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Rheumatoid Arthritis
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Posted 1/21/2013 10:24 PM (GMT 0)
My name is Angela
quick intro I am mom to 12 special needs kids (all adopted) and wife to one special needs husband LOL (aren't they all special needs?) I am in school full time although I have taken this term off due to (big sigh here) my 3 sons were all hit by a car on dec 3 they were in a crosswalk with the walk sign and the driver was on a cell phone. my now 13 yr old has a traumatic brain injury so we have a long road ahead of us. Yes he (the driver) has insurance but that does not help with all the issues right now. Every one seems to think "oh no big deal he has insurance" but that does not help with the day to day issues.

Now onto why I am here


For me I feel like my hands are weak like the grip is weak I can close my hands but can not squeeze them, my hands swell at night and I feel like I need to crack my knuckles (I don't of course). I don't feel like they are half cracked but like I need to crack them to release the pressure. I also get shooting pains esp around my knee. Today is lotsa fun (not really) I don't care what anyone says, I can tell the weather by how much I hurt and we have a storm coming in, I wish it would just happen already!

Does anyone else have multiple locations of tendonitis? or what they say is tendonitis? I also am finding during this flare up (currently) I am very tired.

I am diabetic so can not do the steroids as it sends my sugars through the roof. a few years ago they checked my blood and I was neg at that time but I know my doctor is planning on testing for it again soon. Writing with a pen or pencil is darn near impossible and causes great pain, so I prefer to type.

Thanks all
Pamir
Posted 1/22/2013 2:26 AM (GMT 0)
I am so sorry to hear of everything you are going thru! Crazy! I too can tell there is something weather wise coming thru aches and pains. There are even days when i ask my hubby if the weather report says rain or snow or storm or anything cause my aches says there is something coming. Usually 9.5 times outta 10 im right. :(
You definitely can have RA with negative results, definitely get whatever tests done you can. Your 12 children need a momma who is feeling well,and strong to be there. I wish you all the best. Many more people with more knowledge will respond to your post i am sure, sorry im not helpful. but know you are not alone!
Posted 1/22/2013 3:47 AM (GMT 0)
TayIsa

it does help just knowing I am not alone and not going crazy, well at least not from this LOL I just wish it would snow already, and get this episode of pain over with!

Angela
Posted 1/22/2013 4:01 AM (GMT 0)
Hi Angela

WoW you have your hands full, i worked with some special needs kids when i was nursing and they can be So Loving especilly the Downs Syndrome but also a handfull 100% all the time and 12 gosh

i Really hope the 3 that were hit by car come thru ok

as to you as tayIsa said you can have RA and be as they call it Sero Negitive,

i often Do crack my knuckles it helps releave the preassure build up i know they say you shouldn't but my rhumy didn't seem to think it was a big deal

i gave up writting with pens ages ago if ever i have to write something it is very hard

i have ruptured the tendon on my ankle,shoulder,by my knee,and wrists. had steroid injections into the wrist last year and had them 3 times into the right shoulder

 one time i had tremondous pain for over a week in the shoulder then felt a twang like a guitar string and instant relief So Soothing my whole body felt Good No Pain- then Wham Pain the twang was it letting go.

are you in the position to get 2nd opinions mabey get a total work up done by a diffrent rhumatologist fresh eyes can often help

take care

Charm

Posted 1/22/2013 5:18 AM (GMT 0)
Charm,

Heck I don't even have a rhumatologist yet lol. I know it is arthritis though because it runs sooooo heavily in my family. Since it does I know the symptoms and what to look for :-(

Anyone with nicer weather want to let me come visit?

Angela
Posted 1/22/2013 2:35 PM (GMT 0)
My daughter was born with a heart condiition, which led into her having open heart surgery at 12 days old, they had her on the heart/lung machine for 20 minutes, told us she might be behind in school, and possible heart surgeries, everyone had to be very careful picking her up as to not rebreak her chest, and even though strep throat is not dangerous for most kids, it was extremely dangerous for her as strep can go down to the heart of a heart patient and cause endocarditis. However, she ( my daughter) is now 21 yrs old in University and doing good, she was never in a normal class, all advanced placement, but we worked hard with her, for that.
So even if your kids are special needs the have a bright future.
Get yourself into a good RA doctor and get checked out, they have so many medications out there that can help, you don't need to be on prednisone. A good RA doctor will work with you. Maybe a hand mri will show if you have RA, I was neg for bloodwork, but a hand mri for me reveiled damage, so maybe get a hand mri and get into a RA Doctor.
Many well wishes
Posted 1/31/2013 4:42 PM (GMT 0)
wink  Hi Angela,

        I just joined and I am finding this site to be very helpfull. I work with special needs and I know you are dealing with a lot. I just wanted you to know that there are non-steroidal anti-inflamatories out there. Ask your doctor about them. I am on Celebrex. I have servere RA and also take Humira and methatrexate. I am now off all steroids and pain meds. It is wonderful feeling. I hope this helps and good luck with everything.

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