It's been a long time since I have been on this forum. I have bad GERD/LPR and have been on meds for quite some time. I am seriously considering trying to get approval for the LINX procedure. Anyone...
carlohblue You should get an appt. with a GI Dr. and have an endoscope done. It's a pretty easy procedure to go through and can tell you some useful things, such as if you have acid damage to your...
Thanks to everyone for the ideas/input. Alcie and Smurfy Shadow- I have been making a list of foods that bother me but I haven't really payed attention to eating times, except to time food...
Hi Nickles, I was tested for H. pylori and tested negative both a biopsy and blood test. The naturopath told me to avoid dairy and eggs and I'm taking several supplements, plus high dose PPIs, zantac...
Having a bad LPR day today, really bad, almost cried several times but am doing my best to be tough, as it can always be worse! Endoscopy was around 3 months ago, and I have a stroboscopy coming up...
Hi Ashley, It is frustrating, thanks for the support. I know it could be worse, I'm just having a hard time right now. I'm glad to hear veganism is helping you. I am avoiding dairy products and eggs...
Hi Nickles, I hope you are feeling well. I have shown some improvement but still have bad days. I am still on PPIs and Zantac but I am also seeing the naturopath. She has me on supplements and has...
Hi Nickles, I took a little break from the forum for a while. It's funny I was just thinking I should pop-in and do some reading and sharing. Yes, I'm still seeing the naturopath. I'll post again...
hurtandscared, I understand how you feel, I have had various conditions over the years including fibromyalgia and Graves' disease to name just 2 of them. I personally have found the GERD/LPR to be...
Have you had an endoscopy done to see what damage has happened? If not, you should have one, then you will know what it looks like in there. If you find out no Barrett's. that might help you relax...
Well, you have a great attitude, Jesse. I'll be sure to think of your post when I'm having a bad day! KatherineG...
All good to know and worth trying, thanks Jasmine8....
Hi Cme, Well, I'm on protonix 80 mg/day and 1 zantac 150 at night. Currently, I'm trying not to take much else other than some supplements and the occasional tums. I have used Gaviscon and it seems...
I don't know the max for PPIs but I have read and heard of people taking 80 mg per day. I take 80 mg per day right now for LPR. However, I believe my Dr. plans to reduce it after a few months. Sorry...
PPIs can cause changes to the way you digest food. I have had softer stools on these meds also. Definitely mention to your Dr. I don't have a guess on the "seed things". Good luck. KatherineG...
Hey Ashley, I don't really like discussing it either but it's hard to avoid food like that in a public/party type of setting without saying something. I've been speaking up but trying to keep it...
Nice post Jesse. I've been on PPIs since June but was only put on the extra high dose in early August (80 mg PPI/day plus Zantac at night). I've been incorporating lots of lifestyle changes too, we...
Good luck with your upcoming appt. I hope you get it figured out....
Thanks, Jesse. It's worth try!...
Good luck with your gastroscopy!...
Thanks, jasmine8, I'll have to google that. In what way has it helped you?...
I'm sorry to hear this, Aeshley! Do you have any idea what might have triggered it? I read before that you recently went of PPI meds...Nexium I think? How long ago was that? Could this be acid...
I've noticed that my LPR acts up when I exercise. I'm only power walking and stretching right now, trying to go low impact and not bend much. Anyway, I'm already on a PPI twice a day and Zantac...
Very cool!...
I have LPR and doses for that are higher. I am on 80 mg total PPI per day and 1 Zantac 150 at night. If I read your e-mail correctly you are also on 80 mg total PPI per day and 1 Pepcid,...
I think if you have any concerns about damage occuring without you feeling it, you should press for an endoscopy from GI and also a scope to check out your vocal chords from EN&T. These are...
As others have already posted, silent GERD is LPR (laryngopharyngeal reflux). I have this. I was misdiagnosed with cold/virus for months - might have even had a couple of colds - but turned out that...
Thanks, Chuck and Jesse. This LPR thing is tricky, I agree with you Chuck. I've been trying different things, it's a chore for sure. Oh well. Linx, huh, I'm not familiar with that but I'm going to...
ChuckT, How long have you had LPR? So far, I am finding it quite tricky. KatherineG...
Sewfun, Jesse is right if you have concerns about LPR, you need to see an EN&T Dr. Basically, you'll need both GI and EN&T Drs. I'm going in for a stroboscopy in 2 months. Jesse, how long...
Finally got to the Ear, Nose and Throat Dr. As many others on here have experienced, I have acid damage to my vocal chords :o( I also have acid damage to my lower esophagus. Knew that already from an...
Best of luck, Rita! Keep us posted!...
Thanks, Nickles. I agree it is hard to wait. Patience is a necessity with this condition and I find it hard to be patient sometimes! Talk soon. KatherineG...
Nickles and Emu1984, Does the juicing work? Do you do this instead of eating solid foods? I don't have a juicer but am willing to puchase one if it is something that will help. KatherineG...
Hey Emu1984, Happy to share the info. I'm just looking into anything that might work. LPR is no fun, I have symptoms everyday, as do many people on this forum. I'll keep you posted on any other info....
Right now all she is testing for is the food sensitivities. She felt that was the 1st logical step and then we'll proceed from there. She has me on "Wholezyme" digestive enzymes from Whole Foods...
I can't touch those foods so I understand how you feel. You are not alone!...
Thanks, Everyone. The sushi experiment went so-so. I did get some symptoms from it but not that bad. I only ate 6 small pieces. So, I feel like I can eat it every once and a while, better than never...
I was taking "Wholezyme" already so she said to keep doing it. It comes from Whole Foods Market. It is a vegetarian capsule and contains Bromelain, Papain, Protease-Acid stable, amylase, lipase,...
Thanks, Ashley! I love all sushi and sashimi and I've been missing it so much! I hope I have luck with it, as you do :o) I was concerned about the raw because my stomach pH is low due to high dose...
I love Sushi and have not had any since my diagnosis. I'm going out tonight and I'm going to try it (a little afraid). Anyone else out there like sushi? I know we are all different with regards to...
Hi Nickles, I told you I would let you know what the Naturopath suggested. I had my 1st appt. yesterday. She took blood for IgG and IgA food sensitivity testing. She told me many of the people she...
Nickles - thanks for the link, I'll look into it. Alcie - thanks for the info, yes I am keeping track of foods and my reactions to them. I seem to always have some reflux but I've found some foods...
Hi Nickles, Yes, I am going to go to a Naturopath to see if I can get some good suggestions. I had a friend with moderate reflux and it helped her eliminate it. Mine is more severe than hers was but...
I would definitely just try the walking (not running, too jarring) and skip the crunches, see if it helps. Maybe you will have to walk at a more moderate pace, if you are speed walking? At least with...
Hi Joy, It's 20 mg protonix 2x per day and Zantac 150 2 x per day. The Zantac is sort of supplemental and can be taken or not but I seem to need it. We tried 1x per day on the protonix and it didn't...
I bet they were, Joy! I realize I'm probably in for the long haul. Which is why I came looking for some advice and info. I like the Dr. I saw but sometimes I think people can help each other in...
Hi Alcie, Well, I'm in the process of trying to see what makes it worse. I seem to have problems every day, regardless but I'm trying to make a note when certain foods make it worse, for example,...
Thanks, Joy. You're right. I need to start to just relax about this whole thing. Time will tell. KatherineG...
I'm on twice daily PPI and twice daily Zantac 150, plus strict diet, trying to see what sets it off, which is a lot. It's way early for me in the whole process, but some of the articles I am reading...