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How did your RA start?

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Rheumatoid Arthritis
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Posted 9/22/2009 5:04 PM (GMT 0)
Hey Mom,

I am still on the mtx, that has been consistent. The only thing that changed is that I begged to drop from 6 to 4 pills a week because I was almost bald. I have the feeling he's going to make me go back to 6 tabs a week.

The enbrel I took was the self shot that was pre-measured. I weigh quite a bit and really they are tested on 130lb women for the most part. I'd need more than 2 a week if I stick with that math. So after bringing that fact up to my doctor he though Remicade would be a good match since it's dosed by weight and has more flexibility with the insurance.
Posted 9/23/2009 1:41 PM (GMT 0)
Hi Sarah...I'm sorry to hear the MTX has caused baldness!! I know it isn't the kindess on hair, mine has lost its shine and doesn't grow as easy as it did pre-MTX, no matter what products, vitamins I use, and I've been on 8 tabs for what seems like forever.  I've tried not taking the toxic things a time or two, and with dire consequences, so I feel as if I'm trapped by MTX.  I didn't know that about the Enbrel,  and it sounds like the Remicade is a much better option, as long as it is taking care of your symptoms/pain.  If you can drop down to 4 pills and not notice an increase in joint pain, it might be okay.. I understand your concerns about your hair, no one wants to walk around bald!
Posted 9/24/2009 8:20 PM (GMT 0)
Here's a funny one for you. I took my grandaughter to her drs yesterday and I asked him about JRA in a

kid. She's 13 and has had joint pain since age 9 and crunching for about a year. Her dr. said all kids have

this.....WRONG. He also said that if you have JRA your joints swell up.....WRONG. Arthritis runs in my

family with me and my dad being 7, one nephew 2 and another 16 and now her at 9. Our joints did not

swell. Some of us had crunching and others didn't. ALL of us had pain in one joint or another.      Haven't

drs realized that not all people are the same, we don't all have the same symptons?

Posted 9/25/2009 2:02 AM (GMT 0)
Crunching? do you mean when the joints pop and crack? I have three children and they all have  poping and cracking and I found it odd as well, but yes even kids have it. It doesn't mean they have arthritis.
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