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BadDay
Veteran Member
Joined : Jan 2011
Posts : 1087
Posted 9/17/2014 5:57 AM (GMT 0)
I know this may seem trivial with all the Pain everyone is in - me included
But I'm Bored
it takes all my strength to simply get up and dressed in the morning then I sit and recuperate
I used to be a very active or busy person and now it is a miracle if I can cook a meal ,
I used to love gardening but cant bend - its odd not being able to bend down you think how many tines you do that in a day then try to figure other ways of doing the task.
I have had memory problems lately so studying or learning for eg a language is out cos I can't remember what I did yesterday !
I get exhausted if I simply walk across a room - no I am serious I have to stop and recuperate,
but my brain is still active and i feel guilty not doing anything
I know all the daytime TV soaps
I know living is a bonus and getting thru the pain is a bonus but sometimes like today I feel so - useless
Don_D
Veteran Member
Joined : May 2013
Posts : 549
Posted 9/17/2014 10:33 AM (GMT 0)
Hi BadDay,
I know what you mean about
he restlessness that goes along with being sick. I have a hard time thinking at all at times like this and it is a wonder how I have been able to remain employed in my field which is a very technical and mentally taxing occupation.
I try to give thanks and appreciate any little thing in these times ands it helps.
Know that we sure understand and sympathize with you. A better day will come for you I hope. Hang in there!
wearyRAsufferer
Veteran Member
Joined : Mar 2010
Posts : 2955
Posted 9/18/2014 2:23 AM (GMT 0)
Ugggh It's been a long time since I've been in your shoes thank God but I will never forget the feeling.
I remember feeling like I'd give anything to have the strength and energy to scrub a toilet and who the hell wants to do that?
TV? I wanted to shoot the screen I hated the repetitious shows and commercials. There was a particular IKEA commercial where a very obnoxious woman would shout to her husband- START THE CAR START THE CAR! as she ran out with her bargains she felt like she stole. My hands were so painful I couldn't use the remote buttons to change the channel.
I remember walking (shuffling to the mailbox) was a pleasant deterrent, taking a ride with my husband during one of his errands and watching the world thru the window felt like an adventure...
Hope you can find some simple pleasures to get you out of your funk
Wishing you all the best and improved health soon!
couchtater
Elite Member
Joined : Jul 2009
Posts : 14475
Posted 9/18/2014 4:10 AM (GMT 0)
I do games on the computer. It has a touch screen and I'm able to do simple hidden object games. I also have card games, jigsaw puzzles, and suduko on it.
Because of my lupus I have to limit my UV exposure so I can't even enjoy the sunshine. I get cabin fever like crazy.
Chartreux
Veteran Member
Joined : Aug 2006
Posts : 9664
Posted 9/19/2014 12:43 AM (GMT 0)
Can you ask your doctor about
physical therapy sessions?
Maybe try a book to help combat the useless feelings...
Can you get on the list for therapy pets? maybe a therapy pet would help...
Or save up the costs for getting a therapy pet...
Just a few things to for you to look into...With you soon to be going into Spring, where we are starting towards Fall/Autumn...Hopefully warmer weather means better days ahead for you...
Just be careful on the beaches, there was another shark attack down there and the whole thing was tragic, as everyone was looking on...so very sad...you need a shark tagging down there so they can tell when sharks are nearby, so people can get a chance to clear the waters...Sharks get tag off Maine and they just tagged two this past week...
Sure hope your feeling better soon...
BadDay
Veteran Member
Joined : Jan 2011
Posts : 1087
Posted 9/19/2014 2:21 AM (GMT 0)
Hi Thanks all for your support
I am feeling a little better today as I did some computer stuff yesterday
putting things on ebay to sell
prior to that I had 2 weeks of Nothing to do
We live in the Mountains so No worry about
sharks here
it dose seem there has been a few more than usual not sure why
although I do Really miss the ocean I grew up around the sea and it always relaxes me
I think the isolation here is a bit of a factor as well as everything is a drive away
I do have a cat & dog but some days they are more trouble than help
well more the dog than the cat as the dog has taken to wee'ing in his bed at night so every morning I have to wash his bed I think it started when we moved house so im trying to be patient.
RAFitChick
Regular Member
Joined : Jul 2011
Posts : 23
Posted 1/2/2015 8:09 PM (GMT 0)
Hi, Bad Day!
I can (and do) completely empathize!! Let me explain so you can see the correlation. Up until February 2013, I had been working full-time in corporate America, working part-time as a Certified Personal Trainer, working out at the gym 3-5 days per week, volunteering, participating in
open water competitive swims as well as mud runs. I had a very healthy social life and loved hosting dinner parties. Oops, forgot to tell you; came out of remission in 2007 and was on a craploads of meds but clearly the meds worked. The pain I had was tolerable.
February 2013; moved to Upstate NY. Began job hunting and started searching for all new docs. Because I did not have consistent care due to the move and having to find new docs, I started going downhill. October 2013, regretfully relented and filed for SSDI.
Fast forward again to January 2015. I am BORED OUT OF MY MIND!! I now see how people that retire become depressed. My days are filled with medical appointments, telephone calls, pharmacy runs and dealing with the increased pain, decreased ROM and mobility. I want to go back to the gym, I want to volunteer and I am determined to make a success of my business. I have my first dinner party in 2.5 years coming up and I don't know if I am going to be able to do it!! I feel as if I am wasting my life and I am only 47.
So, Bad Day, I get it. And please do not feel that what you are experiencing is trivial. You probably feel as if you are existing and not living, right? Living is huge. Is there any sort of volunteering that you can do from home? You might be able to use Skype (free) to participate. I just wanted you to know that what you are feeling is not trivial and that you are not alone.
I truly hope you find a bit of happiness.
BadDay
Veteran Member
Joined : Jan 2011
Posts : 1087
Posted 1/3/2015 5:37 AM (GMT 0)
all I can say is Thank You RAFitChick
wearyRAsufferer
Veteran Member
Joined : Mar 2010
Posts : 2955
Posted 1/12/2015 2:18 AM (GMT 0)
Hey Bad- Happy New Year!
I hope you are able to shake off that funk. I know the feeling and it sure makes for unhappiness. :(
Wishing you all the best
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