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Rheumatoid Arthritis
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Posted 2/28/2011 3:22 AM (GMT 0)
Dose anyone else get Annoyed with the Name of our illness ? Rhumatoid Arthritis ? nono i get So many people say oh yes i get that in this shoulder or oh my Granny has that in her big toe, or you should try Lemmons,or beetroot or Excersize it helped my so & so Ahhhhhh no not Arthritis (although i'm not lessening the effect of that either) but see RA is a Systemic Disese it effects Everything heart,fatigue,liver-- well by now they are talking about something totally diffrent or looking at me as if i want sympathy or i'm a Whinging Lazy person that just needs more Lemons in there diet cos it helped granny's sore toe.

Why can't we get a Cool name "Systemic die a little each day itis" or " rhumatoid Disease" lets take a vote think up a name that actually says what we have. Whats in a Name- heaps

           idea idea

Posted 2/28/2011 3:37 AM (GMT 0)
yeah   yeah   Lemons yeah yeah   I once had a RN tell me that yogurt would help with remission for my Crohns Disease (and that is another stupid name for a disease, I tend to say Inflammatory Bowel Disease or IBD or on here CD) If I thought yoghurt would stop me pooing 20 times a day I would constantly eat it eyes

Oh and mention you have RA and you have to hear how sore their neck/wrist/big toe is or how Uncle Fred has that shocked

Dont get me started yeah

Good topic Badday smilewinkgrin   I think you will hear a lot more amusing replies on this one turn

Take care

Jo

Oh how about ' Ache all day Syndrome' or 'Where will I hurt most today Disease'

Posted 2/28/2011 2:54 PM (GMT 0)
I have discussed this and commiserated with many RA sufferers on this subject. Not sure if I came up with this name or someone else- I thought I did but then heard others come up with the same. RAD Rheumatic Autoimmune Disease.
Posted 2/28/2011 10:41 PM (GMT 0)
RAD not Bad
Posted 2/28/2011 11:26 PM (GMT 0)
I hear that all the time. Oh I have that in my back. Or one lady at my work tells me she has that but doesn't want to go get treatment because it's only in her one knee. I'm like, no no that would be regular arthritis. Not to take anything away from people who have regular deterioration of the joints. Then they want to know what it is but try and explain it and they start looking away and getting bored. I keep thinking well those were definitely precious moments of my life I will never get back. Thanks for that. nono
I just call it the disease that sucks every being of my normal exist away..but that's way to long. Heather
Posted 2/28/2011 11:40 PM (GMT 0)
Hi mama6. I know what you mean about people not understanding. I have been dealing with the FM and OA for years now. But this acute episode is nothing like those problems and I have stopped trying to explain it to people. (it wears me out). I just tell them I am seeing a rheumy and he is not sure what is wrong yet and try to change the subject. Since you are trying to keep working, it is harder for you to avoid the discussions.

What about SRD? (systemic rheumatic disease). I think Syndey Jo's are cuter though.
Posted 3/1/2011 2:03 AM (GMT 0)
Sometimes I refer to it to others that ask, as Systemic Rheumatoid disease.
Posted 3/1/2011 4:14 AM (GMT 0)
I have to chime in on this one. I don't have RA. I have OA, Fibro and EOA. Difficult as this may be to believe, people know even less about EOA. If they ask, I just say it is like RA, only it doesn't attack my organs. This really confuses them, and they walk away and usually don't bother me for a while. I don't mean to be unkind, but most people do not want to really know. They just want to tell you about their "arthritis". Not all of them, but enough to make it annoying.

Peace,
V
Posted 3/1/2011 9:48 PM (GMT 0)
Vannie you are right . Each year that goes by I find myself less interested in explaining my ills and less interested in hearing about anyone elses. I keep the health subject right there with religon and politics.
Posted 3/2/2011 7:43 PM (GMT 0)
I find myself not wanting to explain why I feel exhausted most of the time. I also find myself less interested in explaining what hurts today and why i can't do certain things. I feel uncomfortable saying all the time, I use to be able to handle that but now I have to take baby steps w/ my RA and FM. I feel like an idiot everytime I have to mention yes I am in pain again or whine and complain about it. I feel like an annoyance to people. It is a uncomfortable feeling and I feel incompetent at times. Thanks for allowing me to vent.
Simplistic007
Posted 3/3/2011 1:52 AM (GMT 0)
I get sick of the "you're too young to have that" as well as the sore fingers or do you take chondriton?

If I shock them with what I do take for it they just glaze over. I've also been told its a disease that only nervy people get. Does that makes us more sensitive do you think? or just crazy? Anxiety ridden from all the comments we have to put up with?

I just laugh at people , completely throws them, golitho

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