Hi, worried. I'm so sorry for what you are feeling. It's easy for this disease to make you feel isolated, especially because it's not something that you just want to talk about a lot or share with...
Yikes, I would be nervous to take Plavix. Have you tried posting this in the ulcerative colitis forum? Have you had a detailed conversation with your Dr. about this to address your concerns? I have...
The Happy turtle is right about the potassium and mag. Taking these supplements MAY only help if the reason for your fast heart rate is due to below normal levels of these electrolytes. However,...
It's all about the butt meds, thebuttwhisperer! Rowasa enemas cleared me up more than once. I keep a stash for when I feel a flare coming on, and its usually stopped in its tracks. And I have...
Lloyde - deconditioning from surgery and taking time off from activities will make you short of breath with less exertion than before. Just give it time. This is another reason why cardiac rehab can...
Lloyde, are you going to cardiac rehab? Exercising under a controlled environment while building back up your strength and stamina is not only safest for you, but it will probably be comforting for...
Warm thoughts to you and your mom, H0pe...
Have you tried Rowasa enemas? Maybe a little extra of the topical stuff can help ya. I used Rowasa enemas when I flared post-partum and that did the trick for me....
Did the cardiologist say that he won't prescribe antibiotics because of her heart failure? I honestly have never heard that before, and we treat UTIs in CICU in heart failure patients quite...
I apologize for the typos, I am using a horrible keyboard. I went back and edited just one typo that I thought may really be hard to understand....
And also, this is the very same advice I would give to my own patients in the hospital. Hang in there....
That's great that her EF improved. 50% is normal. Have you asked her cardioligist these questions? He would be the most knowledgable person to ask since he is her MD and is familiar with her history...
Definitely follow your Drs. suggestions. If you really have second thoughts or doubts about your MD, you should get a second opinion. It's your health, your life...at the end of the day, you have to...
gaahahahahaa @stud, I just laughed so hard! UC_hater, I remember you from when I basically lived on here while I was very sick. This is awesome!! I feel like FMT is being put out there more and more...
Thank you, katmom!!...
Do you take any other meds besides remicade? I had a flare up 3 months pp (but I had only gone 8 weeks without an infusion because they had adjusted my scheduling slightly during my pregnancy so that...
Thanks, ipoop. I don't have any of those websites but I do have an Instagram where I post wayyy too many pictures. Laurie4386...
Thank you so much, everyone! I am truly amazed still every day with how it all worked out for my baby. I would love to share a picture of the little dude but I don't know how. I have to thank this...
Thanks everyone! ByebyeUC, time has already flown by! How have you been?...
I take generic colazal, 5 pills twice a day and I have never been on the trade name. Doing well on it!...
Oops, my flare-up was at 3 months PP, not 3 weeks!...
I don't know if anyone remembers me, but I found this forum January last year after being diagnosed with ulcerative colitis. I was 7 weeks pregnant at the time, and hospitalized for 2 weeks where I...
When I have bloating I drink ginger tea, works every time!...
My first and only admission 15 days, felt lke much longer!...
lol good one! ever been to the website "The Oatmeal"? You can click through bad jokes for days! Let the fun begin at this link: http://theoatmeal.com/djtaf/ Hope this cheers you up a bit!...
lololol that's hilarious. The turd burglar description was my favorite!...
Canada, I am so incredibly excited for this third dose! I have seen big improvements with every dose I have gotten, but little set backs as well as time passes after the infusion. I started...
You are all so nice! Thanks for the reassurance :)...
Thank you sciencegirl!! I was so happy that this worked for me!...
That's OK dusty! That's what this forum is for! In regards to not being on mesalamine once on remicade...I'm not entirely sure what is most common, but I do know that once I am tapered off of oral...
Every time I tell someone that I was diagnosed with UC, they always ask if someone in my family has it and then proceed to tell me of two or more people who have it (or crohns) in their family. Its...
Thanks everyone! Gary, thanks for the advice, I have no problem continuing to use these on a regular basis even after things are totally in remission (if I actually get there!) Poppie - yes ask for...
Absolutely. I have only had my first two doses so far, but remicade took me from watery bloody D to semi-formed no blood BMs. (semi-formed meaning it looks solid in the bowl and breaks up a bit when...
So so sorry for your struggles!! I saw a huge difference less than 24 hours after my first Remicade infusion. In my opinion, its worth it. My family calls it the miracle drug....
I have all you wonderful folks in the thread to thank for this! I have been sitting here twiddling my thumbs anxiously awaiting my next remicade infusion. A couple weeks ago things started to go in...
I was in a severe flare when I was first diagnosed, and they started me on a biologic (remicade) during my hospital stay, and I never had the chance to try any other medication because I was just too...
I'm not a doctor, that would be the best person to ask...however I would say that you should take it now and not miss a dose. Not just for your disease but because of steroid withdrawl (the reason...
Slidaway! I'm so sorry that you are struggling in this way, but let me tell you!! It's not as bad as you think! I literally did my first Rowasa enema last night and it was a piece of cake. I am...
I personally have a very high respect for my doctors. I was just diagnosed with UC in January and my GI doc has been with me every step of the way and really saved my life. Although I think it's...
And I literally just got a text from my boyfriend "How are your poops today?" True love??...
Lucky for me (i guess you could say, haha) I was already with my boyfriend when I was diagnosed. We went from the bathroom being a private place to him getting daily updates of my BMs overnight lol....
I drink kefir and make a little breakfast wrap with scrambled egg, a small amount of some kind of cheese, whatever meat I have on hand (usually ground turkey), and a gluten free tortilla. I toast the...
Your UC sounds pretty much as severe as mine was. I have had the blood transfusions and fluids and all that, just got 2 more units of blood last Friday. They discharged me from the hospital with a...
Looks like you are off to a good start. Definitely a great idea to get the GI involved. Good luck and keep us updated!...
Hi, you are so not alone! We will all be thinking of you, good luck tomorrow from a fellow mitten-dweller :)...
I'm glad that things have improved some for you and I am also glad that you are going to try to pursue pregnancy! Keep us all updated Foxy!...
Four pieces of garlic bread. And a cupcake. Don't regret it one bit :D...
Hi there. Sorry to hear about the diagnosis, I know that it's scary. When I was diagnosed I was in the very worst and most miserable part of a flare and it seems as though you have been caught early...
I am on Remicade and my infusion nurse told me that she has seen a lot of people respond to remicade that hadn't responded to humira. Was there any talk of remicade for you?...
Also, what dose of remicade are you on? Have you seen any relief of symptoms since you started it? I also didn't mention that I am on Prednisone too. Just tapered today to 30 mg....