Wow, it has been forever since I've posted on here. My husband has recurring pericarditis. Not constrictive. He was in the ICU 2.5 years ago with cardiac tampenade (so much fluid that it can crush...
Hi everyone, it has been a while since I've posted. I still come on every week or so and catch up with everyone... So we are on a rollercoaster... My fiance has been doing so well... coming down off...
Hi everyone, nice to hear everyone is doing well. Hope Thanksgiving was nice. For my fiance, everything is proceeding OK. He is still on the Pred and colchicine, but is also on something called...
Hey Scott, good to hear from you! Sounds like you are doing awesome! Though quite a scare with a Staph infection! The last thing you needed was to be back in the hospital! :) Well congratulations on...
Hi Brent, just wanted to welcome you to this board -- wow, you've been through a lot! Congratulations on getting through your surgery and feeling relief of most of those symptoms, I'm sure it makes...
Matt, so have you eased up on the drinking? If so, has there been a difference? If not, please do yourself a favor and stay away from alcohol and whatever else you are playing around with. Follow up...
Hi Matt, Welcome to HealingWell. I'm so sorry you are going through this. I myself am not a heart patient, but my fiance has been dealing with some issues as of late, and this forum has been a great...
Hi Mister, Nan, Scott, Teri... It is good news to hear that everyone is doing well. These surgeries are clearly major "events", so of course there are going to be some challenges afterwards. Scott, I...
Hi Teri, I read this article when it was posted and I think it is a great thing. Of course, who knows what someone is going through when they've reached their end, but for those who are open to this...
/community/emoticons/tongue.gif Thanks you guys! /community/emoticons/tongue.gif I have to say it has been a whirlwind past few days. I was literally swept off my feet. The energy that he went into...
Hello Scott! My name is Maya, and my *fiance!!* (we just got engaged) was at Cedars for about a week in May with a very serious occurence of pericarditis (not constrictive). For a time they discussed...
Yes, I have been reading lots about blueberries as well! Antioxidants are SO important, they remove free radicals which can cause all kinds of damage. However, with ALL berries, if you can buy...
Hello Bonedoc, You've definitely come to the right place... there is such limited info on Pericarditis out there so the best way to learn is to talk to those who have experienced it. I am not...
Yummmmm! Silk Soy, have you tried it? Especially the Vanilla or light Vanilla. SOOO good....
Hello all, I do not suffer from CF, but wonder if it can be tested for (genetic screening). For instance, before you have a child, can you test if you are a recessive carrier? Maya ...
Hi Kim, I don't know this procedure, but my father is an OBGYN and works in an infertility clinic. All I know is, if the statistic is that 98% of men with CF are sterile is correct, I wouldnt hold...
Good morning everyone! Good news on this front! My honey went to his doctor for an appt yesterday, and they did an echo... because there is no inflammation, we are down to 15 mg of prednisone -- yay!...
Go Teri! You have a wonderful spirit and it really shines through. I wish you a wonderful anniversary and please know how many people here you have helped. Thank-you for that! ~Maya...
Hi Shay, I myself do not suffer from pericarditis but my boyfriend does. And in his case it is recurrent pericarditis, not constrictive (though recurrent can develop into constrictive in some cases)....
Dear Kim, I just "happened" across this posting. My "boyfriend-soon-to-be-fiance" does not suffer from cf, but has been dealing with some medical issues as of late. Thank god everything is OK :)...
I'm so sorry, for you Teri and everyone else who knew Steve. I did not. In life, as my soon-to-be father-in-law says, "we all just a heartbeat away from eternity." Just have to do your best everyday,...
Hello everyone, There were a few posts in one of the topics in this forum about health insurance... Some mentioned that they don't have any... wow, I can only imagine how difficult that must be if...
Hi Leighanne, What a thing to be going through! I'm sure everyone here would agree that the Cleveland Clinic and Mayo hospitals are probably top notch. I'm not sure how you find doctors at these...
Alright Teri! I'm sure you look like a little hottie /community/emoticons/cool.gif I myself, have supported many hairdressers over the years, and I am proud to say I'm a very natural unnatural and...
If you like to eat Fish to get your fish oil, another thing to keep an eye out for is mercury levels. I think all fish have some mercury, but it is always best to purchase wild fish... as in not...
Thanks for the words of encouragement everyone! Specky, he has been going to an acupuncturist for about 2 months now. Who really knows if it has helped, but it sure hasn't hurt. He also started going...
I think I am just very sensitive to it. Same thing with such "flavorful" things as raw onions. The night that I ate so much garlic, it was at an Argentenian restaurant... basically grilled chicken...
Teri, my boss and I actually had a conversation about the crocodile blood thing today! They are thinking about it for AIDS therapeutics. I didn't read the article link you posted, but he told me...
Water is the way to go. Healthy!!! And that is so important. All that flavored water is full of colors or chemicals, there is no way to create a flavored water without adding something to it. So I...
Yes, literally, a hangover! I didn't believe it myself, but boy, it felt EXACTLY the same as having too much red wine or champagne. I even researched it the next day (because I was so sick at work...
Fresh, raw garlic is definitely the way to go. I don't think the powders have any of the nutritional benefits (if they do, it has got to be minimal), and the minced garlic has got to have...
The "lizard spit" treatment for diabetes is actually called Byetta. It's indication is for type 2 diabetes, and it is manufactured by Amylin Pharmaceuticals, in San Diego. It is a peptide...
I would imagine that Vitamin E (topical) helps as well. Isn't that what they always say for scars?...
Thank you Specky! I really appreciate hearing your story. His case of pericarditis is quite unusual. He says he had his first attack about 7-8 years ago (before we met). It went away on its own, and...
Hi everyone... Being the computer addict I am, I'm always looking for new news on pericarditis. Today I found an abstract to a very scary article. It was focused on recurrent pericarditis, and it...
They do have POM at the market, here in Los Angeles, they sell it readily at Ralphs. And it is EXPENSIVE, like $10 a bottle. However, after buying a few bottles yesterday, I noticed that it is made...
Thanks you guys! I appreciate all the input. Well he went to his appt with the new doctor at UCLA, and she said he's on all the standard stuff... prednisone, colchicine, motrin, etc. And she says...
Hello everyone, it has been a while since I posted in here but I followup with the board on a regular basis. It is so nice to see how everyone is recovering, albeit with a few bumps in the road. So,...
All I have to say is, you are all heros. In life, we have got to take what we are served, and you are all pillars of strength in facing what you are facing. I'm telling you, I see it in my boyfriend,...
Thanks very much Mister. We will put in a call later today. I'm so sorry you have to be back in the hospital to drain the fluid... if it is not in the lung, where is it? Darren (my BF) had to get the...
Hi Frand, thanks for your story! So, did you have a pericardial window or a pericardiectomy? He is back on 40 mg of prednisone and feels great right now (thank god he isn't suffering any side effects...
Thanks for that Mister S. We are putting a call into Vaughn right now. Do you have a cardiologist to recommend at USC as well? I don't think my BF as at the stage where surgery is imminent, I would...
Thanks for all the welcoming words! He has been tested for everything under the sun. Lupus, Rheumatoid Arthritis, cancer, the list goes on. Everything has come back totally normal. This is most...
Hello everyone! Wow, I've been reading portions of these threads for about a month and a half now. I am personally not suffering from pericarditis or a pericardiectomy, but my boyfriend is. I've been...