Hi Mike, The doctor on LI who does MUSE is Dr. Stavropoulos from Winthrope. He was doing clinical trials last June, and I know he is the only one on LI who performs MUSE. My 17 year old son did not...
That would be great! thank you for sharing that info. I wish you a healthy, reflux-free forever!...
Mashed potatoes, pasta, boneless flakey fish,eggs well cooked veggies and fruit but not celery or pineapple. Did they give you a food guide? If not, go to the Esophyx GERDhelp.com site...there is an...
No problem, glad you are feeling better. Did he give you a comparison of longetivity for both procedures? We saw him in August, and he wasn't doing Muse yet. We went with TIF because it seemed like...
It may be hard to find many who have done this procedure. The first MUSE procedures were done this past summer on LI, NY. It is relatively new around here, but I assume the diet is similar to the...
We saw Dr. Starpoli in August for a consult for TIF, but went with another doc in NYC for the procedure. I guess he started doing MUSE now? I do not know about "eating" yet, with the TIF you can only...
Thanks SharonZ. Unfortunately, I already spoke to the surgeon's office, and they said to just stop taking it, no need to taper. This is a bad idea, as I already know it needs to taper down.I have a...
Can anyone tell me how they successfully tapered off their PPI without rebounding acid? Our surgeon was vague about the tapering, but my son gets a lot of rebound acid off the 60mg of Dexilant.He is...
Hi I am also from long Island. My son's GI is out of LIJ, I was wondering who you used for the Nissen? We just did the TIF procedure in NYC 12/8/15, my son is only 17 so I didn't want to start off...
My 17 year old son had the TIF on 12/8/15, just before you. They stressed no lifting for several months, but no stairs was never even mentioned. He is doing well, I hope that yours works out well for...
Make sure they offer you numbing gel in your nose prior to these tests..it is a quick acting topical that makes the insertion of the catheter into your nose MUCH easier to tolerate. The first time my...
Readingclaygirl, My son is also 17 and is going to have the TIF procedure for his reflux in two weeks. We are also in NY. can I ask what hospital and surgeon you saw? I am interested because you are...
Anyone here who had TIF recently, can you share your post op diet and lifting restrictions your MD gave? Our doctor is being somewhat vague, handed me the Esophyx pamphlet. My son is scheduled in 2...
Hi, our gastro is pediatric, and he routinely places a 24 ph impedance probe while the kids are under endoscopy anesthesia so it is easier for them. It is a wire that goes up your nose and down past...
LAWCHICK, Well at least you now have some answers! On top of feeling terrible for so long, you now know what is causing your issues...knowledge is the power you need to fight! So glad you have a plan...
Andy1986, Unfortunately, he has Hypersensitive esophagus as well as LPR, so I'm not too optimistic. Momof3beauties,I hope you feel better today....
We are waiting to schedule this test for my son. I was told 4 days, but I have seen several posts where people said the capsule stayed almost 7..I think most people seem to have it 4-5 days. I hope...
Chris711, Some people on the FB group I'm on for LPR/GERD gargle with 1tsp baking soda/8 oz. water. My son can't stand it, so we have begunto use carafate liquid suspension. His gastro dr wrote the...
LAWCHICK...My son's manometry was a success!He did the test like a Rockstar! The doctor was phenomenal, and the nurse who assisted was great. If you are interested,the doctor is Nicholas Gaultieri...
Yes I am sure it is 400 since 2009...he was one of the first surgeons to start performing TIF in the US. Our surgeon in NYC has done about 65.I considered going to Wisconsin just because his success...
scorpio, I posted on the other thread to sixNess about Dr. Janu in Wisconsin. Someone I know who had her TIF done by Dr.Peter Janu, said he has done over 400 TIF and only (I think) 3 re-do surgeries(...
thanks scorpio, I'm sorry yours didn't work out. I have decided to go with the TIF because my son is only 17. If it is successful I feel like he can still have a somewhat normal outcome. The...
I know some of you think hypersensative larynx is a cop out label, but my son has severe LPR and has also been diagnosed with LSN (laryngeal Sympathetic Neuropathy). Aside from the usual LPR, he also...
Hey LAWCHICK, I am so sorry that happened to you. My son had a similar experience with the ph test. He is scheduled to do his manometry next week at Lennox Hill Hospital. I say this because I believe...
