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Rheumatoid Arthritis
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Posted 11/27/2013 4:44 PM (GMT 0)
Recently I have been having horrible headaches all day long, and even wake me up in middle of night with a headache. I have RA and my dr. thinks I have Fibro also. I had a catscan of my head last week, and I called the office today and found out it was normal. Phew! I was worried for the worst of course. But while I am relieved everything is okay, I am now having headaches all the time for.....nothing? My doctor has put me on a med efflexor 75mg daily that has tamed the headaches, but I still get them, just not waking me up anymore. So I guess my question is are chronic headaches a symptom of RA or Fibro? I am starting to think that maybe my doctors are gonna think Im making all this up and trust me I am NOT. I hate taking medication, but do so I can survive day to day as "comfortably" as I can. (You know what I mean) I don't know where to go next on tests, as usually I tell my doctor what I think and she goes with that....sad I know but I am at a loss of what to do now.
Any info or experiences sure would help. thanks again . Sorry, not trying to whine or rant just looking for possible answers....
Posted 11/28/2013 2:25 AM (GMT 0)
Ugggh I hate headaches like that. I call them cluster headaches but I don't think clinically thats what I have. I'll have a few days worth of extreme headaches that can be knocked back with fiorinals to a tolerable pain only to come back full force after the dose is wearing off. Over & over again- I just can't get rid of the headache. I put icy hot on the back of my neck and a cold rag over my eyes and lay down and hope I sleep. I stand in a steaming hot shower with the water pounding on the back of my neck and head. I throw a couple of alka seltzers in a glass of coke and drink that down. Nothing really works until it's just time for them to go away.

Hope yours ease up- all my best...

Posted 11/28/2013 2:25 PM (GMT 0)
Hi wearysufferer, thank you for posting. I am sorry you get headaches too, but glad to hear someone else gets them too. I woke up this morning to get hubby off to work with a dandy headache, went back to bed for an hour before having to get up to get my sons ready for school hoping a little more sleep would get rid of it....sadly it didnt. I'm sick of being sick...kinda making me angry at myself that i always seem to have something hurting ggggrrr. Thanks for the tips, I will definitely try some of them.
Hope you have a great day. and thanks again.
Posted 11/28/2013 2:59 PM (GMT 0)
I get headaches too but I believe mine is caused from osteoarthritis that I have in my neck. I am always using a heating pad which helps a lot. Hope you feel better soon.
Posted 11/28/2013 5:10 PM (GMT 0)
hi diznyfrk, thank you for your reply. I haven't tried heat yet as I dont usually get a sore neck and never thought of it. But I will certainly try it out. Thank-you for your reply. Have a great day!
Posted 11/29/2013 2:24 AM (GMT 0)
I get migraines and I get vertigo from them...was dx this year with them. My daughter was dx'd with them years ago...The med your doctor gave you is one used for migraines...I will be getting an occiptual nerve block for mine on Dec 19th. So because of the medications your doctor gave you I think they might be migraine related and you might want to start a jounal to track your triggers....Chocolate is a trigger for some. AutoImmunes I guess could be a trigger. You might want to seek help with a neurologists that specializes in "migraines"...Amtripaline is also an older medication being used to treat migraines...Sorry about the typos, my hands hurt ...
Posted 11/29/2013 2:38 PM (GMT 0)
Chartreux, thank you for your info. I take amnitriptyline as well... so what you have said is very helpful. I never thought of a journal, because it seems like an all day everyday thing but will definitely pay closer attention to see if there really are triggers. I hope your nerve block goes well, sounds scary. Also thanks for answering me even though you are hurting, i do appreciate it and hope you feel "better" soon. I am glad also to hear that maybe my doctors will believe I have these and not think im "attention seeking" like many doctors do to make life easier for themselves. Thanks again, and have a great day.
Posted Yesterday 10:52 PM (GMT 0)
Hi Tayisa,

I also wondered if what you have is migraine related. I also get those continuous headaches and have found a visit to a physio really helpful, especially one who is good with necks. Mine usually happen when I'm stressed or when my shoulders are bad, seemingly when my shoulders are bad the neck tenses up to compensate, so even though I don't have a sore neck as such, I get those pre migraine headaches.

I've been prescribed with a fast release "immigran" which stops it immediately.

Anyway How are your shoulders?

Just a thought. The physio has given me stretches which help too and he massages and stretches my neck and it settles it down for me to stop the recurrence.

Best wishes, golitho

Posted 12/6/2013 9:25 PM (GMT 0)
Glad I read this cause I have been getting a lot of headaches lately and after reading your post Golitho I think maybe they are coming from my shoulder pain. Thank God for this forum cause sometimes the doctors are no help.
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