Hi Guys What a week! First pain clinic appt on Tues....Did not seem to go very well. Saw a Psych, a physio and this 'pain specialist' who was older than the hills. I saw him for 10 minutes and he was...
Hi Gonuts Usually I get irritated eyes...not blurry though I do have moments where it seems I have a harder timer focusing (I wear glasses by the way). With the legs if i sit too long in a certain...
PALady I cant tell you what a cow laughs like but I can tell you (as i live on a farm) a story about terrifying cows that is...well kinda related to having AS.. We had a situation where we had to...
Im booked for my first Pain management clinic appt tomorrow....one of the things i intend to address is the problem i have about asking for pain meds, either stronger or just through need due to more...
Hey mate. Sorry to hear about your own personal peice of hell.. Its not whining at all. There is nothing else like withdrawals mate. I am on Oxy and MScontin as well. usually you are over the worst...
I used to get pain very similar to that when i first started getting a hammering with AS, but alot of symptoms very similar with the arthritis family. You'll have to work closely with doc/rheumy to...
Dont forget to 'Have a chat with your pain/joints' or as ive said before, send in mr {insert painkiller/anti inflammatory here], joints stop being nasty when he is around...
Shaw That blows mate. Its so hard aint it? Ive get a pack of 20 5mg oxy for B/T, and require about 3 for releif and it is IMPOSSIBLE not to sit there and be in any kind of pain and not take em. I get...
PAlady I am going to point to my back and say 'Jeb' which is Thai for pain (or so i have been told. It may mean I am a git or something similar Sometimes with people who know me and know what i got i...
I often think about writing about my experiences with pain. I wish I was more articulate. Id love to do it but i just wouldnt be able to find the words to express it. how can you? Its so hard to...
couch With the money the chinese make from us buying all the rice they could then afford to build the worlds biggest microwave :)...
yep. was feeling pretty ordinary up till then! Heres a more recent one... Have spent the last week organising with the Thai narcotics division (still have yet to receive approval) to take narcotics...
No worries mate The thing I dont like about TNF blockers is that they really don't know about effects of long term use as they are relativley new....the longer im on em, the more it plays on my mind...
You all might find this silly but we have to have a laugh sometimes right? I was participating in one of the posts where the idea came up to have a serious discussion with your pain/aching joints,...
Hey Jag Whats DDD? I was normal, healthy and fine at age of 14. Had a trail bike accident one day (pretty minor, a few scrapes) 2 weeks later i was at school and had this recurring pain in my knee,...
Good point. I avoided having the yearly flu shot this year as i had similar concerns. I reckon the fact that the biologics make your immune system suppresed might make you get sick from the vaccines...
Yes I thought it would As my doctor says, you need to laugh about these things don't you? and it actually feels pretty good to be able to. and, yes at the moment as I am sitting at my desk at work my...
If taking some pills means you can have quality of life with yourself and your fam, looking at it that way doesn't seem to make dependency as bad as it sounds anyway, does it? It is (for me) a very...
Yeah its not nice when you have no choice...you feel yourself sliding into dependency but you have no choice. I ALWAYS have to remind myself that I cant help it, its a side effect of the disease, not...
haha no worries. Actually, funny story, as we all know once we become familiar with our diseases we tend to abbreviate, you know, AS, RA, Anky Spond etc. Well, The word Sacroiliac for me is an...
I thought there would be. My initial interest in the patches was because I thought they might be topical in nature and focus on the area as opposed to just being absorbed through the skin and running...
Man I think I have it bad but this Lupus business sounds a whole lot worse. My fiance sometimes freaks out a lot when i am experiencing bad bouts of pain, and its always the same reply: Look I know...
I to am finding a low dose of SR Morphine to be pretty good at bringing down the 'blanket' pain levels, thou breakthrough is still a significant problem for me. and speaking from experience, 120mg of...
Isn't there some kind of anesthetic patch that you could put over the area that hurts/spasms to numb it? if there is not there should be. I would really like to find a better way other than just...
