Michael,
I looked through the different forums and and didn't really see one that fits with the liver disease. I don't know if in the kidney one you might find someone.If you are in pain (chronic pain forum)then that's a good general one to go to. There are a lot of different people on there with anything that might not be in the forum headlines. Under the diseases and conditions there is more info but I know you are really looking for someone to talk to.
Sorry, I don't have much. I am trying to help. I had and uncle that was suffering like you.It was a great uncle though so i don't know much of the details. Good luck i hope you find someone out there who can help. Heather