TheSIXness, I'm not trying to endorse any doctors, but have you seen a Dr. Peter Janu in WI? (I hope that is not who did your surgery). I only ask because I have been researching for the last 6...
Hey how are you doing Joedirt? I hope you are recovering well.Are you experiancing any reflux at this point?...
That's great! Did your surgeon give you any info on how long the tif was expected to last? I'm hoping to get at least 5 years out of it, if not longer...I'm not sure if it supposed to last forever!...
Bethann1984 Do you mind telling me what the "anti sickness" medication is that you were prescribed? The Dr. told us to give my son Erythromycin for the gastroparesis, but he does not tolerate...
HI ! We have had good results with gargling with 16 oz of ph water mixed with 1 teaspoon of baking soda to neutralize any acid/pepsin irritating the throat.I have also seen several posts on other...
Lawchick, That is awesome! It sounds like you have found a doctor you can trust...that's the first step! Sorry your experience with the swallow was not great..we had a similar experience during my...
Hi joedirt25, Our surgeon is Dr. Starpoli at Lennox Hill Hospital inNYC. I am glad to know about the carafate..is it the liquid? Metamucil or Miralax stirred into liquids works pretty well after...
If you are having increased GERD isssues after you wake up, you should raise the head of your bed several inches, or get a sleeping wedge if you haven't already done so. This may help at least after...
Hey Lawchick, glad to see you are done with that last doctor...wishing you success with this new one!My son had a barium swallow and they remarked the HH was "small to medium sized"...very...
Joedirt that's great! Please keep posting your progress..I met with our surgeon last week to see if my 16year old son is a good candidate for the tif...I have been doing research for about 6 months...
Hi I just wanted to tell you my son has recently been diagnosed with Laryngeal Sensory Neuropathy. We thought the throat and tongue irritation and swollen sensation were from the LPR, but now it...
Has anyone used the Peptest to determine if there is pepsin in their saliva? It is not available here in the U.S. but it can be ordered from U.K. for about $170. I am thinking about trying it to...
Lawchick, You could also ask the new dr. office to fax you a release of information consent form.If you fill it out and fax it back to the new doctor with the name and number of the old office, they...
I just joined this site a week ago, looking for information to help my son. If you look again at my post, you will see I am not suggesting she do the diet....I was suggesting she look up the doctor...
Lawchick, If you live close to NYC have you looked up Dr. Jamie Koufman? Many people on the GERD forums have been talking about her "Dropping acid Diet", so I looked her up to see what I thought. I'm...
I can sympathize with your frustration! I have been dragging my 16 year old son to many doctors over the last 18 months to try and get to the bottom of his reflux/throat/tongue issues.We get a little...
My 16 year old son has this from LPR. They can be from a virus in your body or some other reasons as well, but mouth/gum sores are definitely on the LPR list....
Anyone know if it is possible to vomit after a tif has healed? i never asked the surgeon this at our consult. I just read a post on a GERD forum from someone who got a stomach virus a year after her...
Hi Lawchick, I just had this conversation with my son's new gastroenterologist! My son was up to 80mg of prilosec, and then he was switched to 60mg of Dexilant. He has been on it 3 months. It did...
I have been researching these as well for my 16 year old son. I have found two chat groups on FB ..one each consist of people who have had LINX, and who have had or researching Esophyx tif.Lot's of...
My son gets mouth sores from the LPR...he also has almost no enamel left on his teeth from the acid coming up. Canker sores can definitely be from the reflux, but it can be from other things as well....
Wow, definitely worth trying! Thanks for posting the info....
CHIPPER100, I saw your post on my thread regarding my 16 year old son. I am so glad your son's surgery went well. I can only imagine your heart ache for 12 years watching your boy suffer...I am ready...
CAGU, I will certainly see if I can find a naturopathic doctor in my area...I am looking for as many options as possible. Thank you....
Thanks for the support. I'm also researching MUSE procedure (seems to have longer lasting outcome than Esophyx tif) and Stretta. It's difficult to find objective info since most of it comes from the...
Thank you for your reply. I actually have had him undergo many many tests. He has a small 2cm HH,and a low functioning LES. We are waiting for the results about gastroparesis, but he is very...