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Posted 10/18/2013 9:46 PM (GMT 0)
Does anyone have any suggestions for hip pain? My hips ache terribly, and actually keep Me awake at night. Tends to get even worse when walking. I'm sure I didn't injure them. My right hip hurts more than my left, but both are involved which is why I can't get comfortable at night.

Any suggestions would be welcome.

Elcamino
Posted 10/19/2013 1:16 PM (GMT 0)
Elcamino, I have the same problem. I have osteo-arthritis in my left hip and I always wake up off and on during the night with really bad pain. After about 30 mins of laying on my left side, it gets unbearable. So far, my Rheumatologist has not given me any suggestions and I do complain about it at every visit. I am in the process of finding another doctor as I am not happy with her for other reasons.
Posted 10/21/2013 12:12 AM (GMT 0)
elcamino - Have not seen you much of late. Sorry to hear you are having problems. I believe you have a rheumatologist - is that correct? I would ask him/her to do xrays or MRIs to see what is going on in this joints. I don't know your insurance status but an MRI would be better since it would identify any ligament, tendon or soft tissue problems.

If I recall correctly, you are past the 50 year mark. It could be osteoarthritis but also could be several other things. Did you ever spend prolonged periods on prednisone? Avascular necrosis in the femoral heads can cause hip pain. Also, the ileotibial bands that run from the hip to the knee on the outside can get inflamed. I have had this several times and I can never lie on my side when this is occurring. Does the pain feel deeper of more towards the outer tissue? If it is not deep, then I would bet on the ileotibial band syndrome.

Either way, I hope you can get your PCP or rheumy to order an MRI. Let us know how it goes.
Posted 10/21/2013 5:22 PM (GMT 0)
Thanks for the responses. 

Ides, I am not yet at the 50 year milestone.  I have always had hip pain since the very beginning (along with shoulder pain) of my RA diagnosis.  Rheumatologist said it is an unusual presentation, but my mother (who also had RA among other things) had the same presentation.  I assume it is RA.  I've not taken prednisone much for many reasons (it's the drug we all love to hate), so I'm sure it's not that vascular necrosis thing.   I'm currently off the biologics, only taking methotrexate, and I'm definitely coming out of a bad flare.  Once I start taking orencia again, the hip pain should die down, regardless of whether it is caused by RA or something else.  In the meantime, I just need to sleep more than an hour or two at a time :)

 I've not had an MRI for the RA, so it might actually be interesting to have that done.  Thanks for the suggestion.

Posted 10/22/2013 2:49 AM (GMT 0)
Hope you feel better. I had bad hip pain but it was a long time ago at the onset of RA. I take baths and soak and that helps me sometimes as well as doing a little meditation in the tub. Usually that helps me at least for a little while.

Do you mind if I ask why you are off of the biologics? I am curious because I have had a lot of side effects since going back on them and I am seriously considering stopping them altogether and going to a more traditional treatment plan even if it means dealing with flares. The side effects really worry me with taking them even though they help my joints.
:(
Posted 10/22/2013 2:50 PM (GMT 0)
Hi Don,

I stopped taking Orencia on my own about 6 months ago because I kept getting infections and felt it just wasn't worth it (plus I hate the injections).  I had the gut feeling that everytime I gave myself an injection, I was making myself sick somehow.

Shortly after stopping I was diagnosed with skin cancer because of the orencia (or previously enbrel), so it was somewhat prophetic that I stopped on my own.  I would have been taken off it anyway because of the cancer.  It took a good 3 months for the inflammation to build back up in my body which resulted in the recent bad flare I've been experiencing.  After much thought and discussion with my doctor, I've decided to go back on the orencia (with dr. recommendation) and simply consult a dermatologist every 6 months for skin checks.  Fortunately, the type of cancer I had does not metastisize, so it isn't lethal.  Having one skin cancer, however, does increase the risk of melanoma skin cancer, which is lethal. 

Having lived without the orencia, on just the methotrexate for the last several months, I feel it is worth the risk to take the orencia and just be vigilant.

Elcamino

Posted 10/22/2013 7:08 PM (GMT 0)
Thanks elcamino, I have been struggling with this very issue since the beginning of the year when Enbrel stopped working and I developed pustular psoriasis. Apparently it is very rare but can happen as a result of taking Enbrel which I was on for 12 years. I also developed a ton of skin tags which Im sure the doctor would say are unrelated but in addition to the constant sinus infections it has been weighing on me.

I hope you feel better and are side effect free. :) -Don
Posted 10/25/2013 2:05 AM (GMT 0)
I've had hip pain for several years, when I went to a rhuemy doc, she said I had bursitis( the fluid sac around the joint is inflamed). On my last visit I got a cortisone shot and it has helped me so much
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