steven1121 Hi there Thanks for getting in touch. Feel free to tell me your story, as horrible it is we have this, its nice to know someone out there had the same ish thing and be able to chat to...
Thankyou :-)...
Hi there Jojananxiety, Thanks for posting, but what your decribing is a visiual aura also known as ocular migraine of which i know alot about. What you describe having is what ive been experiencing...
Hi there. Have a read of my past posts, the ones i have actually strated. i suffer with chronic daily migrianes, cfs and daily visiual disturbance. What you say sounds a tad like me. I have visual...
Hi there, have a read of my previous posts, it sounds very much like you have chronic migraine, your neuro should of found this. what did he say?...
sending you a masive amount of love, please look after urself, thinfs can only get better, i too am at a extrmemly low stage in my life, with pain and quality of life, everything i do is difficult,...
Ive been having botox for over a year. the 1st time it took me a month to kick in, the 2nd time it took 3 weeks and lasted longer, each time i have it it gets better and better, now lasting over 3...
Have you not been offered botox? Sorry this is short, but struggling on comp at min x...
Hi there please read my previous posts, i have daily constant visual disturbance, i suffer with chronic daily migraine and my vision is a rare form of migraine Is your vision everyday and constant??...
Hi there I suffer with Chronic daily migraine, daily visual disturbance and chronic fatigue syndrome/M.E Ive been unable to work and basically house bound for 2 years, things are extremely hard,...
I am exactly the same! no life, havent been able to work for 2 years, cant see my freinds, cant go out, its all so hard, and nobody understands, so so sad, depressed! Life is no more a life All i can...
lab01343 Hi, we sound very similar, its now been 6 ish months since i posted this topic. I now have the most amazing consultant, he is brilliant, knows everything, is the top of the top in London. I...
Hi there, thanks for posting, i am reading what you have said, im just really really suffering past 3 weeks and the comp is just awful to look at, therefore havent replied. Thanks again for posting. x...
georgem Thanks for the post but i have had all bloodtests done that can be done, mri's etc etc, and my magnessium my magnesuim levels were fine. I still tried the tablets and a spray anyway just...
Hi there, i am also in same position as above, i sufer with chronic daily migaine with vertigo, have both all the time, everyday. I have just had botox treatment, a month ago and i would say the same...
Hi all (update on botox) Well after my posts a few months ago, i have now had my botox injections, 33 injections all over head and neck. It has now been 1 month since my treatment, the 1st 3 weeks,...
Update: i finally have my appointment for botox :-) :-) :-) Ive pinned all my hopes on this, Hope to god it works, or eases, just something. 2 weeks to go till I have it. I shall keep you all...
Hi. sorry only just realised you replied, its this site, it doesnt email to let you know. Thanks for all the info. Ive gone and booked a app and im having it done in a few weeks :-). i managed to get...
oh, sorry :-( didnt realise...
Hi there, I normally post in the migraine section but today Im posting this for my partner Tom: I'm sorry but I had to edit your post. We do not allow fundraising here on Healingwell. ...
Hi there, im sooooooooo sorry i didnt get back to you :-( i dont get emails when i write on a post and someone replys etc, silly site lol. So i only relised today, when i was having a look through...
Specialk97: hi, sorry for the late reply ive been trying not to look at the computter very often as it is def making me so much worse. Well on a possitive note, it seems like this guy knows what he...
Specialk97: how is the botox going? :-)...
aw im sooooooooooo sorry to hear your story :-( i really do feel for you. Just wanted to write something to you. I am in the early stages of chronic daily migraine with visual disturbance, i have had...
THANKYOU EVERYBODY, ALL COMMENTS AND ADVICE IS TAKEN ON BOARD, AND VERY MUCH APPRECIATED, SORRY I HAVENT BEEN REPLYING, HAD A VERY BAD WEEK WITH HEAD PAIN AND THE COMPUTTER IS THE LAST THING I CAN...
ANYBODY THERE?...
