I just wanted to add a few more things to anyone going through this. I was told prior to surgery; after visiting Cedar Sinai Medical Center, and The Mayo Clinic in Rochester; and finally at the...
Hey guys!! WOW, its been a long time since I have posted in this forum; and have really missed everyone! Just wanted to let everyone know its will be TWO years this JULY since my percardiectomy, and...
and my prayers are with Elvina!! Ken, she is blessed too have you!...
Hey NAN and JOHN! Sorry I have been away so long, I hope you all are doing well, I am at my fifteen month anniversary since my pericardiectomy, and its hard to believe, I had my thyroid checked...
Ken and Elvina... I flew from Cleveland to Las Vegas five days out of surgery, and it wasn't easy, BUT, my surgery was a bit different, as I said, they went under the breast, and didnt' go through...
Kenneth and Elvina! I completely understand what you are going through, but, please remember, you are going to an experienced center, and that is KEY! My calcification was 11mm's thick.....I think I...
Hey Nan, always great to hear from you........I just emailed you back! I had told you guys I was having problems with energy, I can't seem to get going...I don't know if its a sort of depression, or,...
oh, and one more thing...NAN, that was very sweet, and its funny, because as soon as I got out of surgery, all I could think about was getting to the public computer on the floor at Cleveland, so...
HEY MISTER!! GREAT TOO SEE YOU!!!! SO glad you are doing great...........WELL GUYS!!! GUESS WHAT..I HAVE hypothyroidism AS WELL!!!!! /community/emoticons/yeah.gif What is with that???? I have been...
Hey John, I dont think you need morphine, I am taking a low grade, but, you might do well with ADVIL, as Nan had mentioned, or Loratab or Percocet, they are very low grade pain pills; and might...
Thanks Elisha, I appreciate that...... John! I completely understand the constricting feeling that you feel, like someone is almost sitting on your heart, or major pressure. As far as the chest pain,...
boy, that was a lot longer than I thought, sorry about that guys.....John, one thing I forgot too tell you, is I told you all of my symptoms are gone, and they are except one......the pain, I still...
Hey John, Boy, I am so baffled by what has transpired with you. YOU have all the symptoms, it just does not make sense. What did DR. KLEIN say was wrong with you? DO you have arrythima's, or rapid...
Hey Nan, Are you kidding, you are our HERO here, and one of the BIG reasons I scheduled a surgery date...you gave me so much encouragement, and hope, and GUTS>>>I will always be grateful for...
John, I am shocked that Dr. Klein is telling you that you don't have CP, you clearly have all the symptoms. What is he telling you he thinks it is?? What tests did he perform on you? I am baffled, as...
also Gerry, depression after heart surgery is extremely common, in fact, if you read through that giant book they gave you from Cleveland, it talks about it extensively. Its something that will pass,...
HI GERRY! I am so glad to hear from you; and am happy Dr. Klein and Dr. Lytle took good care of you, you no doubt had the most experienced surgeon in the world for this, and with the complications...
Hey Nan, Always good to see you; and to know you are doing well! I didn't send a card to Dr. Lytle, I am not sure why, the man saved my life there is no doubt, and I probably should. I had such a...
one last thing...and this is too "HOPE" why do you have to have a heart transplant? What caused the congestive heart failure? MY thoughts and prayers are with you. How many opinion's have you had,...
[i][color=green>Hey] [b][i]I am back finally.... [i][color=#008000>thanks] [b][i] [i][color=#008000>MY] [b][i]I have went back and read some of the posts since I had not been on in a couple of...
NAN!! HI YA! CONGRATS ON your almost one year anniversary, that is so very cool! Even tho, I was cut under the breasts, it still goes up halfway up to my armpits, so you can surely see it, but, yes,...
Hey Nan, I will do a search and look for them, it was a long time ago I saw them; and I paid attention; because I knew I was going to have to do this in the future; at that time. When I find it, I...
one more thing... everyone that has had a the symptoms of constrictive pericarditis or even had a pericardiectomy.... How many of you had a massive fever years back? I am curious because twenty years...
Nan and Henk, thank you so much for your kind words. Nan, I have heard they make a necklace for women that have had open heart surgery, it is stragetically placed so that you can wear a V neck; and...
Henk...great to see you again, I appreciate all the help you gave me before my surgery, you are a great person. Why do you have a pacemaker? Is there a reason you are still have atrial fib?? Mister,...
