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I just want to share my feelings

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Rheumatoid Arthritis
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Posted 10/6/2012 10:32 PM (GMT 0)
Hi,
I’m 24 I was diagnosed with RA two years ago, I’m currently on Methotrexate (20mg) and Plaquénil but it’s not getting any better I still have pain in my joints and lately in my chest and I feel tired. I know that I should not be complaining a lot because some other people are in more severe situations but I ‘m scared because I’m afraid my health will get worse and worse. In addition to that I stress a lot more than a normal person and I heard that it is not good for RA.
I’m glad I found this forum where I can talk and say what I feel, I can’t talk to my family about it because they are already worried about me having the RA and I can’t talk to my friends because they don’t know about my RA.
Posted 10/7/2012 12:23 AM (GMT 0)
Please don't apologize for wanting to express your feelings! Yes, forums are great and certainly have helped me a lot these past few years after all I've been through and I am 57. I can't imagine having a chronic disease diagnosed at a younger age. Although I had health problems in my 30's, at least I had it good in my 20's. LOL..... I think just having a place where you can express your feelings will help you feel better. I only drop in only occasionally. I am bad, when I am in remission, I have a tendency to not drop in as much, which isn't really nice.
Posted 10/7/2012 11:19 PM (GMT 0)
Welcome Lilis- so sorry RA found you so young. The good news is that with todays medicine most people will achieve remission- may yo be one in the most category!
My dr. tricked my immune system with 40 mgs of prednisone daily; to lay off-Then I weaned off in a year and a half. During that time I also took MTX 25 MGs. 1 x per week and for a short time Humira. Currently I am in remission-drug free.

I wish you all the best
Posted 10/8/2012 12:31 PM (GMT 0)
So sorry you have RA, but it is a good think to express your feelings, and ask questions. Actually, if RA is caught early, it can can go into remission, but most people still have to take the meds. Only 3 % of people, according to the last study I read, reach remission. So....it is good to be proactive and advocate for your self when things are not going well. You may need a change in your medication. Hang in there and give your doc a call. It can't hurt, and it might help. Always best to be upfront w/your docs.

Blessings,
Vannie
Posted 10/8/2012 5:56 PM (GMT 0)
Yes, I have read the same article. The key is the "early treatment" they mention in the first paragraph. Unfortunately, many of us go for years w/o a diagnosis. I, for one, went ten years, and that is far outside of the two-year window they are talking about.
Posted 10/8/2012 11:19 PM (GMT 0)
Thanks a lot (jeanneac, wearyRAsufferer, and Vannie) for your nice comments and support, I really started to have some hope about achieving remission someday.
Posted 10/9/2012 12:25 AM (GMT 0)
Thanks for that article Weary. Very interesting. Relatively speaking, mine was a light to moderate case. After a 5 month round of prednisone and 1 year of plaquenil, mine went into remission. I am off meds for now-:)
Posted 10/11/2012 11:42 PM (GMT 0)
Hi Lilis, its hard and scary when you start off with a diagnosis of RA to accept you should take these toxic meds but once you take the plunge it can make a world of difference. I was so scared when I started and it hasn't been an easy road, I still get flares and bad pain days. I have moderate to severe RA but after 6 years of struggling with various combinations, my cocktail of meds is working, I struggle to work a full day but I manage to work parttime, I parent 3 kids, I manage the housework (badly) and I walk. Can't manage sport anymore but I can ride a bike on the flat.
I guess I've adjusted to what I can and can't do.
It's not easy and you can get very depressed at times but there's a lot of us out there managing this disease and still living full lives.
Best wishes, golitho
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