Hi All...I haven't posted on this site for years. I used to be an active member in the Lyme forums. The Lyme is in remission (I think...hope). I was diagnosed with CRPS of my right foot this year,...
Hi All...I haven't posted on this site in YEARS and I apologize. Once I got into "remission," I chose to try to put all of this behind me and live a normal life. All was great until Dec 2014 when I...
Please give me some feedback here...I tried a tens unit last night for 20 mins. Today I have been more pain than in the last month. I'm having almost a full on herx I think. Has anyone ever had this?...
I just found out yesterday and looked up her last post and kind of assumed....hate to say that but it looks that way to me. Makes me sick...we became friends in 2007 as we both were Dr C's patients....
I don't know if y'all know this or not...so sad. What a great person she was and will be dearly missed. http://stei-23784.tributes.com/show/Jennifer-Pesci-88754075?active_tab=condolences ...
Thanks Babylymers Mom, This disease is a fight but it makes us all stronger people. I'm hoping I have one more of abx and will probably leave the line in and do another round just to be on the safe...
I recognize so many names on here from when I was deathly ill but my brain can't process all of the memories. I'm curious to know and catch up on how all of you are doing, what tx you are currently...
PattiB- It bothers me to no end that you are not able to be treated because insurance refuses to pay. I have a question about whether you have looked into something that me Dr offers. He is in...
The Panhandle of FL between Destin and Pensacola. Do you know where Navarre Beach is??? That would be the paradise! I did get better...had a recent flare and am on Vanco again for a few more weeks....
Thanks to both of you! After the high dose of diflucan and aloe wipes, things started to calm down a bit. I went to walmart because they said the had estrogen cream but opted for a generic form of...
Hi Robin, I've missed you! I read the link and think that might be the issue. Im wondering if the topical estrogen cream is rx only? Do you know?...
I have never had yeast issues and always did a round of diflucan between pulsing abx. I take a very good probiotic 4x daily and eat yogurt, etc with priobiotics. As many of you know, I relapsed a...
Hi Badticks! I was infected 22 yrs but was not diagnosed until 2007. I had three beautiful healthy daughters during that period of time. In 2007 when I finally figured out what was wrong with me...
Scorpio, I would definitely double check on taking the hydrocortisone. From what I understand, your levels don't look that low but I'm no Doctor...just going off of my experiences. As you are well...
Hi Scorpio, I'm a Scorpio too! Do you know what your am cortisol levels were? This crappy disease wreaks complete havoc on the adrenals. My lowest levels at my sickest point were <.5 am and normal is...
betterhealth, How long have you been in treatment? Have they tried anything besides the doxy/rocephin? I have been on almost everything that's common out there...doxy, rocephin/flagyl/zith,...
My symptoms started a few months ago and were increased pain, numbness in hands, sensitivity to light and sound, and fatigue. I have had chronic pain but it has been manageable up to this point. My...
Hi Everyone, Well, after being in remission for 2 1/2 yrs and being bummed out about this relapse, I honestly feel that I have the upper hand in this disease so far...knock on wood...I know very well...
Hello Babylymers Mom!!! Funny how you think of someone and sometimes they just pop back up! Sorry you are still having to battle so hard. I thought my situation was a distant memory and I still...
Cajun Girl, Do you still see Dr C? He is awesome! He treated my whole family. I made the drive at least every month for a year. What a great Dr!!! I'm looking forward to seeing him again..wish it...
Traveler!!!! I missed you! Thank you for your kind words. I am sorry too. I was doing so good for so long...really good. I think this is just a "hiccup" and fully expect the wonderful Dr C will get...
Hi Cajun Girl! I'll try to recap my situation as briefly as possible. I was on about 30 supplements. I was infected as a teenager and did not know it until I had steroid injections in my back and...
I was prescribed Gabapentin 3 weeks ago for a herniated L5/S1 (just what I needed in the midst of a relapse of LD), it has helped me tremedously with the nerve pain I had experienced from the disc...
Hello Everyone, Well, it's been a long time since I have been on here. Unfortunately, I have relapsed after nearly three years. I have an appt with Dr C in Tampa at the end of next week. My daughters...
Hi Melody! Yes. It seems that this illness dictates your life and then you are left picking up the pieces. I forget, have you done the IV route or are you still on orals? Orals did nothing for any of...
