Hi Terri and all the rest of the gang. My computer was down for a bit and my husband off from work. I've booked August with plans galore. I'm trying to make time fly so i don't lose my mind. It's...
Hi everyone, sicker than me is my computer. We have been hijacked and it only works some of the time which is so frustrating to me because I sooooo need this message board. Anyway, Cathy your message...
Cathy, I wanted to thank you and I just thought I'd let you know that I went back and read your articles that you posted the links for. In fact, I printed them off. I thought it may be a great tool...
I believe Specky went into surgery on 7/29. So let's all keep the positive energy flowing!! Here's to increasing the pericardiectomy survivors list!!! Specky?? We're thinking of you and will be here...
Teri-I knew you were a moderator and that you didn't have a pericardiectomy. Don't feel bad, you didn't confuse. I still care about your after effects, though!!!!! You are so used to being the...
Hi all-Brenda, I hope you are doing well and without complications. Specky-gettin REAL close. My thoughts are with you. Cathy-SOOOOOO sorry to hear about your pain in the left side. what does you Dr...
Okay, I will call my Primary care Dr tommorrow, not that she'll do much but I'm more interested in what you all say. I've coughed up brown blood many a times, mostly in the morning and it seemed to...
Wow, I missed a lot in a day or two. My computer is not being nice, I'm having memory problems. I meaN WELL THAT TOO, BUT i MEANT MY COMPUTER. It's all the pictures of my beautiful girls on my...
Specky-I would definitely ask what the down side is. But I'd be willing to guess(not bet) that it was someone in severe shape to begin with. I really hate the wait-and-see approach. I haven't heard...
Nan - I would take your 1/2 cent any day of the week, sweetheart!!!!!!!!!!!!!!!! Your story is soooo realtive to mine right down to our little angel faces looking up at us each day while we...
Way to go Brenda!!!!!!!! The worse is over. Welcome to your new life. John99-I'm anxiously awaiting your results. I too am currently dealing with Drs that have NO clue!!! You just may become my...
Hope you are all doing well. Best of luck to those with upcoming surgeries. Cathy, I pray for resolution of your symptoms. Nan, I am no where close to a Mayo clinic and don't think I qualify for any...
Okay, I really needed that laugh Cathy. I had the WoRST day yesterday. I've had 3 surgeries in life, none nearly as severe as what your body has been through and I definitely think this was related....
Hello everyone. I have been following all of your stories since the beginning. I'm not sure I belong without a confirmed diagnosis. Cathy, I was sooo worried about you. I was so relieved when you...
I too have been so sick for over a year with a total of three fatal diagnosises, 1 supposedly wrong diagnosis, and then left hanging with their "I don't knows". It's hard to believe the Drs can't see...
I don't know where the Mayo Clinic is. Someone at my husbands work told him to take me there. I've gone to Mass General. Around here no one will even see you if you've seen them. They are considered...
If I tilt my head to the left and look closely, I can definitely see my pulse. It's nothing I noticed before you asked. Is this something that a healthy person can't see? If so, do you know if it is...
Thank you both for your concern and willingness to help. I was told that I probably have Scleroderma because of severe Raynaud's, positive ANA, arthritis in the hips and shoulder, thyroid, malar...
I too have had the symptom of feeling liking someone is stepping on my throat. I joke about the phantom strangler. The other problem I've been having on and off but real bad lately is paIN that...
To Diane S I just wanted to let you know that I have ultimate trust in my Dr and she made a lot of sense when she said to me that it's better to do the full pericardiectomy. It would be awful to have...
Hello to all of you. I can't believe I've found you after being so alone for the past year. It's been a year since I've been short of breath. I'm only 28 years old and I have two toddler girls who...