Gerry, There are two test that can measure thickness, and i believe you have had both, so you can just ask Klein. The cardiac cath shows thickness and so does the MRI/or Cat Scan. I would just ask...
one more thing Gerry, you will never find a hospital that does hundreds of pericardiectomys, because the procedure is rare, but I did find out that in Dr. Lytles career he had done 107, which is...
Gerry, I am glad my posts helped you, I know all of the ones prior to me, helped me as well. I have been meaning to ask you, how thick is your calcification do you know? Have you decided to go down...
thanks jennifer, I think I pretty much get it now. I didnt understand that we were unable to do that. I get the picture now; and will be a good girl. btw, welcome to our site, we are glad to have...
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Hey Gerry! The tests can be annoying! I refused the test down the throat! I was too big of a chicken, I heard later its not that bad, I just could not stand the thought of something down my throat...
SCOTT SCOTT SCOTT>>>>thank you too!! Your compassion really made me feel good, you are a wonderful person, and I am thankful you understood exactly how I felt. The last thing I wanted was...
Bubbe, I also had surgery before Mrozek did at CLEVELAND, and actually encouraged him to go there...Mrozek is correct, if Klein and Lytle feel you need surgery, you really should go, and I have to...
Nan, thank you so much, you really made me feel better. I just hope the article doesn't scare people from having surgery. I feel like Dr. LYTLE was a fantastic doctor, and the surgery WAS a success,...
The article was inaccurate from start to finish, except for the journal entries and the ICU incident. He basically said I was a financial burden to my family, when we told him my insurance covered...
hey guys! I am embarrased to even put the link up for the article, as the reporter was so inaccurate in every aspect of the article it is borderline humliating. He was so negative, when he just went...
[i][color=blue>Hey] [b][i]This is the deal, first, the four page article comes out Sunday, if you want, I can post the link here, but, most of you have been down the rode with me, and it might be a...
NAN! Congratulations on getting the okay to have a baby! A hint for you, as I have TWINS! I did invitro; and got TWO for the price of ONE! I am so glad you are doing so well!! SCOTT!! One more...
although every thing you read says this surgery has a HIGH MORTALITY rate...what I have learned here from this awesome message board and the wonderful people here, is, if you go to an EXPERIENCED...
ONE more thing, I was out in FIVE days too! Cleveland is awesome! ISN'T that amazing? I was walking the DAY after surgery, they came in my room and said, "cathy we need you up and walking by...
I AM SO HAPPY to hear you did well, we were all cheering you on and thinking about[b] you daily! Obviously you didn't get stuck with NURSE RATCHAT in ICU, she had short brownish/grey hair, older...
[color=green>Hey] Teri! I haven't gone in yet, they were waiting for an insurance approval; and they just called today; and said they had it, so I just need to call and set the date for the echo and...
Hey Teri, your so thoughtful! How are you>? I am finally going for the first MRI ECHO post surgery.. it will be interesting to see how much they removed. Still can't yawn or take a deep breath...
MROZEK! SO great to hear from you!! What did you think of Doc Lytle? He is pretty impressive when talking about constrictive pericarditis. Did you read your chart after each test? WE would stop...
[color=green>SHAYSHAY..that] [color=#008000>NAN! ] [i] [i][color=#008000>BRENDA..so] MROZEK...sending GOOD KARMA YOUR WAY>>>>I am so curious to see what you think of Dr. Lytle....
[color=green>Teri!!! ] taking three to four months to heal completely. That makes me feel better, I think I was in to big of rush to get better. {{{{{Ter}}}}} [i][color=#008000>SHAYSHAY...I] doing...
I have missed you.... your condition..boy, we have all been through it, and YOU came to the RIGHT PLACE...I postponed SURGERY FOR OVER THREE YEARS until I found TERI, MISTER and NAN..I don't know...
Hey Nan, I feel the same way you do with the scar, if we can do something to make it better, why not? I know with men, it becomes a badge, and is COOL for men to have scars...unfortuntely, women do...
OHH by the way.... NAN, I have spoke to a plastic surgeon about the scar, and they can do what is called scar restoration, and they can't TOUCH it for six months, BUT, if you are past the six month...
two weeks, I will put up a link so you can read it...HE is going to PRINT everything that happened, and since they came with me to Cleveland, they will have a very detailed article about[b]...