Hi I have just being diagnosed with A F I had an ASD closed 3 years ago 33mm, after the closure I had a large clot in my right heart chamber and since then had many TIAs. I am now waiting for a...
hello :-) I have had an ASD closed quite a large one 33mm, usually a lot of people after closure do tend to get palpitations and this is can be the heart settling down...... I have now spoken to...
Thank you both for replying :-) I have a necklace that has the SOS emblem on the front and at the back it states my name and that I am on warafrin and that I have had Atrial Septal Defect closure. I...
[/i]Anyone on warfarin for life? I am and I wondered how others adapt to it? I have horses and STLL haven't rode my horse ....... the fear of falling off and bleeding although I have never fell off...
CatMom5 I would not take any chances and mention it to your doctor because you still have a leak it I would air on caution It more than likely is a one off but just to be sure. ...... do you still...
Jeannmarie you are quite active, I guess the hortness of breath and tiredness is the worse? I was going to try riding this weekend, just in the field but my husband has asked me to wait a bit longer...
Greenhope........... london marathon?........ well just a thought, maye in years to come........ no not me you /community/emoticons/tongue.gif i can't run never been able to unless someone was...
It is so good to hear that you are running ag ain greenhope I remember just a few mins on the treadmill was enough for you so for you to be running ( and the way how you are talking it sounds like...
Hello CatMom5 how are you doing?........ I haven't been told why it has happend only that it is in my heart chamber and that it is a large blood clot. You know I think it happend because I was only...
Hi Greenhope, thank you for your kind words. To be honest I haven't been well for a while and it looks like I had a TIA in march. Good news is though and that is that they have found the clot and...
I never had any TIAs before closure but I had as TIA in March then they did a TOE last Weds and that is when they found the large clot where the hole was closed. I am at the moment on blood thinning...
Hello every one I haven't been on here for a long time, but I have just found out that I have a large clot in my heart chamber. Has any one else after closure had this? I had a large ASD closed 33mm...
) then there was the double angiogram 2 separate probes with a camera one to look around my heart and one that went into the hole....... and then the one I hate the most MRI ( I am very...
I thought after closure everything would be great, my life back and all that...... my blood pressure for the last few weeks is around 98/160 (that was yesterday) I had a CAT scan yesterday to see if...
No not yet, it is the waiting game again lol. You know you are right it is the what ifs if you don't have it done. It is a scary time for you because it is the unknown, but you see when you have had...
It is a relief isn't it to finally find out what is wrong? the procedure is okay and not as scary as I thought it would have been [img]/community/emoticons/smile.gif [/color]...
DeerMarie, thank you for replying.... what you described as TIA sounds like what I am getting. I didn't have PFO but ASD..... makes no difference to me they are both holes! I was told the size of...
I had closure 17th Sept 2009 and i had a few probs after like burning poker pains through my heart and still had arrhythmia, but then about[b] a month ago I started with the blindness in my right...
15 mins, and since then I have had a hangover sort of head ( knd of thick head feeling) any one else had this after closure? my consultant thinks it is because the ASD was so large 33mm ...
Dejaboo, I still get shortness of breath but only when I am doing something that makes my heart beat faster ie wlaking fast. Remember it takes 3 to 6 months for the hole to seal over. Take your time...
you but I was told that I could have a small leak, but it wouldn't cause me any problems. I must admit like you said it is good to be getting life back. also eve though I have days where I am so...
ASD closure for me and how it was, I have also linked it to this web site as it helped me so much and for that I am grateful for Healing Well. I have my follow up scan January 8th fingers crossed...
Greenhope take it easy I think I went back to work too soon, and I ended up in A&E last monday with really bad chest pains.......... turns out I had a viral infection. Does the tiredness feel like a...
with your heart [img]/community/emoticons/smile.gif [/color] Take it easy and take care...
[b] how the procedure was for me [color=#0000ff>take] www.tonette.co.uk ...
Hi Fozzy welcome to the forum........ I had my ASD closed 5 weeks ago and I am returning to work on monday. I still feel very tired by the afternoons but I have noticed that I can do an awful lt more...
Nice one Greenhope! Good to have you back......... now rest and take it easy slgreennewyork1 Hello and welcome! I had palpatations a lot before procedure, I always had irryrthmia and very strong too....
Greenhope, I agree with Patched I would do it again if I had to. The difference in my self is amazing. Take a good book to read while you are waiting to go to theatre that helped me. If you become...
Hi Sheba. I used to get constant irrythmia (palpatations) my surgeon said that when they was doing the procedure my heart beat was all over the place but as soon as the put the device in I had normal...
Hi Sheba I feel really good, I had closure 17th September................ I feel like you I can breath now lol, although I do get breathless if I do too much..... It's good to get my life back...
I will keep watching my emails Patched, I think you are right I usually get a feeling like that when I pray and need help. Shame I don't do it more often MiMiFlo how is your daughter? I am amazed she...
So pleased you are going to the doctors, we forget sometimes that is their job. Its strange Patched but I was very scared leading up to the procedure, but when they came for me, I said a prayer and...
Patched you know you have to go back to the doctors, it could possibly nothing to worry about but you have to get it checked. If it is something then they can do something about it, if it is nothing...
my experiances and my closure as I felt there was a need for this, through that I am now talking to a lot of people whao are about[b] to have or have had closure. it is a non profit site about...
I was sedated for my first TEE so I don't remember any of it, if you look at my we site I describe how I felt through the TEE, angiogram and MRI. The TEE is a walk in the park it is nothing, it feels...
Good luck for Monday....
horses but I have added this page in as I feel that my experience may help someone to make the choice that is right for them for what ever treatment they chose www.tonette.co.uk It is a very hard...
here is the link to the video. If you are due for closure or you are thinking of closure, this is really helpful http://www.or-live.com/akronchildrens/1564/ hope this answers some of your questions...
Hi, I have posted on another thread, but i thought I would join this one too. I had closure to an ASD which was 33mm. When I had my MRI and angiogram a year ago it was 3/4 of an inch. When they went...
I don't know if any of you remember i should have had it done last November but couldn't because of a chest infection. It turns out it was essential that I had it done now as the hole had got bigger...
to have closure on an ASD (hole in the heart) in about[b] 6 weeks time. I found this site while i was looking for information. It is a vidio from one of Americas hospital. I must say it has helped...
Just reading back through the threads i get real bad palpitations and acid reflux, if i don't take my antacid medication the palpitations are so bad and do not stop at all My consultant told me that...
Take care all of you ...
Blimey................. every time i think about options, i don't want them. If Patched or Mamanuss heard or knew about all this stuff i think they would feel scared. Am i right? I have gone from...
Thank you cabikerun, i had that done before i had the angiogram and the mri. Didn't know it was called a tee tho'. Nice 1 Patched Now you can go to London!...
Good to know that we are all helping each other on this site...
Hi Skaredycat. I am still waiting for closure, i have not had TIAs i have a ASD that is facing my lung and that is where the concern is. As far as i know in England they are not stopping closures....
Please do not concern yourselves about[b] me i know when the time comes i will make the right decision for me.[/color] Take care god Bless x...
I still work full time, look after a family, horse ride and muck my horses stables out and everything else that comes with having horses, walk my dogs. So i guess all in all i am lucky. My point is...
Blimey!!!!!!!! what an amazing bunch we are! So much support and advise given. When i first found out i had an asd no one around my way has a pfo or asd, i felt so alone and scared............ untill...