Newbie messin' sutff up

Hello,

   Sorry, I didn't introduce myself sooner. I'm trying to figure this all out, so I hope you will forgive any messed up posts . Is this ADD guy, cuz he looks like I feel, sometimes? I have Crohn's, but most all my symptoms are autoimmune/Arthritis.

   I just found my first cousin and he suffers from Reiter's. I really see no point in being tested for the HLA-B27, it's most likely a given for me with my lack of GI symptoms, I share his lumbersom gait, and inablity to get out of bed and walk many mornings. I wonder if the Crohn's is a result of many years of NSAID use. I was a workaholic type, and would just pop Advil and keep going, until the amounts needed to control pain began causing headaches.

   I can achieve good control of my symptoms with the SCD, but I'm not great with that. It's a 50/50 deal at this point. Some days I feel like I did in my 20-30's, others I just want to crawl in a hole. When I know how to post better I would like to post my story, but my head is a little scattered right now. I had "unspecfied autoimmune disorder" from 1990-2002 when I was told I have Crohn's.

  I also wanted to ask Ducky if his "Graves of the eyes" is actually MG (Myasthenia Gravis). I am concerned about this b/c my childrens Grandfather died from MG and one form seems to affect the eyes only. I think my Husband suffers from one form or both. I am afraid they (MY children)may get a double whammy, because I have so much inflammation in my eyes. One daughter has a droopy appearance in her eyes, but I wonder if it's just cuz she has Grandfathers eye shape. My cousin has a droopy look too, but the Reiters accounts for that, as one of his symptoms is the HLA-B27 Associated-Uveitis. To inheirate both would really Stink.

   Ok, time to stop this ramble-thanks for being here,listening, and all you do for this forum.

Welcome Margie!

Ahh, the 'joy' of autoimmune dieseases....it's like roulette every minute of the day, you never know how you're going to feel.

I'm no doctor or scientist, but I would say your inability to crawl out of bed is due to the disease more than a daily dose of Advil from your past.

You posted just fine and I'd love to hear your story. This place is great for venting, letting go, and just your every day moral support. It can be a lifesaver when you feel like you're all alone and no one undestands what you are going through.

Take care and hang in there!

****

Sorry Ducky,

Sorry I refered to your illness as "His", forgive me-if you've given birth you deserve better.LOL
My husband has large almond eye's, but has none of the protrusion often seen in thyroid disease. He
did appear to have the droopy eye lids of a MG patient during a winter illness/hospitalation this year, however.
His "Storm" lasted 6weeks prior to the radioavtive treatment, he lost 50lbs. I think this was 1977.It seems to me from speaking to several Grave's sufferers at my job that the eye symptoms are more pronounced in people who have a longer, less dramatic "storm" period. I don't think someone could survive for long in the condition he was in.

I was mostly wondering what your symptoms of Graves of the eye's are? I try to stay alert to changes in his condition. Once things get a little outta wack... I think you know the rest all too well.
My biggest fear is that we will both wake up s------ on the same day, then... God only knows.I'm not ready to be at my young adult childrens mercy, they are still too young and resentful for things real and imagined, just begining to see they had things well and good compared to most inner city children.Like for instance...2 parents, 1 healthy. The things that really mater.

going to try to sleep- later,
Margie11

Thank God you survived. Is your child doing well now? I see so many symptoms slowly developing in my young adult children.I can't imagine going through what my husband did while pregnant. You are one tough cookie. I have been in a mess, crohn's, hives, and joint/soft tissue stuff you know the blah blah and can't grasp these in combo with Graves.