My rheumo has suggested a norspan patch,(buprenorphin?) I hear from other users that it pumps its 72 hours supply into you within 48 hours then you get nothing..I'm a bit hesitant to try those patches...
indeed, this post really made my afternoon by the way I'm of the male persuasion :)...
Hey mate When AS is really giving my back a flogging (and its a hard flogging it is by crickey!) I find the following non med methods to be pretty good: Hot water bottle as opposed to a heat pack or...
I'm going to think up a name for them all. On a serious note, This has probably been the first time I have viewed this fusion in a humorous way, it seems to have taken away some of its power over me,...
Time for more horrible puns.... Im just glad the rest of my joints have a bit of 'backbone' in the matter lol. When they get to nasty I send in Mr Oxy, he must be quite a nasty fellow because they go...
LMAO I think they got jealous that my spine was fusing, so they decided to follow along...or maybe it was peer pressure. or just being 'spineless' ahahaahaha...
Hi Ready I am your age and Im sorry your having trouble! I'm not sure about the testing process and whether that type of test you had picks up other types of Arthritis? I know with mine they...
Hi Cat I feel for you. Just yesterday i was in tears because I took something my doc said the wrong way about pain killers. I to have to take oxy plus morphine to manage fusing joints. I am still...
I tried it to... Turns out my Sacros aren't very nice people to be talking to but they got a stern lecture anyways lol...
I'm going to give my Sacro's a good lecturing tonight lol...
Hi Cookie thats good news about his eyes And of course will keep you posted about the Pain management Clinic, think i am more nervous about that than my wedding at this stage!...
The forums at drugs.com deal a lot with stopping or tapering or weaning different types of drugs, different methods etc though I notice a lot of the posts relate to people who are abusing...
Ouch.....Its not a nice place when they are still not sure exactly what it is....can be quite scary, its just always important to remember that they will find the root of the problem then nail it...
Yeah look I feel I have to say my bit about Tramadol... I was put on that for quite a while and it was really the first of the heavier type of painkillers that I was prescribed..I found it to make me...
Hi Golitho I just rang the embassy and asked them about it. apparently I have to go to the international hospital with a letter from my doc and get prescribed the meds over there, but cant take them...
Hi guys, I'll keep this short as poss but would love some feedback from ANYONE who has been in the same situation. I'm getting married in 2 weeks and as a surprise we are being sent to Thailand for...
Wow Bandit, that's a lot of Oxy. I'm going through multiple fusions and I get 5mg for breakthrough on top of 15mg MScontin twice daily and am also having dramas with muscle spasms. usually 10mg Oxy...
I'm not to sure cookie, The problem with the auto immune diseases is that so many can have similar symptoms so it can be very easy to mis-diagnose and very hard to pin point the main problem, and a...
As far as I know cookie lupus is pretty closely related with the arthritic family - they are auto immune diseases and lupus isn't the only one that can be linked to a positive ANA ..I know there is a...
Laura I to was nailed when I started on Methotrexate.....Absolutely munted!! Though I know people who swear by it, I got so sick, just thinking about it makes me want to hurl. you say you feel fluey...
Cookie Maybe hubby should be on something sustained release? would last in his system longer and he could then control his breakthrough pain with hydrocodone much easier. see a pain management...
Hey Red Yep, that sounds exactly like what is happening. Since I've got back on the valium the pain levels have dropped a bit, but more noticeable is I certainly don't feel as tensed up as I was, so...
Hi Cookie AS is Ankylosing Spondilitis - Its a nasty form of arthritis that attacks the spine and sacroiliac joints, and in alot of cases causes the joints affected to fuse together. I am going...
I was put on Methotrexate for a while, though they made me very ill, like a zombie really...In Aust with the PBS if you 'fail' on a biologic they don't let you re apply for it for 3 years or...
Skrape I know this is a bit off topic from your post but I noticed you are on Fentanyl Patches. I was told about those the other day by someone. How well do they work to control your pain?...
Thanks for the tip, I will be sure to ask them. I was told MScontin is a great painkiller for nerve pain but my physio said I really should try to get on something that works well for 'bone pain'....