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Rheumatoid Arthritis
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Posted 3/9/2016 11:02 PM (GMT 0)
Hi

I am unsure where to start but going to just go.. I have been going to the dr for over a year and still no sure dig. I dont know what else to do. The only test that i have not had has been a tap. I have had normal blood test and a lil high blood test that my primary dr seems to be leaning towards r.a. but my nero leans towards m.s. i have symptoms of leg-feet numb/tingles arms face also. Major headachs, fatigue, neck-back pain, popping joints, nose bleeds, not sleeping well, no energy, eyes hurt often. I know my mri of spine did show buldging discs. I feel like i dont know what to do or ask to do next. I am only 28 and want to figure out why i am going thru this. If anyone has any suggestions please let me know.. I just dont know what to do!

THANKS
Posted 3/10/2016 1:19 AM (GMT 0)
Hi Johnnie the Diagnosis process can be daunting and you feel like you will never get any where
I went thru many tests and different Doctors and eventually got my diagnosis of RA Fibromyalgia etc etc
the Best way to test for MS will be the spinal tap it is Not pleasant I had 2 done (first one failed ) if you can try to get one and then ask if it can be done under CT scanner it makes All the difference , I don't want to scare you but I have degenerative disc dis and when they tried to do the first tap they kept hitting bone and could not get thru to the fluid I was in Excruciating pain and they had to stop, But then booked one to be done under CT guidance i was So Scared to go in again but knew I had to But when I did go I did not feel a thing -obviously they could see where to put the needle. But in having this done it counted out MS
have you had your RA Factor and ESR checked ? these are good indicators for RA
all I can say is Keep trying and if you need to get 2nd opinions and you will get there
Posted 3/10/2016 1:36 AM (GMT 0)
Thanks for the advice... I have just had all the blood work done for the factor awaiting appt pn the 13th to get actual amswers. The nurse called me today and says everything looked ok but could not answer any of my issue questions over the phone. I am also waiting on my pcp to refer me to new nero that takes my insurance bc my old one had a change of acceptable ins companies. I even went to hematoligest to rule out any forms of cancer and the only thing he could tell me was i had anemia and over enlarged white blood cells. But his words were other than that your are normal... Needless to say I requested my pcp to find me a new one. The nero also wanted a marrow biopsy done but has not got because of me having to change due to ins co! Very frustrating... I also have horrible night sweats where i have to get up and shower and change sheets. The itching sensation or hair moving feel on my body drives me nuts... I bruise real easy and have lil red dots that show up... My headach has been here since January 14 and has not went away with any meds or er visits at all.. Sometimes it goes from a 10 to maybe a 4 but not away... The er did a ct on brain and it did not show anything and mri ob neck that came back normal as well... The mri of the spine was done about 1 year ago and went from neck to hip. 1st part without dye and 2nd with...

Thanks for you advice any other will be great also!

Johnnie
Posted 3/13/2016 8:31 PM (GMT 0)
So my last blood test came back ok... I see my pcp tuesday any question help i can get will help... I have some questions but want to make sure i am asking enough questions....


Thanks
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