hey there flopsie. as always, your words of wisdom and concern are greatly appreciated. i have a BIG problem with change.... i don't like it, and plus i'm stubborn, headstrong, and rarely take no for an answer. was always like this even as a little girl. and i NEVER WAS ONE TO STOP!!! but i have to say that the past 5 weeks have been a growing experience for me....learning to accept and adjust.
i stop sometimes and think of the things i use to tell my patients in the hospital: " I know you hate to be here and it is hard.... but this is where you have to be for now. And if you HAVE TO BE HERE, we can make the best of it !" it's funny how much hearing that come from someone else helps another... i just wish i was the one saying it to others and not myself. but i am practicing what i preach.
been having some good small improvements the past 2 days! am more agile in my arms ,elbows, and shoulders. can turn onto my sides in bed. can lift arms up overhead, and is easier to shower and hold things! throbbing is minimal as well.
bad set-backs: i don't know where this is coming from, but since on the Sulindac 200mg been having terrible LLQ pain and then 15 BM yesterday; bad pains today but only 4 BM so far. exhausted. no sleep tuesday nite at all (very nice decorating shows on cable @ 3am!)
but last nite i had to take something to sleep and was able to get 8 hours thank god!
called the rheumy asap yesterday about the pains and BM....so he said stop the sulindac. now what? so he's claiming sulindac will manage the inflammation along with the steroids....but now i have nothing for pain except darvocet or percocet which he claims will not work. he's driving me MAD!
managed to keep out of all ER's and offices this week so far! good accomplishment!
Seeing BOB DYLAN tomorrow nite! oh i can not wait! nice to have that to look forward to...and i don't care if i have to crawl there! just hope it doesn't rain on my parade, it's out in a baseball field.
{{{{{{{{{{{{{{{{ hugs}}}}}}}}}}}}}}}}}}}}}}
ERIN