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Enbrel users? Needs some advice??

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Rheumatoid Arthritis
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Posted 11/4/2012 8:18 PM (GMT 0)
This is my second time on Enbrel. The first time was in 2008. However, this time around, I've been under the weather constantly with it, and it seems the day after I take the dose of Enbrel, I feel horrible. Literally, as if I've been hit by a truck..body aches, feverish, chills, joint pain,  you name it and it lasts the entire day. By the time the second day rolls around it has pretty much subsided, but gosh, I can barely make it through the first day after!! Does anyone have this after an Enbrel dose? or after any biologic dose? I'm really dreading tomorrow since it is an *Enbrel* day.
Posted 11/4/2012 11:07 PM (GMT 0)
Hi Mom, have you had your bloods checked recently? Has it managed to do its job too well and knock out too much of your immune system? I feel generally well on my humira but the only time I knocked myself out was after I went off it to fight pneumonia, the day I was told I could retake my mtx and humira, I took them both together in my enthusiasm for trying to get the joints back under control. I think I slept for 3 days and took a few weeks to bounce back, Felt like a train had run me down. It was obviously too much for me.

But why don't you ring your rheumy?

Sorry to hear you're feeling awful, if its not RA its the treatment!!!

Thinking of you, golitho

Posted 11/5/2012 5:00 PM (GMT 0)
Hi Golitho,

It is so nice to hear from you! I think I do need my levels checked again, the last time my red cell count was pretty low and last week after taking the MTX and Enbrel, I got those little red spots on my hands, that I get when my immune system is running low, I've had them for awhile now.

You are so right, if it is not the RA, it it is the meds we take for it!!

Posted 11/7/2012 3:05 AM (GMT 0)
Yeah, its like the toxic soup we sup to keep us going. I hope you're ok?

I am so excited, even thouh I am an artist I hardly ever get a chance to be one these days, too many classes...children...taxi service....house needs etc. But I snuck into the studio today and drew up a large lithography stone.

It'll need more work but so nice to have some time to just draw and lose myself in my work. I've drawn a mountain range from above, looking down at the ridge line. Just feels so good to draw again.

We are on our summer break at the moment so good time to go in and work without being disturbed.

Takes your mind off sore feet and elbows fo awhile anyway.

Best wishes to you, hope you are taking your zinc and vitamin C etc to help with your immune system.

I tried that Quinoa someone was talking about, been mixing it in with my cereal as it is a bit bland and having it with almond milk. Haven't noticed anything yet but thought why not give it a go. I am really missing my prednisone but still determined to struggle on without it. I just hated the weight and it was giving me high cholesterol plus destroying my teeth, so time for a break.

How is your daughter doing now?

Best wishes, golitho :-)

Posted 11/7/2012 4:40 PM (GMT 0)
Hi Golitho! I don't feel as fluish as I did, just plain old RAish, if that makes sense. I wish I had a huge dose of pred, right about now! Speaking of vitamin c...I drink something called Emergence-C, it is a drink mix, and I use two packets per day, it has all the vitamins, and I seem to feel a bit better if I drink it each day.

I'm so happy that you have time to paint, your picture sounds beautiful! It is so difficult to just breath and take time, isn't it? I know what you mean about kid shuffling and the house etc..I only have my daughter left and she will be turning 16 very soon, has her permit, so she is now learning to drive...somewhat stressful!! she will be graduating a year early, so next year will be her final year of highschool, I feel sad, since she is the last one at home. The question looms of what to do next?!

Quinoa is very versatile, and you can eat it hot or cold, it is great to make as a salad as well. Look up recipies to get some additional ideas. I'm vegetarian, so I've tried it a variety of ways! 

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