I had the saliva testing done that Ticker is referring to from ZRT. Everything was out of whack, especially my cortisol. My adrenal glands had nearly shut down. In addition to this, my cholesterol...
Sorry I have been away for awhile. LOTS going on! Good news is my LD has been in remission since July of last year. Same with all three of my daughters!!! Dr C in Tampa is my hero and saved our...
This may be a ? for the heart forum instead of my home sweet home Lyme Disease forum, but I will give it a try because my latest heart tests have come back ok. Ever since my Heparin contamination...
Update... My daughter is doing great on antibiotics now. We had a few bumps in the road when she was allergic to one of the meds. She is starting her third month of treatment. I am in my 8th month....
Hi Everyone, Just wanted to let you all know that my daughter has a very positive Lyme test through Igenex Labs in CA and is starting treatment soon. My Lyme Doctor strongly suspects I passed it to...
Hi Everyone, The is Grace's Mom and I just wanted to let you know that we are monitoring the situation. I am having her keep a journal of her symptoms for when we go to her next Drs. appt. Thanks for...
Thanks Sarita. Thats's my problem, I try to read into things and like I said, I shouldn't have been in the room. I tend to also look at worse case scenarios, because that is what my life has thrown...
Hello Everyone, I am a Lyme forum regular and my daughter was just diagnosed with Lyme as well along with Mitral Valve Prolapse. She had an Echocardiogram to look at the extent of it today. I was in...
Just wanted to thank you all for all the support and information you all have provided. My daughter has had workups, etc since I last posted and all were negative or normal. Her ANA titer was...
Sassylin, I am a regular on the Lyme Board too but I have extreme chronic pain as a result of it. I was reading your symptoms and they are eerily familiar. Have you checked into Lyme Disease? I have...
Thanks Rosie! That's what we are waiting on, the titer along with the pattern. Can you tell me besides Lupus, what other automimmune diseases or on the pattern? MS, ALS, CFS, FMS...? Waiting is...
Hi hippimom! I am so sorry your sone has been ill too. I hope you get to the bottom of it soon. I hope you do not rule out Lyme in his workups of tests. The regular labs aren't sensitive enough. You...
I am a 36 yr old F and have Lyme Disease. I finally got the proper dx after many, many years of pain. I am fortunate enough to have a great boss that allows me to work from home. Due to my LD and...
Forgot one thing.... Your libido (if you have any) will be in the toilet. It is one of the most common side effects....
I have Lyme Disease and was previous dx w/Fibro. I was put on Cymbalta for one year. It was the worst medicine I have ever taken. When originally started, i was sick with flu like symptoms for 6...
Hi Everyone! Sorry I faded away a bit, I have been sick and also trying to get to the bottom of my daughters illness. Her Lyme test was borderline (still waiting on another one) and her ANA is still...
Hi Everyone, I am from the Lyme board but am here because my daughter has a positive ANA-we are waiting for the titer. She was neg for SCL70. She has a lot of Lyme symptoms, but as you all know it...
Just wanted to give you all an update... The Dr. highly suspects Lyme is causing her symptoms and thyroid issue. She prescribed a low dose of Syntharoid and we are moving forwarded with Lyme testing...
I really appreciate all the valuable info! No family history of any autoimmune diseases. I will have all checked for sure if the Lyme comes back negative. The whole reason I started this crusade is...
One thing I forgot to mention... I know Lyme and Lupus are both diseases that mimic many others. I have two other daughters as well who also have some symptoms of Lyme. This is just so stressful...
Thanks to both of you! I did get a copy of her labs a week ago so I could do research. I have learned a lot about labs from having to figure out the Lyme Disease for myself. I am just so confused...
Hello, I am a regular on the Lyme forum, because that is what I suffer from. I suspected my daughter is infected and her Dr did a complete blood panel. She was ANA positive, high protien, low T3,...
Definitely go to the Lyme board. I have Lyme Disease too and these symptoms are very familiar! I happened to be here because I have had severe chest pains lately. Good Luck & Hope to see you there!...
Deana, I was diagnosed with FM 2 yrs ago. I have always been searching for other answers. I have been on so many pain meds I thought I would give TPI's a try. I had 3 injections. The first 2 seemed...