Posted 8/21/2011 4:59 AM (GMT 0)
I'm 21 years old and every doctor/physio etc except my first rheumatologist said I have some sort of inflammatory autoimmune arthritis. My joints hurt, swell, grind and they're stiff in the mornings and after sitting for a long time. I have dry eyes, dry mouth, nose ulcers, fatigue, flu like symptoms and a rash. My blood tests showed a slightly elevated ANA (x3) and ESR (2x), everything else normal (the rheumatologist did heaps of blood tests). I showed her my rash and she said it was eczema. She said my joint problems were because of an 'emotional response' and a 'mechanical problem'. My old GP put me on a course of Prednisone for 1 month which made me feel like a real person!
I got sent to a physio who felt fluid under my knee caps and said she thought my problems were definitely rheumatological (all her colleagues agreed) and she said there was nothing wrong with me mechanically and to see a new rheumatologist asap.
So I went to a new GP (my old GP wasn't really being overly helpful) and she said she thought that there was something going on and she said "I'd say you have Lupus".. I disagree, I think my symptoms aren't bad enough and I think Undifferentiated Connective Tissue Disease or mild Sero-Negative RA is more likely. (I've done a lot of research, but I'm not a doctor- obviously!). She re-referred me to a new rheumatologist. Anyway, I said to her "I've got this rash on my elbow and the rheumatologist said it's eczema, but I don't think it is". She looked at it and pressed at it and said it doesn't blanch.. She said it's a vascular rash and also a meningitis rash, but I obviously don't have meningitis. She said it's a very common autoimmune rash and because of this I'll definitely be taken seriously. She said she thinks I have a problem with my platelets and coagulation.. She also said she can feel a little nodule on my finger, no idea what that's about!
I went home and Googled all that and found my rash looks like Petechiae and everything she said about it corresponds.
I'm so confused, I feel like an old lady when I'm only 21! Does anyone have any idea about Petechiae? Or my symptoms and what they may mean? And why my blood tests aren't really suggesting what's going on? Any suggestions how I can help the rheumatologist come to the right conclusion?
(I've got records of everything and I've taken photos of rashes and swollen joints etc).
Thank you!!