Posted 4/5/2016 7:51 PM (GMT 0)
Hi all,
Looking for some advice on how to proceed. I will try to make this as concise as possible! I posted this in the Lyme forum as well.
Hx: I am a 42 year old female with history of tick bites within the past 2-3 years. Prior testing for Lyme after last bite-approximately 2 years ago- was negative. Recent (March 2016) ANA, CMP, and CBC were all normal.
In November 2015, I started experiencing severe, constant burning in my joints (knees, lower back, neck, and hips) with stiffness. I was working as a restaurant manager at the time and thought it was due to long hours and strenuous work. I finally went to a chiropractor in December, expecting to need a few adjustments, etc. Upon initial exam, my chiropractor asked if I had ever been checked for lupus/RA or other autoimmune diseases. I told him I hadn't. I didn't think anything of it until after I saw him a few more times and he repeated that I should get tested; he noted that I didn't "walk like someone with a back problem." He said I had a rigid spine with a lot of inflammation from my neck to my lower back and it was more suggestive of an autoimmune disorder because of the symmetry.
I did not seek any further treatment, expecting to wake up and have these symptoms eventually disappear. However, because I was in such agony (I felt and looked like an 80 year old cripple...I could barely get out of the car, much less work 14 hours on my feet), I left restaurant work for an office job (I couldn't -and still can't- move quickly. Walking up stairs is incredibly painful, and standing for any amount of time worsens the pain.) I finally went to my GP and he ordered an ANA, CMP, and CBC which all came back normal. He seemed to think it was just aches and pains and told me to take advil everyday for a couple of weeks.
Three weeks later, I still have no relief. While there is some improvement from the time when this first started, I'm still experiencing burning in my muscles/joints, stiffness, loss of mobility, and fatigue.
Aside from the joint and muscle pain, I've also had some "weird" symptoms: what seems to be "pink eye" recurs in both eyes (without being exposed to it by others or anyone around me contracting it), my toes would occasionally cramp and get stuck in a bent position while walking-not during the night-it would occur in one foot and a few minutes later occur in the other, my feet -which are usually cold and tingly- would occasionally feel like they were on fire (to the point where I had to put ice packs on them), the back of my neck and scalp itch although I can't tell if there is a noticeable rash, I can't remember names or faces, I seem to get confused easily - especially while driving - missing my turn or completely passing my destination, I am almost always exhausted -even drowsy from time to time, unable to keep my eyes open, waking up in the morning is almost impossible, and, most recently, I've had anger outbursts with friends, family, and coworkers (which is completely unlike me).
My question is: with the recent bloodwork coming back normal, do I proceed with testing for an autoimmune disease or should I seek out an LLMD and get tested for Lymes? Could I have Lymes?
Any help or advice is much appreciated!