I really am hoping it works!!!!! thanks for your info. I live in the uk so its very different how it all works over here. Our nhs (which is our National health system) should normally pay for it, but...
THANKYOU FOR THIS POST!!!!!! thats amazing news that your headache's have gone, this is just the post ive been looking for!!!!! :-) this is exactly what i need to hear. i suffer with chronic daily...
outdoorzgirl: I know what you mean, i really do, i also have the aura/vertigo/visual disturbance, many names for it, Ive had everyday it for a year now and its just awful isnt it :-(. I suffer from...
I suffer with chronic DAILY migraines with visual disturbance and have done for a year now, this is extemely disabilitating-im stuck in my house all day everyday in pain, i cant work, drive, struggle...
Hi there people, Just a quick update and to say thankyou for posting on here for me :-) Well ive spoken to my doctor, she thinks it may be Fibromyalgia or chronic fatigue, she said there are tests...
tmjpain: hiya, yes we are ladies :-) lol. Im so sorry to hear about your horrible times :-(, im exactly the same i wil with a ice pack attached to my head, day in day out. Opticle nerve block that is...
I really do hope that it works for you, try and look at it that if it worked before then theres hope to work again :-) Lots of hope :-) Ive had such a awful week this week with pain, all because my...
ah same back to you Specialk97, I really do hop the botox will sort you out once again! yes im in the uk, at the min our govermonet has stopped the funding for botox so the only way i can get it is...
Thats exactly what i am scared off too! the fact people are saying they have had chronic daily migriane for 20 odd years. I cant handle a year of my life like this being stuck in my house, unable to...
BigAl83: hi there, thanks so much for posting, very much apreciated indeedy :-) Im starting to think as you are, coming off all meds would be great and see what happends without any meds, and just...
Specialk97: Hi there, thanks for posting, awww another one of us poor people suffering with this awful illness!!!!!! ooohhh brilliant someone who has had botox-and with a positive outcome. thats...
Thanks for posting metairieclark, so happy to hear your having good days :-) thats amazing news. thanks for your info, greatly appreciated :-) HI ALL, JUST A NOTE TO EVERYONE WHO HAS TAKEN THE TIME...
Hi Thanks for posting both of you :-) I dont drink any acoholic drinks at all, very much wish i could lol, i am more or less house bound due to my migraines, i suffer with daily constant migraines i...
ANYONE HAD BOTOX INJECTIONS THAT HAVE ACTUALLY WORKED???? ANYONE! :-)...
Violet Rose: HI, thanks for posting againg, your words are so wise :-) and so helpfull, it sounds like we are simular! Yes i was told by the consultant that over sleeping can make the migraines...
Posted Today 3:29 AM (GMT -7) Edit post Delete post I suffer with chronic DAILY migraines with visual disturbance and have done for a year now, read my other posts if you are interested as I have...
Hi, i am now diagnosed with chronic daily migraine with visual disturbance, which means i suffer with migraines all day non stop and also have visual distrbaces/vertigo (as its known in medical...
I suffer with chronic DAILY migraines with visually disturbance and have done for a year now, read my other posts if you are interested as I have recently posted detailed info, it may be helpful all...
Violet Rose: Hi, thanks for the advice, very much appreciated, anything is. Yeah my consultant has told me to go through trying all the triptans as all work differently, just as you have said :-). I...
Thanks Pain53 :-)...
Gator4life: oh i really do feel your pain!!! ive had a read of all ur past post's and im with you matey. its extremly frustrating isnt it! i also have had pain in my head for a year now, non stop and...
well ive been to the doctors today and as per normal it was totally busy, running an hour late. Im stuck in my house day in day out and the tiny bit of time i get to talk to a profestional about my...
Jweishmother: Hi thanks for responding, Ive just been taking the daily presentitive at pressent, at the min im on topiramate, which hasnt helped my head at all, but ive been very scarred to take any...
Violet Rose: hi, thank you so much for your kind thoughts and words, its amazing how nice it is just to hear that theres people out there that are going through the same thing and get it! and have...