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Rheumatoid Arthritis
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Posted 5/21/2011 1:34 AM (GMT 0)
I know I've been missing for a while. Got caught up with work etc and been feeling so good, so easy to not look in.

So how are you going? Did you get to see another specialialist or is it in the too hard basket?

Are you still off the mtx? How are you feeling?

Just been wondering about you.

I managed to get off the dreaded prednsone, carefully weaning myself 1 mg per week and 2 weeks off it completely and I flared!!!

So now I'm on a 3 day mega dse and will probably end up right where I started! very depressing plus my rheumy said I was a severe case of RA and would find it hard to stabalise without prednisone. How awful is that to hear?

Any way I will talk to her again, there has to be someway I can get off it, step up my fish oil consumption or something.

Sitting here wondering if I expect too much from my meds? Are we suppose to be always in pain? I don't know, life can look pretty bleak at times.

But I have been so incredibly good this year, I'm determined one small flare will not bring me down.

Best wishes, hope your joints are behaving themselves, golitho

Posted 5/23/2011 2:41 AM (GMT 0)
Hi go! So happy you were experiencing such good health you were busy enjoying life and di not check in! Sorry you flared and went back on the prednisone. Was it a bad flare that caused you to need prescription pain meds and to wrap your affected joints? If not I would try to stay off the prednisone and see if you can ride it out. I felt so much better a few months after complete elimination of prednisone. It took me nearly 2 years to wean off.

You know what I think may be helping me? I take 5000 IU of vitamin D daily. Not sure about it but I started taking that dose right before I quit the MTX and knock on wood 5 months later I still have not flared.

Do I have daily pain? Yes but I did on MTX too. I don't know....at times I feel like maybe the pain is getting a little worse but then I have a few decent days and I tell myself everything is great.

I think the fact that my best friend is dying & suffering terribly with late stage cancer has me putting my RA problems on the back burner.

Thanks so much for thinking of me and hope your flare has gone away!
Posted 5/24/2011 12:09 AM (GMT 0)
Hi Weary, So awful for you losing your friend, dying can be so stressful for those in support. I lost a couple of friends over the years to sickness and one in particular really traumatised me, he was so skeletal at the end, couldn't even bear to be touched, everything hurt him so much.

I know how horrendous it is feeling so helpless. My heart is with you dealing with your friend. Does make life feel very precious.

Unfortunately I had to go back on the prednisone, I was swelling up at a rapid rate and can't afford a full on flare right now as I have 2 weeks left of practical teaching then my assessments at university. So can't manage without my joints. I was probaby trying to wean myself too quickly.

I'm glad the vitain D is working for you, I'm on that too as well as a host of other vits and minerals.

Hope your joints stay managable for you, best wishes, go

Posted 5/24/2011 5:44 PM (GMT 0)
Hey go,

Thanks for understanding about what I'm going thru with losing my best friend. I'm just so on edge every day wondering if this is her last. I hate the unknown most of all. Scares the hell out of me. I hope I am never in her shoes knowing that every day could be MY last. I don't know how people do it.

Sorry you had to go back to the prednisone but we know our bodies best so I'm sure it was in your best interest to do it. How many IU's of D do you take. I have been wondering if the 5000 I take daily is excessive. I am also a sun worshipper and now that the weather is here I'm sure I'll be getting plenty naturally. I know my GP commented on that once a year or so ago when she tested my D levels which were very good. That was when I was on just 300 IU's daily.

Posted 5/25/2011 2:59 AM (GMT 0)
Hi Weary, I take 1000 IUs of vit D. But my levels are still in the low range! Maybe I should be on more. You could always look up the toxicity symptoms if you were worried about it. I think Mtx makes it hard for us to absorb vit D, now you are off it I wonder what the half life of Mtx is? How long it takes to get completely out of your system? You might find your vit D levels go up naturally.

You'll just have to take every moment with your friend as a last one, enjoy all she has to offer. Life is so very precious,

Take it easy, golitho

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