Great question you ask, I too asked the same over and over. When I decided to get tested I figured my body would give me answers. In fact it did. I had past symptoms return although not nearly as...
Sounds like you're doing the right thing by researching and asking questions. In my case, a relative was diagnosed with MS and I just kept telling myself it had to be lyme disease. I always read how...
a helpful thread for sure. I remember when I questioned having a bladder problem. My neuro said he doubted it because my MRI's didn't show any lesions that would suggest that. Which made sense. Since...
peaceintruth I noticed your other posts and read a bit about you. I wish you well. Like you, I had numbness on my left side along with losing coordination in my hand (and I'm left handed). Luckily...
well, it's not an easy answer....I've been on different types. Minocycline is one and cyst buster abx. Tetracycline, Rifamphin, Plaquenil, Tindimax to name a few. peaceintruth- Great name...
rae599, Sorry to hear you're feeling lousy. Maybe I can offer some advice to at least rule out Lyme disease. btw, I have MS and lyme disease, so although I'm not a pro nor doctor I've done my fair...
Thanks Rhonda, I certainly don't ever want to force anything on anyone. It took me a long time to even consider lyme disease and can understand anyone with MS turning away from this. I guess I would...
Rhonda, I respect your reasoning about us with MS being stressed, spending lots of money getting diagnosed etc, I've been there. But I do have a question about where I belong. I have MS and Lyme...
Hi Babyplace, I'm on Biaxin and Plaq for almost a month now. I am having really good results: my knees feel soo much better and my numb toes and feet and ankles are also improving. With LD we can't...
thanks for that Curley, as I read about Plaquenil it's a low percentage of us who actually have any vision problems. and this after yrs on it my doc said it's a good idea to have a "base" a starting...
no problem! It's sometimes frustrating when I notice people give antibiotics a try; yet continue steroids...they rule each other out-- Also, if you begin feeling lousy if you try an antibiotic,,don't...
CaMama, If you're having a flare, maybe you can talk to your doc about adding Minocycline? again, making sure to eliminate the steroids. Hoping you feel better....
I found it interesting that a script would say Minocycline for RA. Quick story: a relative of mine has suffered from RA, Fibro for years; she did get a ELISA lyme test and it was negative (of...
thanks KrissyNTexas blukygrl- my doc did mention I could have GI issues; luckily for me the bugs didn't take up residence there.. My minocycline script mentioned it's used for RA...have you ever...
Ticks carry the lyme bacteria, but there are lots of co-infections that go along with it...and these are, well as bad as Burgdorferia Borrelia..some of them are: Babesia, Bartonella, Mycoplasma,...
auroara, Many of us don't remember a tick bite or rash; this is more common than you'd think. Without seeing a rash makes us doubtful that this bacteria could be our problem. I never had a rash or...
How about it, I couldn't agree more! Sounds just like Neuros...some say you MUST have a Spinal Tap for a MS diagnosis,,,other say not needed, not very reliable! Yes, Plaquenil is for malaria. But in...
thank you both for sharing your experiences. I'm not really concerned that I will have an eye issue; just thought I'd ask the question. It's nice to hear that your both finding success.. I have MS...
Hi to all, I'm from the Lyme board, and just starting Plaquenil. I was curious if anyone here can tell me if they found it helped. I was also curious if their doc suggested a Visual Field Eye exam as...
Zilpha, Geez, sorry to hear you have so many days of feeling lousy! Do I think you should be retested for Lyme Disease? yes. Actually, you should find a doctor who we call Lyme Literate Doctors in...
The way conventional testing goes: if you have a bulls eye rash and get and ELISA immediately you have a 50-50 chance of testing positive. Research found even a percentage of these folks test...
It is unfortunate that we have to go through "so" much in order to get on a road to wellness. and yes, for all the newbies it's also very important to understand that "testing alone" doesn't a...
Hi to all, I have MS and have been treating it because I found it's an infection. Yes, I have Lyme Disease. My story is about my neighbor who has CFS. and Fibro, and IBS. It' also about Lyme Disease....
I agree, finding an open minded doctor who peeks outside of "conventional" treatment are hard to find. As I began reading about the infectious cause of my MS I found lymenet.org. They offer a section...
yes, I found a lyme literate doctor....had an IgeneX test done along with lots of blood work and with MRI's in hand along with my MS symptoms; am now treating with long term antibiotics and feeling...
good for you! As I logged out I noticed you post and had to respond! I have MS and I also found that the cause of my MS was an infection! I have Lyme disease and Chlamydia pneumoniae. Continue...
Zoe, Sounds like you will ask your current doctor to order the tests? If so, it's not an easy task to list all the bloodwork that lyme doctors order. The most important test is the Western Blot, and...
to the Moderators, Geez, I had the rules reversed! Thought I couldn't post the link! Wrong forum.... my apologies thanks for helping out and getting me straight! tory...
Zoe, hmm, where to start. First of all Lyme disease is not an auto immune disease. Quite the opposite. Research tells us that our bodies are NOT invading ourselves; it's a bacteria that is inside our...
oh yes, My doctor treats lots and lots of MS patients; he doesn't have an issue with any of us remaining on any of the "disease modifying drugs", but he states that Tysabri "scares" him; he won't...
Dear Zoe Butterfly3, I too agree with your family, get tested for lyme disease. My doc says that lyme is a pandemic! and so many of us are not diagnosed! Please join us on the Lyme board, and we can...
Hi Terri, I too asked the same question: but for me I had MS for 20 years! I started Copaxone because my neuro didn't want to see me grow old and end up in a wheelchair! yikes! that scared me enough...
Hi, I treat my MS from an infectious point of view, and because of all the antibiotics that I'm taking need to also use a good probiotic. I only wish I would've known about the all the good things...
Hi 2sick, Sounds like you might consider a doctor who is educated with lyme disease. If you tested postive for lyme and was treated conventionally you probably were not treated long enough? The IDSA...
thanks for the topic. I too have Lyme disease, and MS. I have been in lyme treatment for 9 months and am feeling really good. Many of my MS problems are begining to resolve. For the past week I have...
Kathl019, You have a right to wonder why you're feeling lousy...."it's in your head" is really becoming tiring from our health care professionals. Consider posting this very story on the Lyme forum....
Hi cooling1, Sorry you're not feeling well. Join us on the Lyme board...we have a symptom list that you might want to look at; but more importantly IF you are considering getting tested for Lyme...
Hi Quitesmile, thanks for the great post to dear Sylvie. I am currently treating my MS with antibiotics and I'm improving...steadily. I had MS for 20 yrs, so I'm considered an 'ol Lymie. My question...
Hi xray girl, I too have Lyme Disease along with MS. A relative of mine is suffering from arthritis so I jumped on this forum and saw your question. You might want to join us on the Lyme site and ask...
Hi Johnnyboy, noticed your topic "Antibiotics". Unfortunetly, there's a ton of mis-information regarding the use or overuse of antibiotics. I have MS and after many years, I finally got a Lyme test...
I am in treatment since Nov '06. have been on different protocols..mixing things up. I stared out with Doxy to see if in fact I would have a Herxheimer reaction. (that's the formal phrase of our...
hi centralnjgal, I too have MS. Was diagnosed in 1987, by 2 very distinguished MS specialists at a teaching hospital in Philly. I decided not to post here because I don't ever mean to cause anyone to...