
Hello fellow UCers: I started Entyvio almost 4 weeks ago, on 9/20. So far, I've had two doses, but haven't noticed any changes in my symptoms yet. I know Entyvio can take longer than other...
I just received my first Entyvio infusion earlier this week, and I want to get my COVID booster soon. Any feedback on whether I should wait for a certain period of time before getting my booster? The...
Thank you. I've heard a lot about Rinvoq recently and knew it was in the same category of JAKs. My goal I'd to find something that will target the rectum or at least be highly effective in the...
Thank you. How long were you taking Xeljanz before you noticed improvement?...
Hello fellow UC sufferers: I had ileorectal anastamosis surgery completed 11 years ago for UC, so my small intestine was joined to a small portion of colon and rectum that was left behind. This...
Hi everyone, I've read through experiences with both drugs (Xeljanz vs. Stelara) but haven't seen any comparisons of the two. I was diagnosed with UC in 2009 and had much of my colon removed in an...
Back in 2008-2010, I tried all of the mesalamines on the market and Imuran. Last step was Remicade (other biologics and TNF inhibitors were not yet on the market). I started on 120 mg of Prednisone...
UPDATE: I had a flex sig done on Friday, which basically mirrored the CT scan: * Mild rectal inflammation * Two pseudo polyps * Pseduo polyp and stricture in the terminal ileum My GI doc talked to me...
Again, thank you for that information. It's very encouraging that I'll likely be able to get this under control. My rectal inflammation is mild and intermittent and doesn't bother me too much, but...
Thank you for sharing. Was the treatment the same for you? I suppose it would be if you already had pancolitis. I'm wondering if there is a specific treatment that's more effective for targeting the...
Hi everyone, It has been years since I've commented on here. In 2008, I was diagnosed with UC in a large portion of my colon leading directly to my rectum, which was also inflamed. I had surgery in...