I am currently taking entyvio infusions every 2 months and it is working about 80%, so I still have some UC symptoms. I just recently tried CBD oil and it is working! I purchased a bottle of CBD...
Hi Quincy, Normally when I eat just about anything except for bananas, I have cramps and bloating except with this burger. I can eat one and actually feel better the next day. This burger has the...
I hope I'm allowed to post this, but if not, maybe you can Figure out the brand. I recently tried the Beyond burger and it has a positive effect on my bowel. My food options are limited these days,...
I tried gatorade. seems a bit better than water. will also try the drip drop and pedialyte. Thanks for your help. really appreciate it....
Yes, dehidrated. Can't seem to get the fluids to stay in. Not sure if related to colitis.Tested negative for diabetes....
I havent read through all the comments and not sure if someone already suggested this but I would recommend chicken broth. It works well for me....
Before I get my entyvio IV i receive a saline IV, and this saline on its own really wakes me up and gives me energy. Now i have to find a way to get saline I've when I'm feeling low energy. Anyone...
I did see that the US Department of Defense was a sponsor and wondered why. Now I know. Thanks for pointing this out. I'd love to do my own research and create a low-cost solution. I'm not educated...
They are replicating all the flora (or most) that they find in the stool. I'm no doctor but I think it is substantially more advanced than your average Pro-biotics research. But I agree with you in...
Chewing gum to cure the breath, rots my teeth. Can't remember the name of the gum (memory is gone) but my dental hygiene is good. But, yes will check for h. Pylori. Not sure how to check my sinuses....
Just thought i would post this in case some have not heard about the research going on. Dr. Allen-Vercoe is creating a multi-species probiotic from her research from FMT. This may be in pill form now...
I get really bad breath when I flare and I cant detect it myself. Makes it hard to keep a job. Anyone else have the same issue and is there something to take for it? I try Starbucks mints, but they...
I just thought that the medication was weak because it was left out too long or maybe other factors. Same as missing a dose. I'm kind of a suspicious guy too. The cost of the drug is so substantial....
Hello, Entyvio has been working great for me for a year, but the last injection did not go well for me. I had the sensation that I received nothing more than straight saline solution. Now after month...
Hello, I have been on Entivio for 1 year now and it is working great!. It has taken about 8 months for me to feel really good. And now I am symptom-free! The only thing is I cant eat trigger foods,...
After seeing doctor yesterday, he says it takes a year to normalize cortisone level after tapering off. Will.wait for blood test. He also says there is medication for energy, and said he's discuss...
I am also suffering from severe fatigue for most of my life with UC. Im wondering after reading this thread if it may be low cortisone. I've used prednisone often in the past and while I'm on it, I...
Hi everyone I originally suffered from not being able to swallow my food. The food would stick in my chest and felt like it was being forced against a blockage. I would have to throw up to remove the...
I want to try germinated barley foodstuff. Where do I get it from? Is it something from the farmers market? Can I buy in powder or pill? Tapered off prednisone and exhaustion is setting in. I can get...
I've always had success getting high dose of prednisone, 50mg for 5 days , then tapering off by 5mg every 2 days. Some people are saying that it's best to become stabilized before starting entivio....
I'm going to see doctor soon and will ask him about the loading doses and 2 weeks apart. I think me being at 8 weeks kind of defeats the medication after only 3rd dose. 2 weeks makes more sense. I do...
Hi FlowerGal Glad to hear you are feeling strong! How are you feeling today? Its 2 weeks into my last infusion of April 10th. The first week after April 10th, I felt really well, solid formed large...
Hi Flowersgirl. My first 3 infusions were 300mg and at 0,2,4 weeks. Not sure of the mg of the fourth infusion on week 8. Have you had any improvements after your last infusion?...
I just had my third infusion of Entyvio April 10. Since my March 14 infusion, my symptoms slowly started coming back and the first week of April, I had joint pain and fatigue and some blood the day...
Hi all, I had my first Entyvio shot Feb 27 and second shot march 14. I didn't feel much improvement after first shot and a little blood. Just before the second shot i was getting loose bm and...
You guys have convinced me, I have appointment this week to give doc the ok to go on Entyvio. Im having blood tests and chest xray and skin scrape(TB test). It makes a big difference to feel that I'm...
From researching the big long thread and other info on Google, it looks like Entyvio works well for most but lasts only 5 to 7 years and some are saying that Prednisone is no longer effective after...
Anyone have experience with Entyvio (vedolizumab)? Side effects? Does it increase energy? Do you feel 100%? Sulphasalazine occasional prednisone Losing muscle mass while in flare Tecta for swallowing...
Scope (about a month ago) showed mild inflammation left side, after being off prednisone for 2 weeks, which is odd because of symptoms. Good point about the disease getting stronger....
im on second doctor since i was 15. Current symptoms are joint stiffness and pain, very tough to walk and work. BM 10 times/day. Exhaustion. Cant think straight. Muscle wasting and muscle pain like...
Ive been on cortisone enemas in the past, 20 plus years ago and they worked initially but after a decade their effect slowed. Never tried mesalamine. Ive had stool tested and trusted doctor to cover...
You dont necessarily have to go vegan but avoiding beef has helped me a lot. Chicken and white rice for me calms down my UC. I once went for 2 month eating only KFC chicken fries and chicken gravy...
I have had UC since i was about 15, now 53. Gone from asacol then to suphasalizine and used prednisone for flares over the years. Now in the last couple years the sulphasalazine is not working. In...
I have been tested for diabetes and doctor says I'm ok. My blood pressure is ok. brucen36 what is SCD?...
I guess I should say light headed instead of dizzy. I feel weak and light headed when getting up from squating. Drinking water helps. And maybe Gatorade or electrolytes will help. Also have sore...
I have a bit of a flare no blood, but some loose stool. Boswellia is keeping things in control. Bloodwork shows low vitamin b and iron. I don't eat beef and very rarely eat any other meat. Mostly...
I've also suffered hair loss. UC 35yrs. Prednisone 10 yrs back currently on sulphasslazine....
I have had Ulcerative Colitis for aprox 35yrs. In the last 2 years I have experiences dehydration to the point of getting dizzy. I've had to drink more and more water a day to stay hydrated. In the...