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Posted 12/21/2016 2:54 PM (GMT 0)
Hi. Ive had chronic pain for 12 yrs. Been through all kinds of doctors been on and off a lot of meds. I have Fibro since 06 finally got diagnosed with RA a year and half ago. Have OA also. PROBLEM is DOCTORS are NOT HELPING me !Pain management wont help me because I am on a blood thinner for life. I am 51 yrs old. In pain 24/7. Went to rheummie yesterday. Told him Humira was not working, been on it for over 6 months. He asked me if I went to any pain management doctors I said yes..none will help me. He asked me if I went to any he referred me to I said yes they wont take me they are stilling looking for me, I told them to forget it I am so tired of the BS..I just suffer...they don't care I don't care ! I have anxiety and depression...gave up so much through the yrs. Cant work..been fighting with Disability for 12 yrs..its in Federal Court right now. Cant do a lot of stuff with my 10 yr old granddaughter, she does help me a lot when she is at my house, she is a blessing ! So what do I do about these DOCTORS ! Thank you for letting me vent
Posted 12/21/2016 4:19 PM (GMT 0)
Hello
From your post sounds like you have not fund a good RA DR. There are many different RA drugs available you have to find the right one that works for you. RA stinks that is for sure but unfortunately we are stuck with it it will not go away. Just read another post on another site and his story is similar to yours but only worse as he has no support around him and is now homeless as he cannot work anymore, he is only 44. As I told him wish wi could say poof and make it go away but we cannot. So I depend on my faith in God and support from my friend and Pastor as well as my family after all that is all we can do. In the mean time keep looking for a good RA DR and they should be supportive and help you find the right RA drug to make it a little better there is hope for that.
Posted 12/21/2016 4:27 PM (GMT 0)
Thank you for your response. But in Florida the doctors are afraid of the government...I found it very hard to get help here.
Posted 12/22/2016 6:32 AM (GMT 0)
Wish you were in Georgia...there are some excellent rheumatologists up here.
Posted 12/22/2016 4:33 PM (GMT 0)
Hey
Ian in Florida if you are anywhere near Tampa Florida look up Dr David Sikes,Florida medical group
Posted 12/22/2016 8:38 PM (GMT 0)
While I don't live in Florida, I have lots of relatives who live in the Stuart to Miami area, as well as in Ocala. They mostly have chronic, serious conditions and have had lots of success with their doctors.

Never heard of the doctors being afraid of government. I'm curious why you would think that.
Posted 12/23/2016 11:01 PM (GMT 0)
Hi. Doctors won't give certain meds out cause they can lose their license.The are a lot if meds I can't take cause I'm on a blood thinner and the ones I can take I can't have. For instance Have been on narco with Tylenol for on an off for 12 yrs. Never been addicted always took what I was told..I asked rheumy to up it..not working for break through pain anymore. I was taking 10/325...and he said he can't...not I'm on nothing for pain and I have a lot of health problems more than I first put down...I'm just so disgusted with the medical profession.
Posted 12/29/2016 4:17 PM (GMT 0)
angelwinks, I wanted to weigh in on your dilemma of not having access to certain pain medications. I am a chronic pain patient for well over 20 plus years. I have been under the care of pm drs for what feels like forever. Granted considering you live in Florida it will make access to treatment of pain difficult. Many years ago when they targeted Florida to shut down the pill mills which needed to be done, the environment changed completely. We now have the DEA, CDC & NIH controlling the issues surrounding treatment of chronic pain. It is this way across the country, not just in Florida. It is a very controlled & restrictive area of medicine. The drs are not willing to put their license on the line for any patient, they are in fear of this. The above entities have guidelines in place that these drs have to go by with patients. Certain medications can only be rx'd for certain medical issues, there is a limit on how many pills can be rx'd along with the dosage per month. A lot of people out there have no idea how treatment of pain has changed drastically.

Because you had no luck with the last pm dr does not mean all will be this way. Reconsider letting your pcp refer you to another pm dr. for a consult. PM dr is the only ones these days that will rx pain meds if they deem necessary. Good luck & take care.
Posted 1/9/2017 3:39 PM (GMT 0)
Hello angelwinks,

Very sorry you are having trouble finding a doctor to work with. I have been disabled since age 31 with migraines and now RA and have had a lot of difficulties with doctors - and I am one myself! I do know from practicing medicine that dealing with chronic pain is something not well addressed in medical training, plus many MD's are poor communicators. Add to that the downhill spiral (in my opinion) of current medical care, it is often a nightmare to be a patient.

I just had to switch to a new RA doctor myself as my last doctor's clinic turned into a complete nightmare. I am not very happy with my new doctor because she is not very accessible and doesn't seem to like her job or me, for that matter. She also communicates poorly.

Plus often when I ask a question or venture a comment, I get the comeback, "You know, doctors make the worst patients!" So generally I shut up and do as I'm told.

I think it is a very good idea to educate yourself as much as possible, as you are doing on this forum. I'm unclear what you mean by doctors being afraid of the government, although I suspect you refer to chronic narcotic use? Few doctors today will prescribe in such a manner and probably are concerned about government scrutiny in this issue. They will want to steer you toward other methods of pain control that will address the joint inflammation (which narcotics will not) and help slow disease progression. Plus you will eventually be accustomed to your narcotic dose and it will have to be increased over time to levels where you don't want to go. It's a bummer because these pain pills help you feel better instantly but RA is a BUMMER all around. So is any chronic pain.

Best of luck to you.
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